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A Comparative Analysis of Online Medical Record Utilization and Perception by Cancer Survivorship

Bibliographic Data

ID9101597
AuthorsSaira Khan (0000-0001-7614-069X, University of Delaware, corresponding author), Marquita W Lewis-Thames (Northwestern University), Marquita W Lewis‐Thames (0000-0001-5909-7167, Northwestern University), Yunan Han (0000-0002-6378-7715, Department of Surgery, Division of Public Health Sciences, Washington University in St Louis School of Medicine, St Louis, MO), Lindsay Fuzzell (0000-0001-9688-5365, Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center, Tampa, FL), Marvin E Langston (0000-0002-4777-2425, Division of Research, Kaiser Permanente Northern California, Oakland, CA), Justin X Moore (0000-0002-5496-752X, Augusta University)
Year2020
Volume58
Issue12
Pages1075-1081
Publication date2020-12-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueMedical Care (JOURNAL)
Journal identifiersISSN: 0025-7079 • E-ISSN: 1537-1948
PublisherOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0000000000001413
PMID32925466
OpenAlexW3085904133
LanguageEN
References cited27

BACKGROUND: Cancer survivors face many challenges including coordinating care across multiple providers and maintaining medical records from multiple institutions. Access and utilization of online medical records could help cancer survivors manage this complexity. Here, we examined how cancer survivors differ from those without a history of cancer with regards to utilization and perception of medical records. METHODS: We conducted a cross-sectional study of 3491 respondents, from the Health Information National Trends survey 5, cycle 2. The association of medical record utilization and perceptions with cancer survivorship was assessed using survey-weighted logistic regression. RESULTS: Cancer survivors (n=593) were more likely to report that a provider maintains a computerized medical record [adjusted odds ratio (AOR)=2.05; 95% confidence (CI), 1.24-3.41] and were more likely to report confidence in medical record safeguards (AOR=1.44; 95% CI, 1.03-2.03). However, cancer survivors were no more likely to access online medical records than those without a history of cancer (AOR=1.13; 95% CI, 0.69-1.86). Cancer survivors were no more likely to report privacy concerns as a reason for not accessing online medical records, however, survivors were more likely to report a preference for speaking directly with a provider as a reason for not accessing online medical records (AOR=2.24; 95% CI, 0.99-5.05). CONCLUSIONS: Although cancer survivors are more likely to trust medical record safe guards and do not express increased concerns about online medical record privacy, a preference to speak directly with provider is a barrier of use

Cancer · Cancer registry · Cancer survivor · Cancer survivorship · Confidence interval · Cross-sectional study · Family medicine · Logistic regression · Medical history · Medical record · Odds · Odds ratio · Survivorship curve · Electronic Health Records Systems · Internal Medicine · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy

  • The Health Information National Trends Survey (HINTS)

    David Nelson, David E Nelson et al.•Journal of Health Communication•2004

  • Ethical Considerations about EHR-Mediated Results Disclosure and Pathology Information Presented via Patient Portals

    Open Access•Kristina A Davis, Lauren B Smith•The AMA Journal of Ethic•2016

Citation velocityhistorical
Highly citedNo

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