Disease surveillance data sharing for public health
The next ethical frontiers
Bibliographic Data
| ID | 8248588 |
|---|---|
| Authors | Patty Kostkova (0000-0002-2281-3972, Department of Science and Technology, corresponding author) |
| Year | 2018 |
| Volume | 14 |
| Issue | 1 |
| Pages | 16-16 |
| Publication date | 2018-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Life Sciences Society and Policy (JOURNAL) |
| Journal identifiers | ISSN: 2195-7819 • E-ISSN: 2195-7819 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1186/s40504-018-0078-x |
| PMID | 29971516 |
| OpenAlex | W2809809918 |
| Language | EN |
| Citations received | 4 |
| References cited | 29 |
In the recent years, we have been witnessing a digital revolution in public and global health creating unprecedented opportunities for epidemic intelligence and public health emergencies. However, these opportunities created a double edge sword as access to data, quality monitoring and assurance, as well as governance and regulation frameworks for data privacy are lagging behind technological achievements.In this paper we identify three ethical challenges: sharing data across various early warning tools to support risk assessment. Secondly, define the challenges to be addressed by the legal frameworks for public health data sharing to unlock the potential of population-level datasets for research with no impact on citizens privacy. The third challenge lies with stricter regulation of the IT industry with regards to manipulating user data - such an initiative, GDPR, comes to force in the EU in May 2018
Biobank · Business · Computer security · Corporate governance · Data governance · Data Protection Act 1998 · Data quality · Data science · Data sharing · Health care · Health data · Information privacy · Internet privacy · Lagging · Political science · Public health · Computer Science · COVID-19 Digital Contact Tracing · Data-Driven Disease Surveillance · Ethics in Clinical Research · Medicine · Marketing
| Unique citing works | 4 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 2020 - 2021 (2) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 4 |