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A longitudinal study of the grief of mothers and fathers of children with intellectual disability

Bibliographic Data

ID9618294
AuthorsElizabeth J Bruce (La Trobe University, corresponding author), Cynthia L Schultz (0000-0001-7121-0409, La Trobe University), Kosmas X Smyrnios (0000-0003-1390-5856, Monash University)
Year1996
Volume69
Issue1
Pages33-45
Publication date1996-03-01
Open AccessYes
TypeARTICLE
VenueBritish Journal of Medical Psychology (JOURNAL)
Journal identifiersISSN: 0007-1129 • E-ISSN: 2056-5194
PublisherWiley (PUBLISHER • GB)
DOI10.1111/j.2044-8341.1996.tb01848.x
PMID8829398
OpenAlexW2062243151
LanguageEN
Citations received6

As a follow‐up to a single‐point‐in‐time study which suggested support for the proposition that grieving is an ongoing feature of parenting children with intellectual disability, the present investigation reports findings based on annual interviews conducted over a three‐year period. Longitudinal outcomes on measures used to define grief largely confirmed the original findings. Of particular interest were ( a ) indications of the presence of grief over time ( b ) the finding that the 49 mothers and 49 fathers report similar intensity of continued wishing for what might have been, and ( c ) the conclusion that the responses of the mothers on the Impact of Event Scale and to current levels of distress when thinking about time of diagnoses are significantly more intense than those of the fathers. Attention is drawn to patterns emerging from gender‐related differences. Resulted are discussed within the framework of four mandates for research and practice, with particular reference to psycho‐educational support through groupwork

Developmental psychology · Distress · Emotional distress · Grief · Longitudinal study · Mental health · Proposition · Psychiatry · Psychological distress · Scale (ratio) · Clinical Psychology · Down syndrome and intellectual disability research · Family and Disability Support Research · Family Support in Illness · Medicine · Psychology

  • L’expérience des pères et mères ayant un enfant atteint d’un problème de santé

    Open Access•Diane Pelchat, Hélène Lefebvre et al.•Enfances Familles Générations•2006

  • Recurrent grief in mothering a child with an intellectual disability to adulthood

    Open Access•Judith M Brown•Child & Family Social Work•2013

  • Grief experiences of parents coping with an adult child with problem substance use

    Amanda Oreo, Salih Ozgul•Addiction Research & Theory•2007

  • Endings and Beginnings

    Open Access•Douglas J Engelman•Humanity & Society•2020

  • Participation in Home Therapy Programs for Children with Cerebral Palsy

    Open Access•Jan Piggot, Janis Paterson et al.•Qualitative Health Research•2002

  • Grief, parenting, and schizophrenia

    Open Access•Daniel J Davis, Cynthia L Schultz•Social Science & Medicine•1998

Citations per year0.21
Citation span1998 - 2020 (23)
Highly citedNo

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