Measuring Chronic Patients’ Feelings of Being a Burden to their Caregivers
Development and Preliminary Validation of a Scale
Bibliographic Data
| ID | 9103646 |
|---|---|
| Authors | Natalie Cousineau (University of Ottawa, corresponding author), Ian Mcdowell (0009-0003-7239-8177, University of Ottawa, corresponding author), Steve Hotz (University of Ottawa, corresponding author), Paul Hébert, Paul L Hebert (0000-0002-5886-7964) |
| Year | 2003 |
| Volume | 41 |
| Issue | 1 |
| Pages | 110-118 |
| Publication date | 2003-01-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Medical Care (JOURNAL) |
| Journal identifiers | ISSN: 0025-7079 • E-ISSN: 1537-1948 |
| Publisher | Ovid Technologies (Wolters Kluwer Health) (PUBLISHER) |
| DOI | 10.1097/00005650-200301000-00013 |
| PMID | 12544548 |
| OpenAlex | W2067965122 |
| Language | EN |
| Citations received | 19 |
| References cited | 25 |
BACKGROUND: Burden on caregivers has been extensively studied, but the patient's own feelings of being a burden have rarely been examined. Such feelings may lead to distress and can complicate relations with the caregiver. This report describes the development and preliminary validation of a scale to measure patient-perceived burden. MATERIALS AND METHODS: A conceptual framework and scale items were derived from previous literature and from qualitative interviews with patients and health professionals. Following content validity and item clarity analyses, a 25-item scale was developed. This was then administered in a construct validation to 100 outpatients undergoing hemodialysis. RESULTS: Discriminant validity coefficients showed that burden scores were independent of age, education, and time on dialysis. Convergent analyses showed modest correlations with the number of comorbid conditions (r = 0.20, P < 0.04), functional status (r = 0.26, P < 0.01), physical function (r = 0.30, P < 0.01), and mental health (r = 0.39, P < 0.01). Alpha internal consistency was 0.92 and factor analyses revealed a single main factor. A 10-item abbreviation (alpha = 0.85) is therefore proposed. CONCLUSION: The self-perceived burden scale shows promise as a measure to identify patients in emotional distress due to feelings of being a burden on others, and as an outcome measure in intervention studies
Caregiver burden · Construct validity · Discriminant validity · Distress · Feeling · Internal consistency · Psychiatry · Psychometrics · Scale (ratio) · Clinical Psychology · Dialysis and Renal Disease Management · Family Caregiving in Mental Illness · Internal Medicine · Medicine · Nursing care and research · Psychology · Social Psychology
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Feeling like a burden
| Unique citing works | 19 |
|---|---|
| Citations per year | 1 |
| Citation span | 2007 - 2026 (20) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 18 |