Psychologists as leaders in equitable science
Applications of antiracism and community participatory strategies in a pediatric behavioral medicine clinical trial
Bibliographic Data
| ID | 8726195 |
|---|---|
| Authors | Desireé N Williford (0000-0003-1763-5507, corresponding author), Emily McTate (0000-0002-6538-109X), Emily A McTate, Anna Hood (0000-0002-7213-1179), Simon Reader (0000-0002-2676-774X, Nemours Children's Health System), Steven K Reader, Aimee K Hildenbrand (0000-0003-0147-3232, Nemours Children's Health System), Kim Smith‐Whitley (0000-0002-2790-411X), Kim Smith-Whitley, Susan E Creary (0000-0002-4730-8139), Alexis A Thompson (0000-0003-4961-8103), Rogelle Hackworth (0000-0002-2648-335X), Jean L Raphael (0000-0002-8612-1705), Lori E Crosby (0000-0001-6656-7745) |
| Year | 2023 |
| Volume | 78 |
| Issue | 2 |
| Pages | 107-118 |
| Publication date | 2023-02-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | American Psychologist (JOURNAL) |
| Journal identifiers | ISSN: 0003-066X • E-ISSN: 1935-990X |
| Publisher | American Psychological Association (PUBLISHER • US) |
| DOI | 10.1037/amp0001086 |
| PMID | 37011163 |
| OpenAlex | W4362497173 |
| Language | EN |
| References cited | 7 |
Psychologists have an ethical responsibility to advance health equity and can play a significant role in improving health care experiences for families racialized as Black, including those with sickle cell disease (SCD), a group of genetic blood disorders primarily affecting communities of color. Parents of children with SCD report experiences of stigma and discrimination due to racism in the health care system. The current commentary describes the application of antiracism and participatory strategies to the research design, implementation, and dissemination of a behavioral medicine clinical trial (Engage-HU; NCT03442114) of shared decision-making (SDM) for pediatric patients with SCD, including (a) the development of a research question to promote justice for racialized groups; (b) a focus on "redressing imbalances" through SDM and a multidisciplinary, inclusive research team led by a Black psychologist; (c) community participatory approaches through the integration of stakeholder feedback across the study; and (d) centering context by attending to structural realities in response to the COVID-19 and racism pandemics. With attention to the fact that most primary caregivers of children with SCD are Black women, an intersectionality lens was applied. Implications and considerations for psychologists working to advance health equity in medical settings are also discussed. (PsycInfo Database Record (c) 2023 APA, all rights reserved)
Community-based participatory research · Health care · Health equity · Medical education · MEDLINE · Participatory action research · Political science · PsycINFO · Public health · Public relations · Racism · Sociology · Stakeholder · Ethics and Legal Issues in Pediatric Healthcare · Family and Disability Support Research · Medicine · Nursing · Prenatal Screening and Diagnostics · Psychology · Gender Studies
| Highly cited | No |
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