Patient Versus Clinician Item Generation for Quality-of-Life Measures

The Case of Language-Disabled Adults

Bibliographic Data

ID9102000
AuthorsJonathan Lomas (McMaster University, corresponding author), Laura Pickard (McMaster University, corresponding author), Ann Mohide (McMaster University)
Year1987
Volume25
Issue8
Pages764-768
Publication date1987-08-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueMedical Care (JOURNAL)
Journal identifiersISSN: 0025-7079 • E-ISSN: 1537-1948
PublisherOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/00005650-198708000-00009
PMID2447451
OpenAlexW2030999076
LanguageEN
Citations received8

Using nominal group process to develop a measure of quality of life, two groups of aphasic patients and a group of rehabilitation clinicians generated separate lists of important functional communication situations. Comparison of the lists by raters who were blind to their source revealed that the two patient lists were more similar to each other than were either of the patient lists to the clinician list; clinicians underestimate the patients' focus on social needs; patients, rather than clinicians, generated the more specific and concrete situations, which are of use in a quality-of-life measure. The study demonstrates that language-disabled adults can generate items for a quality-of-life measure (hence, this should be possible in almost any other disease group), and that clinician-generated items are not fully representative of patient values

Data mining · Focus group · Measure (data warehouse) · MEDLINE · Physical therapy · Quality (philosophy) · Quality of life (healthcare) · Computer Science · Delphi Technique in Research · Medicine · Nursing · Patient Satisfaction in Healthcare · Patient-Provider Communication in Healthcare · Psychology · Rehabilitation