Imagining and Preventing the Future Existence of Bodies with Variations in Sex Characteristics
Bibliographic Data
| ID | 8357280 |
|---|---|
| Authors | Limor Meoded Danon (0000-0003-3584-8645, Bar-Ilan University, corresponding author), Tamar Paperna (Rambam Health Care Campus), Hagit Daum (0000-0002-8318-3599, Hadassah Medical Center), Shachar Zuckerman (0000-0003-1375-1447, Shaare Zedek Medical Center) |
| Year | 2025 |
| Volume | 54 |
| Issue | 10 |
| Pages | 4115-4131 |
| Publication date | 2025-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Archives of Sexual Behavior (JOURNAL) |
| Journal identifiers | ISSN: 0004-0002 • E-ISSN: 1573-2800 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1007/s10508-025-03261-9 |
| PMID | 41254346 |
| OpenAlex | W4416331865 |
| Language | EN |
| References cited | 70 |
The diagnosis of bodies with variations in sex characteristics (VSC) is a powerful social act that affects the social realities of patients, doctors, and families. This process includes an imagined connection between various biological characteristics and sociocultural norms of gender and fertility. We studied how Israeli medical professionals approach VSC in fertility and prenatal settings. Our research considered two contrasting trends: the growing recognition of VSC individuals’ rights to make decisions about their bodies and the increasing use of genetic testing to prevent VSC conditions. We conducted in-depth interviews with 27 biomedical professionals from different hospitals in Israel and collected data on preimplantation genetic testing cycles at three central hospitals in the country to identify VSC genetic conditions. The findings show how tensions and gaps regarding perceptions of fertility and bodies with diverse sex development exist among various specialists and their patients across different clinical interactions. We describe these gaps and their physical and social outcomes through three themes: “controlling the diagnostic emergency of VSC,” “secrets and concealment in the genetic diagnostic process,” and “imagining and preventing the existence of fertile bodies.”
Fertility · Genetic testing · Perception · Perspective (graphical) · Preimplantation genetic diagnosis · Public health · Sexual behavior · Social environment · Sociocultural evolution · Prenatal Screening and Diagnostics · Race, Genetics, and Society · Sexual Differentiation and Disorders
Contesting Intersex
Sex Itself
Contested Boundaries
The “Normalization” of Intersex Bodies and “Othering” of Intersex Identities in Australia
Experiences, Perceptions, and Meanings of the Ultra-Orthodox in Israel Regarding Premarital Genetic Testing
Putting a Name to It
Coming to terms with the imperfectly normal child
Sociology of diagnosis
Childhood surgery for ambiguous genitalia
Intersex lived experience
Beyond the Sociology of Diagnosis
The pursuit of quality in grounded theory
Intersex human rights
Intersex and Intimacy
Naming and Framing
Seizing the Means of Reproduction
The Parental Struggle With the Israeli Genital Socialization Process
Get with the Program
Patient activism and the struggle for diagnosis
Time matters for intersex bodies
The Body/Secret Dynamic
Sex/Gender
The Social Construction of Illness
The Shifting Engines of Medicalization
From Lydia Pinkham to Queen Levitra
Intersex, infertility and the future
| Citation velocity | historical |
|---|---|
| Highly cited | No |