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An ethical assessment model for digital disease detection technologies

Bibliographic Data

ID8248684
AuthorsKerstin Denecke (0000-0001-6691-396X, Bern University of Applied Sciences, corresponding author)
Year2017
Volume13
Issue1
Pages16-16
Publication date2017-12-01
Open AccessYes
TypeARTICLE
VenueLife Sciences Society and Policy (JOURNAL)
Journal identifiersISSN: 2195-7819 • E-ISSN: 2195-7819
PublisherSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1186/s40504-017-0062-x
PMID28929347
OpenAlexW2752065644
LanguageEN
Citations received1
References cited16

Digital epidemiology, also referred to as digital disease detection (DDD), successfully provided methods and strategies for using information technology to support infectious disease monitoring and surveillance or understand attitudes and concerns about infectious diseases. However, Internet-based research and social media usage in epidemiology and healthcare pose new technical, functional and formal challenges. The focus of this paper is on the ethical issues to be considered when integrating digital epidemiology with existing practices. Taking existing ethical guidelines and the results from the EU project M-Eco and SORMAS as starting point, we develop an ethical assessment model aiming at providing support in identifying relevant ethical concerns in future DDD projects. The assessment model has four dimensions: user, application area, data source and methodology. The model supports in becoming aware, identifying and describing the ethical dimensions of DDD technology or use case and in identifying the ethical issues on the technology use from different perspectives. It can be applied in an interdisciplinary meeting to collect different viewpoints on a DDD system even before the implementation starts and aims at triggering discussions and finding solutions for risks that might not be acceptable even in the development phase. From the answers, ethical issues concerning confidence, privacy, data and patient security or justice may be judged and weighted

Data science · Digital health · Economic Justice · Engineering ethics · Ethical issues · Health care · Knowledge management · Management science · Political science · The Internet · Viewpoints · World Wide Web · Computer Science · COVID-19 Digital Contact Tracing · Data-Driven Disease Surveillance · Engineering · Focus Groups and Qualitative Methods

  • Which Framework to Use? A Systematic Review of Ethical Frameworks for the Screening or Evaluation of Health Technology Innovations

    Open Access•Tijs Vandemeulebroucke, Yvonne Denier et al.•Science and Engineering Ethics•2022

  • “But the data is already public”

    Open Access•Michael Zimmer•Ethics and Information Technology•2010

  • An Ethics Framework for Public Health

    Norman Ka, Nancy E Kass•American Journal of Public Health•2001

  • Ethical Dilemmas in Research on Internet Communities

    Open Access•Sarah Flicker, Dave Haans et al.•Qualitative Health Research•2004

Citations per year0.25
Citation span2022 - 2022 (1)
Highly citedNo

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