Alignments and differentiations
People with illness experiences seeking legitimate positions as health service developers and producers
Bibliographic Data
| ID | 4218148 |
|---|---|
| Authors | Marjaana Jones (0000-0003-3012-7945, University of Tampere, corresponding author), Ilkka Pietilä (0000-0002-3830-3619, University of Helsinki) |
| Year | 2020 |
| Volume | 24 |
| Issue | 3 |
| Pages | 223-240 |
| Publication date | 2020-05-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL) |
| Journal identifiers | ISSN: 1363-4593 • E-ISSN: 1461-7196 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1363459318800154 |
| PMID | 30222007 |
| OpenAlex | W2889591735 |
| Language | EN |
| Citations received | 10 |
| References cited | 29 |
Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health professionals. We have used discourse analysis in analysing individual interviews conducted with peer support workers and experts by experience (n = 17) who currently work in Finnish health services. The interviewees utilised discourses of empowerment, efficiency and patient-centeredness, aligning themselves with the justifications constructed by patient movements additionally to those found in current health policies. Both groups wanted to retain critical distance from professionals in order to voice criticisms of current care practices, yet they also frequently aligned themselves with professionals in order to gain legitimacy for their involvement. They adopted professional traits that moved them further from being lay participants sharing personal experiences and adopted an expert position. Although national-level policies provided backing and legitimacy for involvement, the lack of local-level guidance could hinder the practical implementation and make involvement largely dependent of professionals' discretion
Business · Discretion · Empowerment · Health care · Legitimacy · Political science · Politics · Public relations · Health Policy Implementation Science · Interprofessional Education and Collaboration · Law · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Marketing
Unintended consequences of institutionalizing peer support work in mental healthcare
Service user involvement in the education of allied healthcare professionals in Ireland
Peer workers as emotion managers
Exploring meanings of expert and expertise in patient engagement activities
Service user entrepreneurs and claims to authority – a case study in the mental health area
Experiential expertise in the co-development of social and health-care services
Negotiating mental illness across the lay-professional divide
Empowered service users
Wider institutional research cultures and their influence on patient and public involvement and engagement in health research - An institutional ethnography
Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience
Rethinking Expertise
Discourse analysis
Handbook of Constructionist Research
Revolution or evolution
Mutual powerlessness in client participation practices in mental health care
Critical perspectives on user involvement
The citizen is stepping into a new role”—Policy interpretations of patient and public involvement in Finland
Consumers enter the political stage? The modernization of health care in Britain and Germany
Positioning
Entering the well-guarded fortress
How to build an "active" patient? The work of Aids associations in France
The experiential knowledge of patients
A paradox in healthcare service development
Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London
What is "the patient perspective" in patient engagement programs? Implicit logics and parallels to feminist theories
Patients as team members
Ordinary people only
Embodied health movements
You're there because you are unprofessional
| Unique citing works | 10 |
|---|---|
| Citations per year | 1,43 |
| Citation span | 2019 - 2026 (8) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 9 |