Health Care Journeys of Veterans With Gulf War Illness
Bibliographic Data
BACKGROUND: There is an acknowledged need to improve care for patients with persistent physical symptoms. Veterans who served in the 1990-91 Gulf War are a subpopulation of U.S. military Veterans who have been struggling with persistent physical symptoms for decades. The current study sought to characterize Veterans' historic path through the health care system and current experience of care to identify opportunities to improve care. METHODS: Analysis of interviews conducted with 31 Veterans who met criteria for Gulf War Illness (GWI) was conducted to understand Veterans' health care journeys, from symptom onset to the present. RESULTS: Early in their journey, Veterans felt uncertain about the nature of their condition and how to explain it to clinicians. Veterans described a cycle of referrals to specialists to pursue individual symptoms and subsequent return to primary care with few actionable findings. During this cycle, Veterans often felt dismissed or invalidated by clinicians. Over time, most Veterans felt care became increasingly fragmented, with multiple clinicians caring for them without a plan to manage GWI and little acknowledgement of GWI as a discrete illness. Further in their journey, some Veterans were referred to tertiary centers where they encountered a more holistic approach. CONCLUSIONS: Findings point to the need to shift care for Veterans with GWI, and similar conditions, away from overly focusing on individual symptoms. Instead, primary care clinicians need training and support, potentially from tertiary care experts, to develop and implement holistic care plans that recognize GWI as a complex chronic condition
Gulf war · Health care · MEDLINE · Patient care · Primary care · Primary health care · Self care · Tertiary care · Fibromyalgia and Chronic Fatigue Syndrome Research · Psychosomatic Disorders and Their Treatments · Sleep and Work-Related Fatigue
“This Might Be Your New Normal…” Storytelling Amidst Uncertainty and Medically Unexplained Symptoms
Vulnerability and agency across treatment-seeking journeys for acutely ill children
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Barriers to Care and Health Care Utilization Among the Publicly Insured
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Empirical Evaluation of Veterans’ Perceived Nonconcordance With Providers Regarding Medically Unexplained Symptoms
Use of Framework Matrix and Thematic Coding Methods in Qualitative Analysis for mHealth
US military veterans’ perceived concordance with their providers regarding persistent physical symptoms prospectively predicts satisfaction with care and adherence to care plans
Cancer in the mass print media
Patient activism and the struggle for diagnosis
Because the country, it seems though, has turned their back on me
A Gulf of Difference
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2026 - 2026 (1) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 1 |