Revolution or evolution
The challenges of conceptualizing patient and public involvement in a consumerist world
Bibliographic Data
| ID | 19506714 |
|---|---|
| Authors | Jonathan Q Tritter (0000-0001-6258-4628), Jonathan Tritter (0000-0002-1651-2428, University of Warwick, corresponding author) |
| Year | 2009 |
| Volume | 12 |
| Issue | 3 |
| Pages | 275-287 |
| Publication date | 2009-09-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Expectations (JOURNAL) |
| Journal identifiers | ISSN: 1369-6513 • E-ISSN: 1369-7625 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/j.1369-7625.2009.00564.x |
| PMID | 19754691 |
| OpenAlex | W2052745178 |
| Language | EN |
| Citations received | 84 |
| References cited | 23 |
Background Changing the relationship between citizens and the state is at the heart of current policy reforms. Across England and the developed world, from Oslo to Ontario, Newcastle to Newquay, giving the public a more direct say in shaping the organization and delivery of healthcare services is central to the current health reform agenda. Realigning public services around those they serve, based on evidence from service user’s experiences, and designed with and by the people rather than simply on their behalf, is challenging the dominance of managerialism, marketization and bureaucratic expertise. Despite this attention there is limited conceptual and theoretical work to underpin policy and practice. Objective This article proposes a conceptual framework for patient and public involvement (PPI) and goes on to explore the different justifications for involvement and the implications of a rights‐based rather than a regulatory approach. These issues are highlighted through exploring the particular evolution of English health policy in relation to PPI on the one hand and patient choice on the other before turning to similar patterns apparent in the United States and more broadly. Conclusions A framework for conceptualizing PPI is presented that differentiates between the different types and aims of involvement and their potential impact. Approaches to involvement are different in those countries that adopt a rights‐based rather than a regulatory approach. I conclude with a discussion of the tension and interaction apparent in the globalization of both involvement and patient choice in both policy and practice
Data science · Political science · Public relations · Sociology · Computer Science · Healthcare innovation and challenges · Medicine · Mental Health and Patient Involvement · Patient Satisfaction in Healthcare · Psychology
It takes three to tango
Understanding community engagement in end-of-life care
Comparative Health Systems
Evaluating patient and stakeholder engagement in research
Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety
Patient empowerment, patient participation and patient-centeredness in hospital care
From tokenism to empowerment
Conversing with theory in context
System-Wide and Group-Specific Health Service Improvements
Who wants to be involved in health care decisions? Comparing preferences for individual and collective involvement in England and Sweden
How involvement in healthcare relates to attitudes towards the healthcare system
Patient involvement in priority-setting for medical research
Patient and public engagement in decision-making regarding infectious disease outbreak management
Patient involvement in medical education
Institutional reforms to strengthen patient and public involvement in the Czech Republic since 2014
The impact of patient and public involvement in health research versus healthcare
The impact of patient and public involvement in healthcare services
Exploring meanings of expert and expertise in patient engagement activities
A Hierarchy of Power
Patients’ experiential knowledge and expertise in health care
Factors affecting user participation for nursing home residents with dementia
Factors affecting user participation for elderly people with dementia living at home
I am not your nutter’
The citizen is stepping into a new role”—Policy interpretations of patient and public involvement in Finland
Three Conceptual Models of Patient and Public Involvement in Standard-setting
Rethinking long-term condition management
Patient representatives
Barriers to the participation of people with psychosocial disability in mental health policy development in South Africa
Patient-expert partnerships in research
Rights and duties policy implementation in Chile
Evaluation of a project to engage patients in the development of a patient‐reported measure for HIV care (the I‐Score Study)
Getting the balance right
Patient family advisors’ perspectives on engagement in health‐care quality improvement initiatives
Public and patient involvement in quantitative health research
Public and patient participation in health care and health policy in the United Kingdom
Developing a ‘critical’ approach to patient and public involvement in patient safety in the NHS
Patient and public involvement facilitators
Meaningful patient and public involvement in digital health innovation, implementation and evaluation
A structuration framework for bridging the macro–micro divide in health‐care governance
Patient and public involvement
From awareness to involvement? A qualitative study of respiratory patients’ awareness of health service change
Patient and public involvement in care home research
Patient and public involvement in medical performance processes
An empirically based conceptual framework for fostering meaningful patient engagement in research
A public and patient consultation process as an aid to design a person‐centred randomized clinical trial
Patient participation during primary health‐care encounters among adult patients with multimorbidity
Patient involvement in mental health care
Same description, different values. How service users and providers define patient and public involvement in health care
Exploring the boundary of a specialist service for adults with intellectual disabilities using a D elphi study
Patient and family involvement in adult critical and intensive care settings
Representation in participatory health care decision‐making
Community participation for rural health
Patients' and Caregivers' Suggestions for Improving Assisted Dying Regulation
Research priorities set by people with OCD and OCD researchers
‘To me, it's ones and zeros, but in reality that one is death’
Respect, trust and continuity
Perceptions of people with respiratory problems on physician performance evaluation—A qualitative study
'A limpet on a ship'
What is the evidence base for public involvement in health‐care policy
Patient and public involvement in priority‐setting decisions in England's Transforming NHS
Self‐help friendliness in cancer care
Black and minority ethnic group involvement in health and social care research
The Importance of Lived Experience
Bridging divides
The involvement of people living with HIV in the development of HIV-specific or inclusive health instruments
Patient participation in mental healthcare
Community–University Health Research Partnerships
Neutralized, enhanced, tokenistic
Attitudes and approaches to patient and public involvement across Europe
Organizational Form as a Mechanism to Involve Staff, Public and Users in Public Services
Participatory research meets validated outcome measures
Conceptualizing Lay Participation in Professional Health Care Organizations
The View From the Other Side of the Table
Involving citizens in regulation
Disentangling patient and public involvement in healthcare decisions
Spaces for Citizen Involvement in Healthcare
From Democratic Consultation to User-employment
Alignments and differentiations
What is "the patient perspective" in patient engagement programs? Implicit logics and parallels to feminist theories
Co-design and ethical artificial intelligence for health
Federative patient organizations in a decentralized health-care system
Theoretical directions for an emancipatory concept of patient and public involvement
Conceptualizing the use of public involvement in health policy decision-making
Introduction
The Politics of Decentralisation
The snakes and ladders of user involvement
Towards a global definition of patient centred care
Systematic review of involving patients in the planning and development of health care
Market Reforms in Swedish Health Care
‘Working the system’. Achieving change through partnership working
A multidimensional conceptual framework for analysing public involvement in health services research
Developing user involvement in a UK cancer network
Consuming Health
User-involvement, citizenship and social policy
A ladder of community participation for underdeveloped countries
Patient Choice in Healthcare in England and Sweden
A Ladder Of Citizen Participation
Which aspects of non-clinical quality of care are most important? Results from WHO's general population surveys of "health systems responsiveness" in 41 countries
Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London
Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
| Unique citing works | 84 |
|---|---|
| Citations per year | 4,94 |
| Citation span | 2009 - 2026 (18) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 82 |