Can You Tell Me What Ethics Means?’
Collaboration, Voice, and Consent in (Inclusive) Research with People with Learning Disabilities
Bibliographic Data
| ID | 8252795 |
|---|---|
| Authors | G M Thomas (0000-0003-4959-2337, corresponding author) |
| Year | 2024 |
| Volume | 4 |
| Issue | 3 |
| Publication date | 2024-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Disability and Social Justice (JOURNAL) |
| Journal identifiers | ISSN: 2732-4036 • E-ISSN: 2732-4044 |
| Publisher | Pluto Journals (PUBLISHER • GB) |
| DOI | 10.13169/intljofdissocjus.4.3.0004 |
| OpenAlex | W4405482764 |
| Language | EN |
| Citations received | 2 |
| References cited | 43 |
Accounts of doing ‘inclusive research’ – in which people with learning disabilities are considered as major stakeholders in the research agenda – have proliferated in recent years. These largely focus on the process of such pursuits, including project planning, research design, data collection, and disseminating results. Yet, whilst scholars have identified the challenges of doing inclusive research, they rarely sketch out the more messy, and everyday, ethical moments when doing research with people with learning disabilities. Drawing on an ethnography in two settings run for and/or with people with learning disabilities in the UK, I ponder the use of an advisory committee, the notion of ‘voice’, and the consent process, to explore how my experiences complicate the philosophies of, and desire for, inclusivity . I conclude by urging researchers attempting to work inclusively to put their approaches under the microscope, in ways that can support others to fine-tune their practices
Engineering ethics · Disability Rights and Representation · Engineering · Feminism, Gender, and Sexuality Studies · Foucault, Power, and Ethics · Psychology
What is inclusive research?
The Ethnographic Self
On the Fireline
Doing research inclusively
The added value of inclusive research
Conceptualizing Inclusive Research with People with Intellectual Disability
The dark side of coproduction
Lost in the shadows
‘Language has been granted too much power’. 1,p.1 Challenging the power of words with time and flexibility in the precommencement stage of research involving those with cognitive impairment
The Fieldworker as Watcher and Witness
Ethnography
Romance, Relationships, and Rights
Available Light
Working together is like a partnership of entangled knowledge’
Whose uncertainty? Learning disability research in a time of Covid-19
Recolonising debates or perpetuated coloniality? Decentring the spaces of disability, development and community in the global South
Negotiating a third space for participatory research with people with learning disabilities
Doing Research Inclusively
Reflections on Working Together in an Inclusive Research Team
Changing the Social Relations of Research Production
On the politics of discomfort
Entangled ethnography
More Than Words
Ethically important moments
From 'on' to 'with' to 'by
Successful interviews with people with intellectual disability
The practical wisdom of inclusive research
The reluctant researcher
Preliminary field-work
"Disability Research and the "Researcher Template
Ethics, Reflexivity, and "Ethically Important Moments" in Research
| Unique citing works | 2 |
|---|---|
| Citations per year | 2 |
| Citation span | 2025 - 2026 (2) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 2 |