Running out of time
The case of patient advocacy for ovarian cancer patients' access to Parp inhibitors
Bibliographic Data
| ID | 8020156 |
|---|---|
| Authors | Lisa Lindén (0000-0001-9816-7164, Department of Sociology and Work Science University of Gothenburg Gothenburg Sweden, corresponding author) |
| Year | 2021 |
| Volume | 43 |
| Issue | 9 |
| Pages | 2141-2155 |
| Publication date | 2021-10-12 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13385 |
| PMID | 34636047 |
| OpenAlex | W3204990531 |
| Language | EN |
| Citations received | 5 |
| References cited | 29 |
This article analyses patient advocacy for ovarian cancer patients' access to a group of new targeted cancer treatments, so‐called poly (adenosine diphosphate ribose) polymerase (PARP) inhibitors. Ovarian cancer is often detected in its advanced stages and has relatively poor survival rates. Based on ethnographic fieldwork with the Gynae Cancer Group, a Swedish patients' group, this article examines ovarian cancer patient advocates' engagement with biomedicine as a rarely considered topic in the social sciences. Adopting a modified version of the science and technology studies perspective on evidence‐based activism, I analyse how ovarian cancer patient advocates engage in the ‘epistemic activities’ of framing , producing and mobilising ‘credentialed’ and ‘experiential’ knowledge. I show how patient advocates, alone and together with professionals and the media, engage in epistemic activities to ‘act upon’ ovarian cancer patients' anticipated limited time and poor prognosis: patient advocates mobilise around PARP inhibitors as offering hope, access to these drugs as an urgent matter and ovarian cancer care as unequal. The article contributes to the sociological literature on novel cancer treatments and patient advocacy through its ethnographic tracing of cancer advocacy tropes and knowledge practices, centred on the temporal figure of ‘the patient running out of time
Bioinformatics · Biology · Biomedicine · Cancer · Experiential learning · Framing (construction · Ovarian cancer · Political science · Gender, Feminism, and Media · Internal Medicine · Law · Medicine · Oncology
Accessing diagnosis and treatment
My time, your time, our time. Older patients’ and GPs’ time sensibilities around email consultations
Gendering Chronic Illness in Patient Advocacy
Entanglements and imagined futures
Patient-activist or ally? Assessing the effectiveness of conscience and beneficiary constituents in disease advocacy fundraising
Improvising Medicine
Considering a future which may not exist
Meeting Ethnography
Assembling dementia care
Practising childbirth activism
Evidence-based activism
Accessing targeted therapies for cancer
On being “actionable”
Matters of care
The Political Economy of Hope
The narrative paradox of the BRCA gene
Research "in the wild" and the shaping of new social identities
Personalised cancer medicine
Living Well? Strategies Used by Women Living With Metastatic Breast Cancer
The debate about the funding of Herceptin
Drugs, cancer and end-of-life care
Working from the inside out
The Bad Patient
Theory Construction in Qualitative Research
Framing Processes and Social Movements
The impact of patient advocacy
Framing as a cultural resource in health social movements
Treat them into the grave
Breast-cancer-isation explored
| Unique citing works | 5 |
|---|---|
| Citations per year | 1,67 |
| Citation span | 2023 - 2025 (3) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 5 |