The Patient-Reported Outcomes Measurement Information System (PROMIS)
Progress of an NIH Roadmap Cooperative Group During its First Two Years
Bibliographic Data
| ID | 9104411 |
|---|---|
| Authors | David Cella (0000-0002-9881-4541, Northwestern University, corresponding author), Susan Yount (0000-0003-2940-2073, Northwestern University, corresponding author), Nan Rothrock (0000-0002-4821-5030, NorthShore University HealthSystem, corresponding author), Richard Gershon (0000-0003-0085-0112, NorthShore University HealthSystem, corresponding author), K F Cook (0000-0002-1469-1442, NorthShore University HealthSystem, corresponding author), Karon Cook, Bryce B Reeve (0000-0002-6709-8714, National Cancer Institute), Bryce Reeve, Deborah N Ader (Samueli Institute), Deborah Ader, James F Fries (Stanford University), Bonnie Bruce (0000-0003-3003-2962, Stanford University), Matthias Rose (0000-0001-5233-3139), Mattias Rose |
| Year | 2007 |
| Volume | 45 |
| Issue | 5 |
| Pages | S3-S11 |
| Publication date | 2007-05-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Medical Care (JOURNAL) |
| Journal identifiers | ISSN: 0025-7079 • E-ISSN: 1537-1948 |
| Publisher | Ovid Technologies (Wolters Kluwer Health) (PUBLISHER) |
| DOI | 10.1097/01.mlr.0000258615.42478.55 |
| PMID | 17443116 |
| PMCID | PMC2829758 |
| OpenAlex | W2138871559 |
| Language | EN |
| Citations received | 258 |
| References cited | 25 |
The NIH PROMIS network derived a consensus-based framework for self-reported health, systematically reviewed available instruments and datasets that address the initial PROMIS domains. Qualitative item research led to the first wave of network testing which began in the second year
Computerized adaptive testing · Distress · Domain (mathematical analysis) · Item response theory · Knowledge management · Medical education · MEDLINE · Mental health · Patient-Reported Outcomes Measurement Information System · Population · Psychiatry · Psychometrics · Applied Psychology · Cardiac Health and Mental Health · Clinical Psychology · Computer Science · Delphi Technique in Research · Maternal Mental Health During Pregnancy and Postpartum · Medicine · Psychology
Burden of mental health symptoms and access to needed mental health care among people with HIV in New England
Sources of Stress in Relation to Sleep Health During the Covid-19 Pandemic
A mental health-physical health-violence (MPV) syndemic factor in women with mental disorders
Customized computer-based administration of the PCL-5 for the efficient assessment of PTSD
Post-traumatic stress and future substance use outcomes
The Success Peer Mentoring Program for College Students with Concussion
Investigating Perceptions of Teachers and School Nurses on Child and Adolescent Oral Health in Los Angeles County
ResQ Family
Experiences with Telemedicine for HIV Care During the Covid-19 Pandemic
Association of Perceived Stress and Discrimination on Medication Adherence among Diverse Patients with Uncontrolled Hypertension
Social Determinants of Health as Potential Influencers of a Collaborative Care Intervention for Patients with Hypertension
Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales
Development of a vision-targeted health-related quality of life item measure
Relevant content for a patient-reported outcomes questionnaire for use in oncology clinical practice
Resilience is associated with health-related quality of life in caregivers of service members and veterans following traumatic brain injury
Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS®) in adolescents and young adults with special healthcare needs
International validation of the EORTC CAT Core
Psychometric evaluation of the EORTC computerized adaptive test (CAT) fatigue item pool
Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints
Importance ratings on patient-reported outcome items for survivorship care
Understanding patient-reported outcome measures in Huntington disease
Examining differential responses of youth with and without autism on a measure of everyday activity performance
How recent health-related life events affected my perspective on quality-of-life research
Measuring fatigue in persons with multiple sclerosis
Use of cognitive interviews in the development of the PLUS-M item bank
Patient adherence to patient-reported outcome measure (PROM) completion in clinical care
Evaluating cognition in individuals with Huntington disease
Correlation of PROMIS scales and clinical measures among chronic obstructive pulmonary disease patients with and without exacerbations
Optimism and Sleep in Aging Women
Demographic Differences in Health Preferences in the United States
Study of active neighborhoods in Detroit (StAND)
Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks in pediatric traumatic brain injury
Cross-cultural adaptation, reliability, and construct validity of the Thai version of the Patient-Reported Outcomes Measurement Information System-29 in individuals with chronic low back pain
Validity of the PROMIS depression and anxiety common metrics in an online sample of Australian adults
Development and evaluation of the PI-G
The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale
On the effect of adding clinical samples to validation studies of patient-reported outcome item banks
Simulation study comparing analytical methods for single-item longitudinal patient-reported outcomes data
Development and calibration data for the Illness Burden item bank
Setting standards for severity of common symptoms in oncology using the PROMIS item banks and expert judgment
Development and psychometric properties of the PROMIS® pediatric fatigue item banks
Content analysis of PROMIS physical function banks using the international classification of functioning, disability and health
Exploratory and confirmatory factor analysis of the PROMIS pain quality item bank
A new computerized adaptive test advancing the measurement of health-related quality of life (HRQoL) in children
Linking the RCADS-25 to the PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general Dutch population sample
Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial
Support for the higher-order factor structure of the WHODAS 2.0 self-report version in a Dutch outpatient psychiatric setting
Selection of items for a computer-adaptive test to measure fatigue in patients with rheumatoid arthritis
Modernizing quality of life assessment
Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions
Translation and cross-cultural adaptation of eight pediatric PROMIS® item banks into Spanish and German
Feasibility and acceptability of intensive longitudinal data collection of activity and patient-reported outcomes during chemotherapy for breast cancer
Selection of key health domains from PROMIS® for a generic preference-based scoring system
Dental care plan assessment using the CAHPS Dental Plan Survey
Measurement-Based Care for Depression in Youth
Item Banks for Measuring Emotional Distress From the Patient-Reported Outcomes Measurement Information System (PROMIS®)
Development and Validation of Patient-Reported Outcome Measures for Sleep Disturbance and Sleep-Related Impairments
Development of a PROMIS item bank to measure pain interference
An Introduction to Item Response Theory for Patient-Reported Outcome Measurement
Evaluating the seven-item Center for Epidemiologic Studies Depression Scale short-form
Item Response Theory and Clinical Measurement
The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks
Measuring individual true change with PROMIS using IRT-based plausible values
PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions
Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) pediatric item bank peer relationships in the Dutch general population
Type of clinical outcomes used by healthcare professionals to evaluate health-related quality of life domains to inform clinical decision making for chronic pain management
The Italian Version of the Difficulties in Emotion Regulation Scale-8 (Ders-8)
Associations between Self-Determined Motivation, Accelerometer-Determined Physical Activity, and Quality of Life in Chinese College Students
Development and validation of the HDSIMTM assessment system
Does recall period matter? Comparing PROMIS® physical function with no recall, 24-hr recall, and 7-day recall
Reliability and validity of PROMIS measures administered by telephone interview in a longitudinal localized prostate cancer study
Efficiency of static and computer adaptive short forms compared to full-length measures of depressive symptoms
Support over Social Media among Socially Isolated Sexual and Gender Minority Youth in Rural U.S. during the Covid-19 Pandemic
Validation of the Upper Limb Functional Index on Breast Cancer Survivor
The impact of next and back buttons on time to complete and measurement reliability in computer-based surveys
The e-MSWS-12
Comparability of the Patient-Reported Outcomes Measurement Information System Pediatric short form symptom measures across culture
Psychometric properties of the PROMIS-57 questionnaire, Norwegian version
An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales
Comparing higher order models for the EORTC QLQ-C30
Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF)
The development of a new computer adaptive test to evaluate chorea in Huntington disease
Mapping the content of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using the International Classification of Functioning, Health and Disability
Neuro-QOL
Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample
The challenge of measuring intra-individual change in fatigue during cancer treatment
Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions
The Heterogeneity of Mental Health Assessment
Development of a Patient-Reported Outcomes Measurement Information System (PROMIS®) short form for measuring physical function in geriatric rehabilitation patients
The Relationship of the PROMIS® Pediatric Physical Activity Measure with Cardiorespiratory Fitness
Development of a conceptual model of patient-reported outcomes in light chain amyloidosis
PROMIS® Parent Proxy Report Scales
Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures
Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items
Psychometric properties of the spinal cord injury-quality of life (SCI-QOL) Resilience item bank in a sample with spinal cord injury and chronic pain
Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities
Development and validation of a disease-targeted quality of life instrument for chronic diverticular disease
Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health
Dutch–Flemish translation of 17 item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)
Measuring Functioning and Well-Being
The Medical Outcomes Study
Psychometric evaluation of the fatigue severity scale for use in chronic hepatitis C
Calibration of an item pool for assessing the burden of headaches
Item banking to improve, shorten and computerize self-reported fatigue
Applications of computerized adaptive testing (CAT) to the assessment of headache impact
Evaluation of Item Candidates
Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks
Practical Issues in the Application of Item Response Theory
Item Response Theory Analyses of Physical Functioning Items in the Medical Outcomes Study
Considerations for Developing Interfaces for Collecting Patient-Reported Outcomes That Allow the Inclusion of Individuals With Disabilities
Item Response Theory and Health Outcomes Measurement in the 21st Century
The World Health Organization quality of life assessment (WHOQOL)
| Unique citing works | 258 |
|---|---|
| Citations per year | 13,58 |
| Citation span | 2007 - 2026 (20) |
| Citation velocity | current |
| Highly cited | Yes |
| Citation types | Neutral: 228 |