Navigating Inclusive Research in PhD Studies
A Model for Limited Resource Environments
Bibliographic Data
| ID | 7156547 |
|---|---|
| Authors | Laura Ryan (0000-0001-6127-0053), Kathy Ellem (0000-0003-2074-9724), Robyne Le Brocque (0000-0002-4574-1254), Claire Mitchell (0000-0002-2445-8468), Lynn O Langdon, Luka Langdon |
| Year | 2025 |
| Volume | 24 |
| Publication date | 2025-04-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Qualitative Methods (JOURNAL) |
| Journal identifiers | ISSN: 1609-4069 • E-ISSN: 1609-4069 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/16094069241311201 |
| OpenAlex | W4406143516 |
| Language | EN |
| References cited | 48 |
Inclusive research, which emphasises the active involvement of people with disabilities in the research process, is increasingly recognised as vital for enhancing research quality. Despite its importance, there is a significant gap in the literature regarding implementing inclusive research within doctoral studies in health and wellbeing. This paper has addressed this gap by providing a practical model of how the first author conducted PhD research with two health service consumer advisors with Down syndrome. The consumer advisors participated in eleven meetings lasting up to 2 hours, with a tailored involvement plan that considered their specific needs. The paper has drawn on reflections and feedback from both the PhD student and the advisors, using sources from reflective journals, email exchanges, and meeting notes. The consumer advisors remained engaged throughout the project, offering valuable insights relating to the design, data collection, interpretation and dissemination of the findings. The study highlighted that inclusion can be adapted to fit specific circumstances, even within the constraints of higher degree research and limited resources. It has underscored the importance of consumer advisor involvement for the success of doctoral research. The paper concludes by stressing the need for universities to support PhD students in fostering inclusive research practices
Business · Consumer research · Inclusion (mineral · Interpretation (philosophy · Medical education · Plan (archaeology · Political science · Process (computing · Public relations · Quality (philosophy · Resource (disambiguation · Service (business · Sociology · Adolescent and Pediatric Healthcare · Computer Science · Healthcare innovation and challenges · Medicine · Mental Health and Patient Involvement · Psychology · Marketing · Social Psychology
The added value of inclusive research
Conceptualizing Inclusive Research with People with Intellectual Disability
A Ladder of Citizen Participation
GRIPP2 reporting checklists
From tokenism to empowerment
The impact of patient and public involvement in health research versus healthcare
Motivation of people with intellectual disabilities in technology design activities
Researching the capabilities of people with disabilities
Frameworks for supporting patient and public involvement in research
A realist approach to thematic analysis
Understanding the motivations of patients
Keeping and Using Reflective Journals in the Qualitative Research Process
Normalisation, Emancipatory Research and Inclusive Research in Learning Disability
Barriers and enablers to consumer and community involvement in research and healthcare improvement
Critical Realism in Social Work Research
Celebrating Thirty Years of Inclusive Research
On the Road Together
A Closer Look at the Quest for an Inclusive Research Project
Successful interviews with people with intellectual disability
The practical wisdom of inclusive research
| Citation velocity | historical |
|---|---|
| Highly cited | No |