Governing the research-care divide in clinical biobanking

Dutch perspectives

Bibliographic Data

ID8248585
AuthorsMartin Boeckhout (0000-0002-7184-2307, Leiden University), Conor M W Douglas (0000-0002-3302-1743, University of British Columbia)
Year2015
Volume11
Issue1
Pages7-7
Publication date2015-12-01
Open AccessYes
TypeARTICLE
VenueLife Sciences Society and Policy (JOURNAL)
Journal identifiersISSN: 2195-7819 • E-ISSN: 2195-7819
PublisherSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1186/s40504-015-0025-z
PMID26246123
OpenAlexW1664794056
LanguageEN
Citations received3
References cited72

Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The infrastructures for the systematic procurement, management and eventual use of human tissue and data are positioned between healthcare and research. However, the positioning of biobanking infrastructures and transfer of tissue and data between research and care is not an innocuous go-between. Instead, it involves changes in both domains and raises issues about how distinctions between research and care are drawn and policed. Based on an analysis of the emergence and development of clinical biobanking in the Netherlands, this article explores how processes of bio-objectification associated with biobanking arise, redefining the ways in which distinctions between research and clinical care are governed

Biobank · Bioinformatics · Biology · Engineering ethics · Geography · Health care · Objectification · Political science · Public relations · Biomedical Ethics and Regulation · Engineering · Ethics in Clinical Research · Health Systems, Economic Evaluations, Quality of Life · Law · Medicine

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