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Opening Pandora’s Box

From Readmissions to Transitional Care Patient-Centered Outcome Measures

Bibliographic Data

ID9097152
AuthorsMathew J Reeves (0000-0002-8019-6343, Department of Epidemiology and Biostatistics, corresponding author), Michele C Fritz (0000-0002-4146-2469, Michigan State University), Ifeyinwa Osunkwo (0000-0002-0996-2148, Levine Cancer Institute), Corita R Grudzen (0000-0003-3039-8497, NYU Grossman School of Medicine), Lewis L Hsu (0000-0002-3156-2378, University of Illinois Chicago), Jing Li (0000-0001-7792-4322, University of Kentucky), Raymona H Lawrence (0000-0001-6554-3354, Georgia Southern University), Janet Prvu Bettger (0000-0001-9708-8413, Duke University, corresponding author)
Year2021
Volume59
IssueSuppl 4
PagesS336-S343
Publication date2021-08-01
Open AccessYes
TypeARTICLE
VenueMedical Care (JOURNAL)
Journal identifiersISSN: 0025-7079 • E-ISSN: 1537-1948
PublisherOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0000000000001592
PMID34228015
OpenAlexW3180195091
LanguageEN
Citations received1
References cited42

BACKGROUND: Measuring the effectiveness of transitional care interventions has historically relied on health care utilization as the primary outcome. Although the Care Transitions Measure was the first outcome measure specifically developed for transitional care, its applicability beyond the hospital-to-home transition is limited. There is a need for patient-centered outcome measures (PCOMs) to be developed for transitional care settings (ie, TC-PCOMs) to ensure that outcomes are both meaningful to patients and relevant to the particular care transition. The overall objective of this paper is to describe the opportunities and challenges of integrating TC-PCOMs into research and practice. METHODS AND RESULTS: This narrative review was conducted by members of the Patient-Centered Outcomes Research Institute (PCORI) Transitional Care Evidence to Action Network. We define TC-PCOMs as outcomes that matter to patients because they account for their individual experiences, concerns, preferences, needs, and values during the transition period. The cardinal features of TC-PCOMs should be that they are developed following direct input from patients and stakeholders and reflect their lived experience during the transition in question. Although few TC-PCOMs are currently available, existing patient-reported outcome measures could be adapted to become TC-PCOMs if they incorporated input from patients and stakeholders and are validated for the relevant care transition. CONCLUSION: Establishing validated TC-PCOMs is crucial for measuring the responsiveness of transitional care interventions and optimizing care that is meaningful to patients

Health care · MEDLINE · Narrative · Outcome (game theory) · Political science · Psychological intervention · Transition (genetics) · Transitional care · Adolescent and Pediatric Healthcare · Chronic Disease Management Strategies · Heart Failure Treatment and Management · Medicine · Nursing · Psychology

  • Patient-Centered Approaches to Transitional Care Research and Implementation

    Open Access•Carly Parry, Michelle Johnston-Fleece et al.•Medical Care•2021

  • The Care Transitions Intervention

    Open Access•Eric A Coleman, Carla Parry et al.•A.M.A. Archives of Internal…•2006

  • The eight-item modified Medical Outcomes Study Social Support Survey

    Open Access•André Moser, Andreas E Stuck et al.•Journal of Clinical Epidemiology•2012

  • The science of stakeholder engagement in research

    Open Access•Melody S Goodman, Vetta L Sanders Thompson•Translational Behavioral Medicine•2017

  • Isoqol recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research

    Open Access•Bryce B Reeve, Kathleen W Wyrwich et al.•Quality of Life Research•2013

  • Falling Through the Cracks

    Open Access•Eric A Coleman•Journal of the American…•2003

  • Comprehensive Discharge Planning and Home Follow-up of Hospitalized Elders

    Mary D Naylor, Dorothy Brooten et al.•JAMA•1999

  • Development and testing of a measure designed to assess the quality of care transitions

    Open Access•Eric A Coleman, Jodi D Smith et al.•International Journal of…•2002

  • What is the Concordance Between the Medical Record and Patient Self-Report as Data Sources for Ambulatory Care

    Diana M Tisnado, John Adams et al.•Medical Care•2006

  • Assessing the Quality of Transitional Care

    Carla Parry, Eldon R Mahoney et al.•Medical Care•2008

  • Assessing the Quality of Preparation for Posthospital Care from the Patient??s Perspective

    Eric A Coleman, Eldon R Mahoney et al.•Medical Care•2005

Citations per year0.2
Citation span2021 - 2021 (1)
Highly citedNo

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