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Ilkka Pietilä

Biographic Data

ID290997
NAMEIlkka Pietilä
GIVEN NAMESIlkka
FAMILY NAMEPietilä
SIGNATUREPIETILÄ I
AFFILIATIONSTampere University
ORCID0000-0002-3830-3619
VERIFIEDYes
TOTAL WORKS29
TOTAL CITATIONS135
AUTHOR COUNT29
EDITOR COUNT0
FIRST PUBLICATION YEAR2008
LATEST PUBLICATION YEAR2026
H-INDEX8
  • Belonging and Discrimination in Times of Social Disruption

    Open Access•Татьяна Вячеславовна Глушкова, Laura Kemppainen et al.•ARTICLE•Journal of International…•2026

    At its core, migrants’ integration involves developing a sense of belonging to their society of residence, which may be particularly challenging for older migrants. Even if belonging has been established, it is an ongoing and dynamic process that responds to sociopolitical events. This study examines the sense of belonging among long-settled older Russian-speaking migrants in Finland. It examined the period between 2019 and 2022, which included t…

  • Frames of Peer Support

    Open Access•Laura Lahti, Eeva Harju et al.•ARTICLE•Health & Social Care in the…•2025•References: 2

    Prostate cancer significantly impacts the lives of those diagnosed, causing emotional and psychological distress, including fear, uncertainty, and anxiety. While formal peer support has been suggested as a beneficial way for men to share their experiences, little is known about the perspectives of those who choose not to participate in such activities. This study aims to explore how those men with prostate cancer who have not engaged in formal pe…

  • Prostate cancer-related sexual dysfunction – the significance of social relations in men’s reconstructions of masculinity

    Open Access•Anna-Maija Talvitie, Anna‐Maija Talvitie et al.•ARTICLE•Culture Health & Sexuality•2024

    Narrating illness experiences in a culturally acceptable manner is essential for retaining quality of life after the disruptive event of being diagnosed for prostate cancer. Psychological pressures caused by treatment side-effects such as erectile dysfunction require reinterpretation of the meanings and impacts of these side-effects on masculinity. This helps maintain coherence in men's lives. We studied how men employ culturally available discur…

  • Migration and Diverse Belongings in a Neighbourhood Context

    Open Access•Татьяна Вячеславовна Глушкова, Laura Kemppainen et al.•ARTICLE•Population Space and Place•2024•Cited by: 1•References: 29

    Belonging is a fundamental human experience that plays a critical role in shaping individuals' connections to their communities. Establishing a sense of belonging to a destination society can be particularly challenging for older migrants. Neighbourhood factors and the broader regional context may influence one's sense of belonging to various communities. However, research exploring how neighbourhood‐level factors relate to different types of bel…

  • A potential conflict between grandparenthood and the third age lifestyle in the Finnish countryside

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•Journal of Aging Studies•2024•References: 4

    Some recent studies on grandparenthood have pointed to a potential conflict between grandparenthood and the ideals of the third age. Retired people are increasingly expected to live up to the ideals of active aging, and many grandparents may wish to demonstrate their agency by getting engaged in various leisure activities, which may reduce their possibilities and motivation to spend time with their grandchildren. We looked at this potential confl…

  • The couple norm in single men’s digital stories

    Anu Kinnunen, Ilkka Pietilä•ARTICLE•Families Relationships and…•2023•References: 15

    The number of people living alone is increasing in Finland (OSF, 2020a; 2020b), in Europe (Eurostat, 2020a) and globally. Individualisation is growing, and many public institutions are adjusting to the rising number of single clientele. At the same time, the couple norm persists, and monogamous partnering is still often seen as the most appropriate way to organise intimate adult life. In this study, we analysed the written stories of 19 single me…

  • No place to go? Older people reconsidering the meaning of social spaces in the context of the Covid-19 pandemic

    Open Access•Katariina Tuominen, Jari Pirhonen et al.•ARTICLE•Journal of Aging Studies•2023•Cited by: 1•References: 7

    Under COVID-19 restrictions, older people were advised to avoid social contact and to self-isolate at home. The situation forced them to reconsider their everyday social spaces such as home and leisure time places. This study approached the meaning of social spaces for older people by examining how older people positioned themselves in relation to social spaces during the pandemic. The data were drawn from the Ageing and social well-being (SoWell…

  • Studying constructions of aging manhood

    Open Access•Toni Calasanti, Ilkka Pietilä et al.•ARTICLE•Journal of Aging Studies•2022

  • The expanded prostate cancer index composite short form (Epic-26) for measuring health-related quality of life

    Open Access•Anna‐Maija Talvitie, Hanna Ojala et al.•ARTICLE•Quality of Life Research•2021

    Patients are mainly willing to report their symptoms, but a lack of suitable answer options causes missing data and differing answering strategies in the sexual and urinary domains of EPIC-26, weakening the quality of the response data received

  • Inclusivity, Horizontal Homosociality and Controlled Participation of “The Others”

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•NORA - Nordic Journal of Feminist…•2021•Cited by: 2•References: 11

    Theories of inclusive masculinity and horizontal homosociality describe how previously marginalized forms of masculinity are becoming socially acceptable. Studies within these theoretical frameworks have largely focused on privileged groups of men and men’s changing attitudes towards homosexuality. This raises questions about the extent to which the theories apply to marginalized groups of men and other inequalities between men. In this article, …

  • The Hegemony in Masculinity

    Open Access•Neal King, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2021•Cited by: 8•References: 15

    Most citations to 'hegemonic masculinity' focus on gender ideals and men's attempts to justify domination. Few scholars have tested the theory that masculinity can be hegemonic in effect by gaining the overt consent of others to their domination. We specify this largely untested theory and use data from a pilot study of middle-age men for our demonstration of how to operationalize and recognize hegemony. We argue that scholars will find that effe…

  • Representing the ‘Voice’ of Patients

    Open Access•Marjaana Jones, Piia Jallinoja et al.•ARTICLE•Voluntas Revista Internacional de…•2020•Cited by: 5•References: 12

    The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in d…

  • Expertise, advocacy and activism

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health An Interdisciplinary…•2020•References: 34

    Peer support workers are now working with patients in a variety of settings, coming into close contact and even work alongside health professionals. Despite the potentially influential position peer support workers hold in relation to those engaged in support activities, their role, duties and their relationship to peers and health professionals lack clarity and is often defined by other actors. This study explores how peer support workers interp…

  • Alignments and differentiations

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health An Interdisciplinary…•2020•Cited by: 2•References: 27

    Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health profess…

  • Is Retirement a Crisis for Men? Class and Adjustment to Retirement

    Open Access•Ilkka Pietilä, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2020•Cited by: 5•References: 39

    Because paid work is taken to be central to manhood, scholarly and popular discourse have characterized retirement as presenting a 'crisis of masculinity.' However, such a crisis is not borne out by research, perhaps because scholars have not considered how class might shape masculinities and thus expectations and experiences of retirement. Using data obtained from interviews with Finnish metal workers and engineers who are either approaching ret…

  • Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 32

    Patient and public involvement activities bring 'lay participants' and their accounts of lived experiences to the centre of health service development and delivery. For individuals, these accounts can provide an important resource, offering a sense of control and an opportunity to re-frame past events. Furthermore, as involvement activities and the use of personal accounts have become more prominent, it is timely to examine the involvement proces…

  • Active and non-active agents

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Ageing and Society•2018•Cited by: 5•References: 30

    Culturally, institutional care has been seen to strip older people of their status as full adult members of society and turn them into ‘have-nots’ in terms of agency. The substantial emphasis in gerontology of measuring the activity and functional ability of the elderly has unintentionally fostered these stereotypes, as have traditional definitions of agency that emphasise individuals’ choices and capacities. The aim of this paper is to discover …

  • Ruptures of affiliation

    Open Access•Jari Pirhonen, Elisa Tiilikainen et al.•ARTICLE•Ageing and Society•2018•Cited by: 3•References: 48

    Transfer from a private home to an assisted living facility has been pictured as a major change in an older person's life. Older people themselves tend to perceive the change as something eventual that breaks the bonds and familiarities of previous life. The aim of this article is to shed light on residents’ chances to reach affiliation (as Nussbaum defines it) in their new living surroundings, and thus adjust to that social environment. Based on…

  • Seeking certainty through narrative closure

    Open Access•Ilkka Pietilä, Raisa Jurva et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 10•References: 20

    Radical treatments of prostate cancer often lead to a pervasive liminal state that is characterised by multiple uncertainties that relate both to a possible recurrence of cancer and recovery from side effects, such as erectile and urinary dysfunctions. Liminality can make it difficult for cancer patients to narrate their experiences, as their stories lack a definite ending. After interviews with 22 Finnish men who had undergone radical prostatect…

  • The citizen is stepping into a new role”—Policy interpretations of patient and public involvement in Finland

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health & Social Care in the…•2017•Cited by: 2•References: 9

    Involving patients and the public in healthcare decision-making is on the policy agenda in several countries. The aim of our study was to describe and analyse the development of patient and public involvement from a policy perspective. We argue that the language of health policies can influence both the aims and the development of involvement methods. In this study health policy documents, which have guided the development of patient and public i…

  • Immune to ageism? Men's perceptions of age-based discrimination in everyday contexts

    Open Access•Hanna Ojala, Ilkka Pietilä et al.•ARTICLE•Journal of Aging Studies•2016•Cited by: 7•References: 9

  • Perceived resident–facility fit and sense of control in assisted living

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2016•Cited by: 4•References: 7

  • Natural(ly) men

    Open Access•Hanna Ojala, Toni Calasanti et al.•ARTICLE•Ageing and Society•2016•Cited by: 3•References: 27

    The neo-liberal ideologies that point to individual responsibility for risks increasingly influence countries of the global North. The anti-ageing industry reflects this dictate and encourages middle-aged people to use their products and services to manage their ageing. However, given the negative connotations attached to the term ‘anti-ageing’, which is usually seen to focus on aesthetics and thus be a woman's concern, men may be likely to disav…

  • Old but not that old’

    Open Access•Jari Pirhonen, Hanna Ojala et al.•ARTICLE•Ageing and Society•2016•Cited by: 9•References: 52

    Autonomy is a pervasive concept in Western lifestyles today. However, people in the fourth age are assumed not to be autonomous but dependent on other people. The data of this study consisted of interviews with Finnish community-dwelling 90–91-year-old people. The study aim was to examine how these people see their own autonomy in their everyday lives. The analysis was based on membership categorisation analysis. Our respondents considered their …

  • Patient, resident, or person

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2015•Cited by: 11•References: 12

Next
  • Coping with stress and by stress

    Open Access•Ilkka Pietilä, Marja Rytkönen•ARTICLE•Social Science & Medicine•2008•Cited by: 20•References: 29

  • Acting age in the context of health

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•Journal of Aging Studies•2011•Cited by: 14•References: 14

  • Patient, resident, or person

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2015•Cited by: 11•References: 12

  • Seeking certainty through narrative closure

    Open Access•Ilkka Pietilä, Raisa Jurva et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 10•References: 20

    Radical treatments of prostate cancer often lead to a pervasive liminal state that is characterised by multiple uncertainties that relate both to a possible recurrence of cancer and recovery from side effects, such as erectile and urinary dysfunctions. Liminality can make it difficult for cancer patients to narrate their experiences, as their stories lack a definite ending. After interviews with 22 Finnish men who had undergone radical prostatect…

  • Health is not a man's domain

    Open Access•Ilkka Pietilä, Marja Rytkönen•ARTICLE•Sociology of Health & Illness•2008•Cited by: 10•References: 28

    The substantial gender difference in life-expectancy is among the key characteristics of current health crisis in Russia. Despite a relatively large body of epidemiological literature on gender difference, there is little empirical research on the gendered meanings of health among Russian lay people. This study aims to enhance understanding of gendered meanings of health by analysing lay accounts of the gender gap in life-expectancy on the basis …

  • Old but not that old’

    Open Access•Jari Pirhonen, Hanna Ojala et al.•ARTICLE•Ageing and Society•2016•Cited by: 9•References: 52

    Autonomy is a pervasive concept in Western lifestyles today. However, people in the fourth age are assumed not to be autonomous but dependent on other people. The data of this study consisted of interviews with Finnish community-dwelling 90–91-year-old people. The study aim was to examine how these people see their own autonomy in their everyday lives. The analysis was based on membership categorisation analysis. Our respondents considered their …

  • Aging male bodies, health and the reproduction of age relations

    Open Access•Ilkka Pietilä, Hanna Ojala et al.•ARTICLE•Journal of Aging Studies•2013•Cited by: 9•References: 9

  • The Hegemony in Masculinity

    Open Access•Neal King, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2021•Cited by: 8•References: 15

    Most citations to 'hegemonic masculinity' focus on gender ideals and men's attempts to justify domination. Few scholars have tested the theory that masculinity can be hegemonic in effect by gaining the overt consent of others to their domination. We specify this largely untested theory and use data from a pilot study of middle-age men for our demonstration of how to operationalize and recognize hegemony. We argue that scholars will find that effe…

  • Immune to ageism? Men's perceptions of age-based discrimination in everyday contexts

    Open Access•Hanna Ojala, Ilkka Pietilä et al.•ARTICLE•Journal of Aging Studies•2016•Cited by: 7•References: 9

  • Representing the ‘Voice’ of Patients

    Open Access•Marjaana Jones, Piia Jallinoja et al.•ARTICLE•Voluntas Revista Internacional de…•2020•Cited by: 5•References: 12

    The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in d…

  • Is Retirement a Crisis for Men? Class and Adjustment to Retirement

    Open Access•Ilkka Pietilä, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2020•Cited by: 5•References: 39

    Because paid work is taken to be central to manhood, scholarly and popular discourse have characterized retirement as presenting a 'crisis of masculinity.' However, such a crisis is not borne out by research, perhaps because scholars have not considered how class might shape masculinities and thus expectations and experiences of retirement. Using data obtained from interviews with Finnish metal workers and engineers who are either approaching ret…

  • Active and non-active agents

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Ageing and Society•2018•Cited by: 5•References: 30

    Culturally, institutional care has been seen to strip older people of their status as full adult members of society and turn them into ‘have-nots’ in terms of agency. The substantial emphasis in gerontology of measuring the activity and functional ability of the elderly has unintentionally fostered these stereotypes, as have traditional definitions of agency that emphasise individuals’ choices and capacities. The aim of this paper is to discover …

  • Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 32

    Patient and public involvement activities bring 'lay participants' and their accounts of lived experiences to the centre of health service development and delivery. For individuals, these accounts can provide an important resource, offering a sense of control and an opportunity to re-frame past events. Furthermore, as involvement activities and the use of personal accounts have become more prominent, it is timely to examine the involvement proces…

  • Perceived resident–facility fit and sense of control in assisted living

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2016•Cited by: 4•References: 7

  • Ruptures of affiliation

    Open Access•Jari Pirhonen, Elisa Tiilikainen et al.•ARTICLE•Ageing and Society•2018•Cited by: 3•References: 48

    Transfer from a private home to an assisted living facility has been pictured as a major change in an older person's life. Older people themselves tend to perceive the change as something eventual that breaks the bonds and familiarities of previous life. The aim of this article is to shed light on residents’ chances to reach affiliation (as Nussbaum defines it) in their new living surroundings, and thus adjust to that social environment. Based on…

  • Natural(ly) men

    Open Access•Hanna Ojala, Toni Calasanti et al.•ARTICLE•Ageing and Society•2016•Cited by: 3•References: 27

    The neo-liberal ideologies that point to individual responsibility for risks increasingly influence countries of the global North. The anti-ageing industry reflects this dictate and encourages middle-aged people to use their products and services to manage their ageing. However, given the negative connotations attached to the term ‘anti-ageing’, which is usually seen to focus on aesthetics and thus be a woman's concern, men may be likely to disav…

  • Inclusivity, Horizontal Homosociality and Controlled Participation of “The Others”

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•NORA - Nordic Journal of Feminist…•2021•Cited by: 2•References: 11

    Theories of inclusive masculinity and horizontal homosociality describe how previously marginalized forms of masculinity are becoming socially acceptable. Studies within these theoretical frameworks have largely focused on privileged groups of men and men’s changing attitudes towards homosexuality. This raises questions about the extent to which the theories apply to marginalized groups of men and other inequalities between men. In this article, …

  • Alignments and differentiations

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health An Interdisciplinary…•2020•Cited by: 2•References: 27

    Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health profess…

  • The citizen is stepping into a new role”—Policy interpretations of patient and public involvement in Finland

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health & Social Care in the…•2017•Cited by: 2•References: 9

    Involving patients and the public in healthcare decision-making is on the policy agenda in several countries. The aim of our study was to describe and analyse the development of patient and public involvement from a policy perspective. We argue that the language of health policies can influence both the aims and the development of involvement methods. In this study health policy documents, which have guided the development of patient and public i…

  • Migration and Diverse Belongings in a Neighbourhood Context

    Open Access•Татьяна Вячеславовна Глушкова, Laura Kemppainen et al.•ARTICLE•Population Space and Place•2024•Cited by: 1•References: 29

    Belonging is a fundamental human experience that plays a critical role in shaping individuals' connections to their communities. Establishing a sense of belonging to a destination society can be particularly challenging for older migrants. Neighbourhood factors and the broader regional context may influence one's sense of belonging to various communities. However, research exploring how neighbourhood‐level factors relate to different types of bel…

  • No place to go? Older people reconsidering the meaning of social spaces in the context of the Covid-19 pandemic

    Open Access•Katariina Tuominen, Jari Pirhonen et al.•ARTICLE•Journal of Aging Studies•2023•Cited by: 1•References: 7

    Under COVID-19 restrictions, older people were advised to avoid social contact and to self-isolate at home. The situation forced them to reconsider their everyday social spaces such as home and leisure time places. This study approached the meaning of social spaces for older people by examining how older people positioned themselves in relation to social spaces during the pandemic. The data were drawn from the Ageing and social well-being (SoWell…

  • Coping with stress and by stress

    Open Access•Ilkka Pietilä, Marja Rytkönen•ARTICLE•Social Science & Medicine•2008•Cited by: 20•References: 29

  • Health is not a man's domain

    Open Access•Ilkka Pietilä, Marja Rytkönen•ARTICLE•Sociology of Health & Illness•2008•Cited by: 10•References: 28

    The substantial gender difference in life-expectancy is among the key characteristics of current health crisis in Russia. Despite a relatively large body of epidemiological literature on gender difference, there is little empirical research on the gendered meanings of health among Russian lay people. This study aims to enhance understanding of gendered meanings of health by analysing lay accounts of the gender gap in life-expectancy on the basis …

  • Acting age in the context of health

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•Journal of Aging Studies•2011•Cited by: 14•References: 14

  • Aging male bodies, health and the reproduction of age relations

    Open Access•Ilkka Pietilä, Hanna Ojala et al.•ARTICLE•Journal of Aging Studies•2013•Cited by: 9•References: 9

  • Patient, resident, or person

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2015•Cited by: 11•References: 12

  • Immune to ageism? Men's perceptions of age-based discrimination in everyday contexts

    Open Access•Hanna Ojala, Ilkka Pietilä et al.•ARTICLE•Journal of Aging Studies•2016•Cited by: 7•References: 9

  • Perceived resident–facility fit and sense of control in assisted living

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Journal of Aging Studies•2016•Cited by: 4•References: 7

  • Natural(ly) men

    Open Access•Hanna Ojala, Toni Calasanti et al.•ARTICLE•Ageing and Society•2016•Cited by: 3•References: 27

    The neo-liberal ideologies that point to individual responsibility for risks increasingly influence countries of the global North. The anti-ageing industry reflects this dictate and encourages middle-aged people to use their products and services to manage their ageing. However, given the negative connotations attached to the term ‘anti-ageing’, which is usually seen to focus on aesthetics and thus be a woman's concern, men may be likely to disav…

  • Old but not that old’

    Open Access•Jari Pirhonen, Hanna Ojala et al.•ARTICLE•Ageing and Society•2016•Cited by: 9•References: 52

    Autonomy is a pervasive concept in Western lifestyles today. However, people in the fourth age are assumed not to be autonomous but dependent on other people. The data of this study consisted of interviews with Finnish community-dwelling 90–91-year-old people. The study aim was to examine how these people see their own autonomy in their everyday lives. The analysis was based on membership categorisation analysis. Our respondents considered their …

  • The citizen is stepping into a new role”—Policy interpretations of patient and public involvement in Finland

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health & Social Care in the…•2017•Cited by: 2•References: 9

    Involving patients and the public in healthcare decision-making is on the policy agenda in several countries. The aim of our study was to describe and analyse the development of patient and public involvement from a policy perspective. We argue that the language of health policies can influence both the aims and the development of involvement methods. In this study health policy documents, which have guided the development of patient and public i…

  • Active and non-active agents

    Open Access•Jari Pirhonen, Ilkka Pietilä•ARTICLE•Ageing and Society•2018•Cited by: 5•References: 30

    Culturally, institutional care has been seen to strip older people of their status as full adult members of society and turn them into ‘have-nots’ in terms of agency. The substantial emphasis in gerontology of measuring the activity and functional ability of the elderly has unintentionally fostered these stereotypes, as have traditional definitions of agency that emphasise individuals’ choices and capacities. The aim of this paper is to discover …

  • Ruptures of affiliation

    Open Access•Jari Pirhonen, Elisa Tiilikainen et al.•ARTICLE•Ageing and Society•2018•Cited by: 3•References: 48

    Transfer from a private home to an assisted living facility has been pictured as a major change in an older person's life. Older people themselves tend to perceive the change as something eventual that breaks the bonds and familiarities of previous life. The aim of this article is to shed light on residents’ chances to reach affiliation (as Nussbaum defines it) in their new living surroundings, and thus adjust to that social environment. Based on…

  • Seeking certainty through narrative closure

    Open Access•Ilkka Pietilä, Raisa Jurva et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 10•References: 20

    Radical treatments of prostate cancer often lead to a pervasive liminal state that is characterised by multiple uncertainties that relate both to a possible recurrence of cancer and recovery from side effects, such as erectile and urinary dysfunctions. Liminality can make it difficult for cancer patients to narrate their experiences, as their stories lack a definite ending. After interviews with 22 Finnish men who had undergone radical prostatect…

  • Representing the ‘Voice’ of Patients

    Open Access•Marjaana Jones, Piia Jallinoja et al.•ARTICLE•Voluntas Revista Internacional de…•2020•Cited by: 5•References: 12

    The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in d…

  • Expertise, advocacy and activism

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health An Interdisciplinary…•2020•References: 34

    Peer support workers are now working with patients in a variety of settings, coming into close contact and even work alongside health professionals. Despite the potentially influential position peer support workers hold in relation to those engaged in support activities, their role, duties and their relationship to peers and health professionals lack clarity and is often defined by other actors. This study explores how peer support workers interp…

  • Alignments and differentiations

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Health An Interdisciplinary…•2020•Cited by: 2•References: 27

    Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health profess…

  • Is Retirement a Crisis for Men? Class and Adjustment to Retirement

    Open Access•Ilkka Pietilä, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2020•Cited by: 5•References: 39

    Because paid work is taken to be central to manhood, scholarly and popular discourse have characterized retirement as presenting a 'crisis of masculinity.' However, such a crisis is not borne out by research, perhaps because scholars have not considered how class might shape masculinities and thus expectations and experiences of retirement. Using data obtained from interviews with Finnish metal workers and engineers who are either approaching ret…

  • Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience

    Open Access•Marjaana Jones, Ilkka Pietilä•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 32

    Patient and public involvement activities bring 'lay participants' and their accounts of lived experiences to the centre of health service development and delivery. For individuals, these accounts can provide an important resource, offering a sense of control and an opportunity to re-frame past events. Furthermore, as involvement activities and the use of personal accounts have become more prominent, it is timely to examine the involvement proces…

  • The expanded prostate cancer index composite short form (Epic-26) for measuring health-related quality of life

    Open Access•Anna‐Maija Talvitie, Hanna Ojala et al.•ARTICLE•Quality of Life Research•2021

    Patients are mainly willing to report their symptoms, but a lack of suitable answer options causes missing data and differing answering strategies in the sexual and urinary domains of EPIC-26, weakening the quality of the response data received

  • Inclusivity, Horizontal Homosociality and Controlled Participation of “The Others”

    Open Access•Ilkka Pietilä, Hanna Ojala•ARTICLE•NORA - Nordic Journal of Feminist…•2021•Cited by: 2•References: 11

    Theories of inclusive masculinity and horizontal homosociality describe how previously marginalized forms of masculinity are becoming socially acceptable. Studies within these theoretical frameworks have largely focused on privileged groups of men and men’s changing attitudes towards homosexuality. This raises questions about the extent to which the theories apply to marginalized groups of men and other inequalities between men. In this article, …

  • The Hegemony in Masculinity

    Open Access•Neal King, Toni Calasanti et al.•ARTICLE•Men and Masculinities•2021•Cited by: 8•References: 15

    Most citations to 'hegemonic masculinity' focus on gender ideals and men's attempts to justify domination. Few scholars have tested the theory that masculinity can be hegemonic in effect by gaining the overt consent of others to their domination. We specify this largely untested theory and use data from a pilot study of middle-age men for our demonstration of how to operationalize and recognize hegemony. We argue that scholars will find that effe…

  • Studying constructions of aging manhood

    Open Access•Toni Calasanti, Ilkka Pietilä et al.•ARTICLE•Journal of Aging Studies•2022

  • The couple norm in single men’s digital stories

    Anu Kinnunen, Ilkka Pietilä•ARTICLE•Families Relationships and…•2023•References: 15

    The number of people living alone is increasing in Finland (OSF, 2020a; 2020b), in Europe (Eurostat, 2020a) and globally. Individualisation is growing, and many public institutions are adjusting to the rising number of single clientele. At the same time, the couple norm persists, and monogamous partnering is still often seen as the most appropriate way to organise intimate adult life. In this study, we analysed the written stories of 19 single me…

  • No place to go? Older people reconsidering the meaning of social spaces in the context of the Covid-19 pandemic

    Open Access•Katariina Tuominen, Jari Pirhonen et al.•ARTICLE•Journal of Aging Studies•2023•Cited by: 1•References: 7

    Under COVID-19 restrictions, older people were advised to avoid social contact and to self-isolate at home. The situation forced them to reconsider their everyday social spaces such as home and leisure time places. This study approached the meaning of social spaces for older people by examining how older people positioned themselves in relation to social spaces during the pandemic. The data were drawn from the Ageing and social well-being (SoWell…

  • Prostate cancer-related sexual dysfunction – the significance of social relations in men’s reconstructions of masculinity

    Open Access•Anna-Maija Talvitie, Anna‐Maija Talvitie et al.•ARTICLE•Culture Health & Sexuality•2024

    Narrating illness experiences in a culturally acceptable manner is essential for retaining quality of life after the disruptive event of being diagnosed for prostate cancer. Psychological pressures caused by treatment side-effects such as erectile dysfunction require reinterpretation of the meanings and impacts of these side-effects on masculinity. This helps maintain coherence in men's lives. We studied how men employ culturally available discur…

Psychology (24 works) · Sociology (21 works) · Medicine (18 works) · Political science (18 works) · Gender Studies (15 works) · Social Psychology (14 works) · Gender Studies (10 works) · Social Psychology (9 works) · Aging and Gerontology Research (8 works) · Gender Roles and Identity Studies (8 works)

Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae