Patient-Based Health Status Measures in Outpatient Dialysis

This paper describes the initial development of a patient-based outcomes assessment program in an outpatient dialysis unit. This project presented four logistical and practical issues that are discussed in this paper: patient acceptance of quarterly administrations of a generic health status survey (the SF-36); timing of administration during dialysis session; respondent burden; and staff burden. Also discussed are three issues related to the clinical use of these assessments: medical record status of SF-36 data; use in clinical decisionmaking; and clinicians' responses to aggregate data from patient-based health status assessments. The investigation reported presents strong evidence of patient acceptance of the SF-36. Data collection problems reflected the nature of a busy dialysis unit, and most have been corrected. Considering functional status, the role functioning of dialysis patients is most adversely affected; among well-being measures, patients are most compromised by pain and lack of energy. Clinicians' reviews of these results point to the need for normative data, information about severity of primary and comorbid diseases, and knowledge of relationships between SF-36 scores and physiologic parameters to make clinical use of generic health outcome assessments

Dialysis · Family medicine · MEDLINE · Normative · Psychiatry · Respondent · Unit (ring theory) · Dialysis and Renal Disease Management · Health Systems, Economic Evaluations, Quality of Life · Medicine · Patient Satisfaction in Healthcare · Psychology

• International quality of life assessment (Iqola) project

  Open Access•Neil K Aaronson, C Acquadro et al.•Quality of Life Research•1992

  Incluir item

• Self-help groups in Belgium

  Open Access•Sofie Damen, Dimitri Mortelmans et al.•Sociology of Health & Illness•2000

  Incluir item

• Comparisons of the Costs and Quality of Norms for the SF-36 Health Survey Collected by Mail Versus Telephone Interview

  Colleen A Mchorney, Mark Kosinski et al.•Medical Care•1994

  Incluir item

• The MOS 36-ltem Short-Form Health Survey (SF-36)

  Colleen A Mchorney, John E Ware et al.•Medical Care•1994

  Incluir item

• Finale Panel

  Harold I Goldberg, Robert H Pantell et al.•Medical Care•1992

  Incluir item

• The Saskatchewan Health and Back Pain Survey

  Open Access•Linda Carroll, Linda J Carroll et al.•Canadian Journal of Public Health•2000

  Incluir item

• Mental Health and Vitality Among Canadian Women With Physical Disabilities

  R FEL•Psychological Reports•2003

  Incluir item

• Deriving a Preference-Based Single Index from the UK SF-36 Health Survey

  Open Access•John Brazier, Tim Usherwood et al.•Journal of Clinical Epidemiology•1998

  Incluir item

• SF-36 Health Survey Update

  John E Ware•Spine•2000

  Incluir item

• The SF-36 Health Survey

  John E Ware, Jr John E Ware et al.•International Journal of Mental…•1994

  Incluir item

• A Comparative Review of Generic Quality-of-Life Instruments

  Open Access•Stephen Joel Coons, Sumati Rao et al.•PharmacoEconomics•2000

  Incluir item

• Patient-based health status measurement in clinical practice

  Open Access•Anita K Wagner, Bruce L Ehrenberg et al.•Quality of Life Research•1997

  Incluir item

• Estimation and comparison of derived preference scores from the SF-36 in lung transplant patients

  Open Access•Francis Lobo, Francis S Lobo et al.•Quality of Life Research•2004

  Incluir item

• A questionnaire to assess the generic and disease-specific health outcomes of patients with chronic hepatitis C

  Open Access•Martha Bayliss, Martha S Bayliss et al.•Quality of Life Research•1997

  Incluir item

• Development of the Kidney Disease Quality of Life (KDQOLTM) Instrument

  Open Access•Ron D Hays, Joel Kallich et al.•Quality of Life Research•1994

  Incluir item

• Mental Health and Vitality among Canadian Women with Physical Disabilities

  Open Access•Ross Feld, Angela Colantonio et al.•Psychological Reports•2003

  Incluir item

• The Treatment of Neck and Low Back Pain

  Pauline Côté, Pierre Côté et al.•Medical Care•2001

  Incluir item

• Changes in Health After Elective Percutaneous Coronary Revascularization

  Harlan M Krumholz, Colleen A Mchorney et al.•Medical Care•1996

  Incluir item

• Monitoring Health Outcomes Among Patients With Arthritis Using the SF-36 Health Survey

  Susan Keller, Susan D Keller et al.•Medical Care•1999

  Incluir item

• The MOS Short-form General Health Survey

  Anita L Stewart, Ron D Hays et al.•Medical Care•1988

  Incluir item