You're there because you are unprofessional
Patient and Public Involvement as Liminal Knowledge Spaces
Bibliographic Data
| ID | 2249347 |
|---|---|
| Authors | Keith Maguire (0000-0003-2311-6332, University of Exeter), Kath Maguire (Exeter Medical School Exeter University), Nicky Britten (0000-0002-7533-414X, Exeter Medical School Exeter University, corresponding author) |
| Year | 2018 |
| Volume | 40 |
| Issue | 3 |
| Pages | 463-477 |
| Publication date | 2018-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.12655 |
| PMID | 29280538 |
| OpenAlex | W2778276646 |
| Language | EN |
| Citations received | 22 |
| References cited | 19 |
Patient and public involvement in health research and care has been repeatedly theorised using the metaphor of spaces, knowledge spaces and participatory citizenship spaces. Drawing on data from a three year qualitative study of people involved in health research with organisations across England, this article explores where these spaces fit in a wider social, political and historical landscape. It outlines a theme recurring frequently in the study data: a unified public/patient/service-user perspective in opposition to a professional/clinical/academic view. This is discussed in relation to Habermas's division between the lifeworld and system. Patient and public involvement is mapped as spaces between these spheres, therefore between the social norms pertaining to them. In this way, involvement spaces are seen as liminal, in-between or threshold spaces; this concept provides us with new insights on both the opportunities and the conflicts that are integral in the ambiguous, complex interactions which take place in these spaces
Citizen journalism · Citizenship · Epistemology · Lifeworld · Liminality · Metaphor · Political science · Politics · Public relations · Public sphere · Social science · Sociology · Anthropology · Health Policy Implementation Science · Healthcare innovation and challenges · Law · Mental Health and Patient Involvement
Feeling well, feeling cared for? Using participatory and arts-engaged research to improve understanding and professional responses to the mental health needs of care-experienced young people
Patient involvement in medical education
Exploring the hidden demands for patients’ resources
Exploring meanings of expert and expertise in patient engagement activities
Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires
A qualitative study exploring the benefits of involving young people in mental health research
The burden of proof
Patient and public involvement facilitators
Disrupting patterns of exclusion in participatory spaces
'A limpet on a ship'
Mitigating unintended consequences of co‐design in health care
“An Active, Productive Life”
Between hospitality and the inhospitable
Citizens as Active Participants in Integrated Care
The complexities of developing equal relationships in patient and public involvement in health research
Ethnography of User Involvement
Public involvement in research about environmental change and health
Alignments and differentiations
Negotiating pace, focus and identities
Negotiating mental illness across the lay-professional divide
The impossibility of engaged research
Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience
From tokenism to empowerment
Profession of medicine
A Theory of Justice
The Structural Transformation of the Public Sphere
The power of symbolic capital in patient and public involvement in health research
The Liverpool Cholera Epidemic of 1832 and Anatomical Dissection—Medical Mistrust and Civil Unrest
"How can anybody be representative for those kind of people?" Forms of patient representation in health research, and why it is always contestable
Theoretical directions for an emancipatory concept of patient and public involvement
Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting
A sociological perspective on public participation in health care
Beyond ideal speech situations
Lay knowledge, social movements and the use of medicines
Rethinking the Public Sphere
Theory Construction in Qualitative Research
Spaces for Citizen Involvement in Healthcare
The genesis of chronic illness
Loss of self
| Unique citing works | 22 |
|---|---|
| Citations per year | 3,14 |
| Citation span | 2019 - 2025 (7) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 22 |