Caring for Grieving Family Members
Results From a National Hospice Survey
Bibliographic Data
| ID | 9101728 |
|---|---|
| Authors | Colleen L Barry (0000-0001-8211-5036, Johns Hopkins University, corresponding author), Melissa Carlson (0000-0002-8611-3748, Icahn School of Medicine at Mount Sinai), Melissa D A Carlson, Jennifer Thompson (0000-0003-2921-6887, Yale University), Jennifer W Thompson, Mark Schlesinger (0000-0002-7142-8667, Yale University), Ruth Mccorkle (0000-0001-6578-5441, Yale University), Stanislav V Kasl (Yale University), Elizabeth H Bradley (0000-0003-2592-2741, Yale University) |
| Year | 2012 |
| Volume | 50 |
| Issue | 7 |
| Pages | 578-584 |
| Publication date | 2012-07-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Medical Care (JOURNAL) |
| Journal identifiers | ISSN: 0025-7079 • E-ISSN: 1537-1948 |
| Publisher | Ovid Technologies (Wolters Kluwer Health) (PUBLISHER) |
| DOI | 10.1097/mlr.0b013e318248661d |
| PMID | 22310561 |
| PMCID | PMC3374048 |
| OpenAlex | W1977547369 |
| Language | EN |
| Citations received | 3 |
| References cited | 22 |
BACKGROUND: A founding principle of hospice is that the patient and family is the unit of care; however, we lack national information on services to family members. Although Medicare certification requires bereavement services be provided, reimbursement rates are not tied to the level or quality of care; therefore, limited financial incentives exist for hospice to provide more than a minimal benefit. OBJECTIVES: To assess the scope and intensity of services provided to family members by hospice. RESEARCH DESIGN: We fielded a national survey of hospices between September 2008 and November 2009. PARTICIPANTS: A national sample of US hospices with an 84% response rate (N=591). MEASURES: Bereavement services to the family, bereavement services to the community, labor-intensive family services, and comprehensive family services. RESULTS: Most hospices provided bereavement services to the family (78%) and to the community (76%), but only a minority of hospices provided labor-intensive (23%) or comprehensive (27%) services to grieving family members. Larger hospice size was positively and significantly associated with each of the 4 measures of family services. We found no significant difference in provision of bereavement services to the family, labor-intensive services, or comprehensive services by ownership type; however, nonprofit hospices were more likely than for-profit hospices to provide bereavement services to the community. CONCLUSIONS: Our results show substantial diversity in the scope and intensity of services provided to families of patients with terminal illnesses, suggesting a need for clearer guidance on what hospices should provide to exemplify best practices. Consensus within the field on more precise guidelines in this area is essential
Business · Certification · Economic growth · Family medicine · Health care · Incentive · Political science · Reimbursement · Family and Patient Care in Intensive Care Units · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues
Health outcomes of bereavement
The influence of symptoms of prolonged grief disorder, depression, and anxiety on quality of life among bereaved adults
The American Way of Hospice
Development of Hospice and Palliative Care in the United States
Family Care before and after Bereavement
The Impact of Complicated Grief on Mental and Physical Health at Various Points in the Bereavement Process
Bereavement Practices Among California Hospices
Bereavement Practices Among California Hospices
Does Grief Counseling Work
Ownership Status and Patterns of Care in Hospice
| Unique citing works | 3 |
|---|---|
| Citations per year | 0,38 |
| Citation span | 2018 - 2026 (9) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 3 |