Sue Ziebland
Datos Biográficos
| ID | 115363 |
|---|---|
| NOMBRE | Sue Ziebland |
| NOMBRES | Sue |
| APELLIDO | Ziebland |
| FIRMA | ZIEBLAND S |
| AFILIACIONES | University of Oxford |
| ORCID | 0000-0002-6496-4859 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 68 |
| TOTAL DE CITAS | 598 |
| TOTAL COMO AUTOR | 67 |
| TOTAL COMO EDITOR | 1 |
| PRIMER AÑO DE PUBLICACIÓN | 1993 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 13 |
Attending to Gyn‐Ecology
Previous social science research on gendered experiences of thrush and vulvovaginal health has overlooked, or inadvertently sanitised, the materiality of having a body. Therefore, this study aims to return attention to the material, sensorial, and corporeal dimensions of living with recurrent thrush and use this to broaden our understandings of gendered embodiment. We present findings from a qualitative study of interviews with 32 people includin…
Health Messaging in Menstrual Product Marketing on Social Media
Menstrual product advertisements have undergone shifts in discourse over recent decades, from messages surrounding hygiene towards those of liberation, but discretion narratives have remained. Social media marketing is prominent for menstrual product companies, and much menstrual advocacy is also on social media. This paper explores health messaging, a neglected area, in menstrual product advertising on social media. Multi‐modal critical discours…
Trust in Transition
BACKGROUND: New drugs and vaccines usually come with the promise and hope of benefit. We explore stories about the variable and sometimes disappointing effects of Covid-19 vaccines in the context of post-Covid-19 syndrome ('long Covid'), aiming to understand how people with long Covid made sense of unexpected vaccine responses and how these experiences impacted their trust in vaccination. METHODS: We carried out 33 interviews with people who desc…
Rethinking ‘Recovery’
INTRODUCTION: Interpretations of 'recovery' from illness are complex and influenced by many factors, not least patient expectations and experiences. This paper examines meanings of 'recovery', and how it is strived towards, drawing on the example of COVID-19 infection. METHODS: Drawing on qualitative interviews (n = 93) conducted in the UK between February 2021 and July 2022, we compare adults' accounts of being admitted to an Intensive Care Unit…
After neonatal care, what next? A qualitative study of mothers’ post-discharge experiences after premature birth in Kenya
To support transitions home, strengthening the timing and adequacy of information provided to mothers at discharge from the neonatal unit in low-income settings in SSA and Asia - such as Kenya-is essential. Introducing strategies to build and assess mothers' competencies with skills such as breastfeeding and identifying signs of deterioration before discharge could support their smooth transition home. Targeted engagement interventions at the com…
Chronicity rhetoric in health and welfare systems inhibits patient recovery
Fibromyalgia is a leading cause of disability in the UK and worldwide, but is difficult to diagnose and treat due to unclear pathogenesis and diverse and fluctuating symptoms. Although various treatment modalities are recommended, no treatments have been proven to effect sustainable improvement or recovery, and patients are typically dissatisfied with their care. Increasingly, biopsychosocial services are being developed, that aim to take a multi…
The Basis of Patient Resistance to Opportunistic Discussions About Weight in Primary Care
Clinicians expect that talking to patients with obesity about potential/future weight loss will be a difficult conversation, especially if it is not the reason that a patient is seeking medical help. Despite this expectation, many governments ask clinicians to take every opportunity to talk to patients about weight to help manage increasing levels of obesity. Although this is recommended, little is known about what happens in consultations when c…
Connecting worlds
This qualitative study explores social work educators' perceptions on the role of lived experience in teaching within undergraduate and postgraduate social work education programmes across universities in Britain. Thirty-five semi-structured online interviews were conducted with social work educators from 27 universities across Scotland, Wales and England. Findings were that educators indicated specific ways that people with lived experience (PwL…
‘They are one of us’
Health workers negative attitudes and stigma are often reported as one of the greatest barriers for disabled people to access healthcare. Interventions have been developed in response, and preliminary results often show promising effect on changing health workers' negative attitudes. However, this does not include longer-term, qualitative follow up to explore how health workers change their behaviour post-intervention. This qualitative study exam…
Cross country analysis of qualitative interviews
ZORA (Zurich Open Repository and Archive) provides open and worldwide access to the research and scholarly output of the University of Zurich, Switzerland. A focus is on qualified scientific publications. ZORA is operated by the University Library together with the Central IT of the University of Zurich
Episodic disability and adjustments for work
Long Covid is an activity-limiting condition that causes significant long-term impairment that can last up to one year or longer and impacts labour participation. ‘Episodic disability’ is an apt conceptual framework to comprehend the fluctuating impairments of those with Long Covid and the barriers they encounter when returning to employment. Drawing on 65 narrative interviews, conducted between 2021-2022, from three UK studies involving adults w…
The double invisibility of Long Covid in children
The Covid-19 pandemic has been dominated by discussions of mild and short-lasting cases or acutely serious or lethal forms of the disease; less attention has been paid to long-term Covid-19 symptoms ('Long Covid'), particularly in children. This analysis of the experiences of children and adolescents with Long Covid, and those of their parents/caregivers, argues that children with Long Covid encounter a 'double invisibility' due to the condition'…
Young adults' experiences of biographical retrogression whilst living with long Covid
During the early years (2020-2021) of the COVID-19 pandemic, relatively little attention focused on experiences of people with long-lasting symptoms, particularly young adults who were commonly understood to be invulnerable to serious effects of the virus. Drawing on narrative interviews with 15 adults in their twenties and living in the UK when they became ill with long COVID, we explore contextual factors which made their long COVID illness exp…
Talking delicately
Obesity is a major worldwide public health problem. Clinicians are asked to communicate public health messages, including encouraging and supporting weight loss, during consultations with patients living with obesity. However, research shows that talking about weight with patients rarely happens and both parties find it difficult to initiate. Current guidelines on how to have such conversations do not include evidence-based examples of what to sa…
Cultivating Doctors’ Gut Feeling
Digital health and technological promise
Power, paradox and pessimism
Caring for care
Combining patient talk about internet use during primary care consultations with retrospective accounts. A qualitative analysis of interactional and interview data
Face-to-Face Compared With Online Collected Accounts of Health and Illness Experiences
Advocates of online alternatives to face-to-face interviewing suggest online approaches save money and time, whereas others have raised concerns about the quality and content of the resulting data. These issues affect researchers designing and costing their studies and application reviewers and research funders. We conducted a scoping review of English language articles describing the range of online alternative approaches. Furthermore, we system…
The convivial and the pastoral in patient-doctor relationships
Experiences of cancer diagnosis are changing in light of both the increasingly technological-clinical diagnostic processes and the socio-political context in which interpersonal relations take place. This has raised questions about how we might understand patient-doctor relationship marked by asymmetries of knowledge and social capital, but that emphasise patients' empowered choices and individualised care. As part of an interview study of 155 pa…
A systematic review of reasons for and against asking patients about their socioeconomic contexts
This first summary of literature on the subject found many published reasons for why patients' social and economic circumstances should be enquired about in healthcare settings. These reasons include potential benefits at the levels of individuals, health service provision, and population, as well as the potential to improve healthcare equity. Cautions and caveats include concerns about the clinician's role in responding to patients' social probl…
Caring as sharing. Negotiating the moral boundaries of receiving care
Informal caregiving is increasingly considered a health care delivery-resource within the North European welfare states. While ‘informal’ often refers to non-professional, ‘caregiving’ connotes both affective concern (caring about) and practical action (caring for). This duality of meanings, however, often refers to the one direction in which care is given. Care, we suggest, is relational and also requires that people receiving care are able to o…
Depression at work, authenticity in question
Australia and the United Kingdom have introduced policies to protect employees who experience mental illness, including depression. However, a better understanding of the experiential issues workers face (e.g. sense of moral failure) is needed for the provision of appropriate and beneficial support. We analysed 73 interviews from the United Kingdom and Australia where narratives of depression and work intersected. Participants encountered difficu…
General Practitioner's use of online resources during medical visits
In an increasingly connected world, information about health can be exchanged at any time, in any location or direction, and is no longer dominated by traditional authoritative sources. We consider the ways information and advice given in consultations by doctors transcends the boundary between the clinic and the home. We explore how information that is widely accessible outside the consultation is transformed by General Practitioners (GPs) into …
Men's accounts of depression
The importance of being expert
Prostate cancer
While some argue that gender differences, which refer to the social classification into 'masculine' and 'feminine', have their source in 'culture', others argue there is no need to have an absolute dichotomy between culture and nature, or between constructionist and anti-constructionist epistemologies. Although there has been much theorising about the body, until recently little attention has been paid to empirical evidence. This paper looks at t…
Biographical disruption, abruption and repair in the context of Motor Neurone Disease
Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chro…
Gender, cancer experience and internet use
I knew before I was told
Personal identity and the role of 'carer' among relatives and friends of people with multiple sclerosis
Informal caregiving continues to be a crucial part of health and social care provision in the developed world, but the processes by which the identity of informal caregiver is conferred, or assumed, remain unclear. In this article we draw on data from a qualitative research study which examined the experiences of family members and friends of people with multiple sclerosis (pwMS) to explore how they interpret the label 'carer'. We conducted narra…
Power, paradox and pessimism
The Effect of Joint Interviewing on the Performance of Gender
The authors report a series of controlled comparisons of fifty-eight one-to-one qualitative interviews and thirty-seven mixed-sex joint interviews on the same health-related topics. Their analysis identifies comparative keyword frequencies and is supported by qualitative investigations of keywords in context, drawing on existing relevant knowledge of common gender differences in language choice. Gender differences are reduced and women's perspect…
Taboo and the different death? Perceptions of those bereaved by suicide or other traumatic death
Views differ on how far the subject of death has ever been taboo in Western Society. Walter (1991) criticised the way the 'taboo thesis' has been presented, arguing that it has often been 'grossly overdrawn and lacking in subtlety'. Research suggests that suicide and other traumatic death may be particularly difficult for people to talk about or even acknowledge. We interviewed 80 people bereaved due to suicide, or other traumatic death and used …
Getting through' not 'going under
On interviewing people with pets
There is mounting evidence that pets are associated with physiological, psychological and social benefits for humans. Much of this research has come from western countries, where there have been consistent calls for greater engagement with pet ownership and health. Drawing on a secondary analysis of 61 in-depth interviews with people, or carers of people, with long-term conditions, we explore how pets feature in people's narrative accounts of the…
Desire for the body normal
Conclusions: The association between geo- graphical area and cervical cancer persists after controlling for 10 other factors. The results are consistent with a multiple infectious aetiology of cervical cancer and suggest that there may be additional risk factors associated with geo- graphical characteristics
The Role of Humor for Men with Testicular Cancer
In this article, the authors examine how 45 men talked about "pure" and "applied" humor in qualitative interviews about their experience of testicular cancer. Most described using applied humor in work and social settings to challenge assumptions about the disease, and in health settings to manage feelings, hide embarrassment, reduce tension, share a sense of solidarity with others, or encourage others to examine themselves. Men also described th…
Understanding depression through a 'coming out' framework
Recently, Scambler and others have broadened the research agenda on stigma to include the wider meanings of stigma within society, and especially the role of identity politicse.g. gay liberation. Recognising that the categories 'homosexual' and 'depression' were socially constructed and stigmatised from the 19thand 20thcenturies respectively, we draw on themes in conceptual models of coming out as gay or lesbian to sensitise our analysis to perso…
What affects the uptake of screening for bowel cancer using a faecal occult blood test (FOBt)
Emergency contraception
General Practitioner's use of online resources during medical visits
In an increasingly connected world, information about health can be exchanged at any time, in any location or direction, and is no longer dominated by traditional authoritative sources. We consider the ways information and advice given in consultations by doctors transcends the boundary between the clinic and the home. We explore how information that is widely accessible outside the consultation is transformed by General Practitioners (GPs) into …
Disclosing a Cancer Diagnosis to Friends and Family
Little is known about how young adults disclose their cancer diagnosis to family and friends, and whether there are similarities or differences between men and women. This article compares young adults' experiences of disclosing a cancer diagnosis, drawing on narrative interviews with 37 respondents aged 18 to 34 years. Most respondents were open about their diagnosis, and there were striking similarities in the difficulties that men and women de…
How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality
Combining patient talk about internet use during primary care consultations with retrospective accounts. A qualitative analysis of interactional and interview data
Expressions of Loss of Adulthood in the Narratives of People with Colorectal Cancer
The diagnosis and treatment of colorectal cancer entail detailed discussions of bodily functions, invasive procedures, and a reorientation of life around bowel habit. Furthermore, people with stomas undergo a second experience of toilet training in adulthood. For these reasons, colorectal cancer is sometimes considered an embarrassing disease. Narrative interviews with colorectal cancer patients indicate the inadequacy of the concept of embarrass…
Caring for care
The convivial and the pastoral in patient-doctor relationships
Experiences of cancer diagnosis are changing in light of both the increasingly technological-clinical diagnostic processes and the socio-political context in which interpersonal relations take place. This has raised questions about how we might understand patient-doctor relationship marked by asymmetries of knowledge and social capital, but that emphasise patients' empowered choices and individualised care. As part of an interview study of 155 pa…
The short form 36 health status questionnaire
OBJECTIVES--To determine the potential of the short form 36 health status questionnaire (SF-36) for indicating changes in the health status of a general population by examining the recently published normative data. DESIGN--The sensitivity of the SF-36 was tested through hypothesising two dramatic changes in health status whereby (i) the scores of people in social class V are improved to the level of social class I, and (ii) the scores of men and…
Tacit models of disability underlying health status instruments
The short form 36 health status questionnaire
OBJECTIVES--To determine the potential of the short form 36 health status questionnaire (SF-36) for indicating changes in the health status of a general population by examining the recently published normative data. DESIGN--The sensitivity of the SF-36 was tested through hypothesising two dramatic changes in health status whereby (i) the scores of people in social class V are improved to the level of social class I, and (ii) the scores of men and…
Desire for the body normal
Conclusions: The association between geo- graphical area and cervical cancer persists after controlling for 10 other factors. The results are consistent with a multiple infectious aetiology of cervical cancer and suggest that there may be additional risk factors associated with geo- graphical characteristics
Lack of willpower or lack of wherewithal? "Internal" and "external" barriers to changing diet and exercise in a three year follow-up of participants in a health check
Emergency contraception
The use of patients’ stories by self‐help groups
OBJECTIVE: First-hand accounts of illness experience are believed to provide important insights for other patients and their carers. We report the results of a survey that explored how patients' stories are being collected and used by self-help and voluntary groups. METHODS: The annual College of Health survey contacts 2 458 addresses, which includes many self-help groups and voluntary associations. A brief questionnaire for the self-help groups …
‘People sometimes react funny if they're not told enough’
Objectives To explore women's views about the risks and benefits of diagnostic laparoscopy in the investigation of chronic pelvic pain, including how much information it is thought appropriate to give about three specific risks: death, major complications and the chance that the procedure would have an inconclusive result. Design A qualitative analysis of semi‐structured, audio‐taped interviews with 20 women about their experiences of undergoing …
Prostate cancer
While some argue that gender differences, which refer to the social classification into 'masculine' and 'feminine', have their source in 'culture', others argue there is no need to have an absolute dichotomy between culture and nature, or between constructionist and anti-constructionist epistemologies. Although there has been much theorising about the body, until recently little attention has been paid to empirical evidence. This paper looks at t…
Stigma, shame, and blame experienced by patients with lung cancer
OBJECTIVES: To draw on narrative interviews with patients with lung cancer and to explore their perceptions and experience of stigma. DESIGN: Qualitative study. SETTING: United Kingdom. PARTICIPANTS: 45 patients with lung cancer recruited through several sources. RESULTS: Participants experienced stigma commonly felt by patients with other types of cancer, but, whether they smoked or not, they felt particularly stigmatised because the disease is …
Expressions of Loss of Adulthood in the Narratives of People with Colorectal Cancer
The diagnosis and treatment of colorectal cancer entail detailed discussions of bodily functions, invasive procedures, and a reorientation of life around bowel habit. Furthermore, people with stomas undergo a second experience of toilet training in adulthood. For these reasons, colorectal cancer is sometimes considered an embarrassing disease. Narrative interviews with colorectal cancer patients indicate the inadequacy of the concept of embarrass…
The Role of Humor for Men with Testicular Cancer
In this article, the authors examine how 45 men talked about "pure" and "applied" humor in qualitative interviews about their experience of testicular cancer. Most described using applied humor in work and social settings to challenge assumptions about the disease, and in health settings to manage feelings, hide embarrassment, reduce tension, share a sense of solidarity with others, or encourage others to examine themselves. Men also described th…
The importance of being expert
What happened when Scottish women were given advance supplies of emergency contraception? A survey and qualitative study of women's views and experiences
Making sense of qualitative data analysis
Objectives This paper outlines an approach to analysing qualitative textual data from interviews and discusses how to ensure analytic procedures are appropriately rigorous. Overview Qualitative data analysis should begin at an early stage in data collection and be highly systematic. It is important to identify issues that emerge during the data collection and analysis as well as those that the researcher may have anticipated (from reading or expe…
“The Old Me Could Never Have Done That”
Depression is usually a “self-limiting” condition, and recovery is likely, even if people do have subsequent episodes. However, despite considerable research into depression, little is known about how people actually go about understanding and organizing their recovery from depression. In this article, the authors draw on one-to-one interviews with people who have experienced mainly severe depression to explore the approaches and meanings attribu…
Gender, cancer experience and internet use
Men's accounts of depression
Positive prevention
What affects the uptake of screening for bowel cancer using a faecal occult blood test (FOBt)
Why Men in the United Kingdom Still Want the Prostate Specific Antigen Test
The prostate specific antigen (PSA) test is widely used to screen men for prostate cancer, but its value in diagnosing prostate cancer in asymptomatic men is controversial. In 2001, the U.K. Department of Health introduced the Prostate Cancer Risk Management Programme (PCRMP), through which men are given relatively detailed information before they make a final decision about a test. Little is known about men's experiences of the test since this p…
The Effect of Joint Interviewing on the Performance of Gender
The authors report a series of controlled comparisons of fifty-eight one-to-one qualitative interviews and thirty-seven mixed-sex joint interviews on the same health-related topics. Their analysis identifies comparative keyword frequencies and is supported by qualitative investigations of keywords in context, drawing on existing relevant knowledge of common gender differences in language choice. Gender differences are reduced and women's perspect…
Help-seeking behaviour in smokers and ex-smokers with symptoms of lung cancer. The application of an integrated model
Design: The methodology comprised a quasi-experimental historical cohort design as blinding was not feasible with a nonintervention group (500) recruited first. The intervention group was recruited following a washout period. Interviewer administered questionnaires were completed at each time point and reported quitting validated by urinary cotinine measurement once in pregnancy (visit 2) and once after (visit 4). Results: The overall proportion …
Disclosing a Cancer Diagnosis to Friends and Family
Little is known about how young adults disclose their cancer diagnosis to family and friends, and whether there are similarities or differences between men and women. This article compares young adults' experiences of disclosing a cancer diagnosis, drawing on narrative interviews with 37 respondents aged 18 to 34 years. Most respondents were open about their diagnosis, and there were striking similarities in the difficulties that men and women de…
Getting through' not 'going under
Biographical disruption, abruption and repair in the context of Motor Neurone Disease
Concepts of biographical disruption and repair have been widely applied to chronic illness, but not terminal illness. This paper examines the relevance of these concepts to motor neurone disease (MND), a progressive neurological condition characterised by loss of mobility, speech and ability to breathe or swallow. Survival is usually between two and five years, and some die within a few months. The condition thus lies at the boundary between chro…
Medicine (51 obras) · Psychology (51 obras) · Sociology (34 obras) · Qualitative research (29 obras) · Political science (26 obras) · Social Psychology (23 obras) · Family medicine (17 obras) · Narrative (16 obras) · Nursing (16 obras) · Computer Science (14 obras)