MoodNetwork
An Innovative Approach to Patient-centered Research
Bibliographic Data
INTRODUCTION: Research has often been viewed as a passive process by which participants enroll in studies developed by researchers. It is becoming clearer that to understand the nuances of mood episodes and how to prevent them, we need to conduct large clinical trials that have the power to investigate moderators and mediators, or catalysts and mechanisms of change. MoodNetwork, the first online, patient-centered research community for individuals with mood disorders, aims to change the way that traditional research has been conducted by involving patients, their caregivers, and advocates in the process of research. The aim of this report is to share lessons learned from developing MoodNetwork. METHODS: Participants enroll by completing a demographic survey and consent form. Once enrolled, participants are encouraged to complete optional surveys about their mood disorders and areas of research priority. Stakeholder and advocacy partners developed the website, web-based surveys, and recruitment materials. RESULTS: MoodNetwork has enrolled 4103 participants to date. Of this sample, 96.9% report experiencing depression and 79.7% endorse symptoms of mania or hypomania. Participants rated reducing stigma and alleviating symptoms as their 2 largest research priorities. Recruitment has been slower than expected. Recruiting a diverse sample has been challenging, and this impacts the Network's ability to conduct comparative effectiveness research studies. DISCUSSION: We discuss lessons learned from recruiting individuals with mood disorders to MoodNetwork, an innovative approach to conducting clinical trials. We identify and review 5 strategies for increasing enrollment as well as future directions
Bipolar disorder · Clinical trial · Hypomania · Mania · Mood · Psychiatry · Stigma (botany) · Clinical Psychology · Digital Mental Health Interventions · Medicine · Mental Health and Patient Involvement · Mental Health via Writing · Psychology
Men and health help‐seeking behaviour
The Epidemiology of Major Depressive Disorder
Lifetime and 12-Month Prevalence of Bipolar Spectrum Disorder in the National Comorbidity Survey Replication
Avoidable waste in the production and reporting of research evidence
Mental Health Consumers' Experience of Stigma
Acute and Longer-Term Outcomes in Depressed Outpatients Requiring One or Several Treatment Steps
Disparity in Depression Treatment Among Racial and Ethnic Minority Populations in the United States
Racial and Ethnic Disparities in Depression Care in Community-Dwelling Elderly in the United States
On Stigma and Its Consequences
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,25 |
| Citation span | 2018 - 2021 (4) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |