Maria Santana
Biographic Data
| ID | 6782703 |
|---|---|
| NAME | Maria Santana |
| GIVEN NAMES | Maria |
| FAMILY NAME | Santana |
| SIGNATURE | SANTANA M |
| AFFILIATIONS | University of Calgary |
| ORCID | 0000-0002-0202-5952 |
| VERIFIED | Yes |
| TOTAL WORKS | 33 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 33 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2010 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 0 |
Impact of a Health Research Training Program on Patient and Community Partners, and Researchers
Living With Diabetes in Alberta
INTRODUCTION: Patients and caregivers living with diabetes experience multiple barriers to diabetes management. These include financial, geographic, and lack of culturally relevant diabetes education. Our aim was to understand the perspectives of patients living with diabetes on what should be prioritised in Alberta regarding diabetes care, management, and treatment. In this paper, we described our community engagement process and summarised the …
Navigating vaccine access, trust, coercion and regret
Since the COVID-19 pandemic routine vaccination rates have dropped in Canada. Many newcomers and refugees experience significant vaccine inequities despite wide vaccine availability and COVID-19 pandemic vaccination campaigns. We aimed to investigate post-pandemic vaccine hesitancy, acceptance, and vaccine outreach strategies among newcomers’ communities. We conducted a community-based-participatory research (CBPR) qualitative study with self-ide…
What Are the Barriers and Supports to a Return to Health From Long Covid? A Qualitative Study Designed, Developed, and Conducted by Individuals With Lived Experience of Long Covid
Long COVID is a debilitating and persistent illness that affects individuals in multiple and dynamic ways. Because of the significant physical, emotional, and economic impacts long COVID holds on individuals, their families, and society more broadly, it is imperative that a multi-faceted approach is taken to the long COVID research that aims to improve outcomes for those affected. Expertise about the barriers and supports to accessing appropriate…
Exploring Patient Understandings of Navigation Services Within Alberta's Healthcare System
INTRODUCTION: Patient navigation was first envisioned to assist marginalized cancer patients access timely healthcare services by identifying and addressing social barriers to care. While this understanding of patient navigation may still hold for a subgroup of programs today, its expansion over the past 30 years has resulted in a diverse set of interventions with distinct care settings, patient eligibility criteria, navigator training requiremen…
Mobilizing Covid-19 Vaccination Partnerships for Newcomer Refugees and Immigrants in the Calgary, Canada Area, 2021–2022
Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based ca…
There is evidence to support the use of these PROMs for MBC in child and adolescent mental health. However, further investigation is needed into response processes, internal structure, and to establish clinically meaningful thresholds to improve interpretability, and ensure the validity of their use
Avaliação Da Relação Entre a Catarata Congênita E as Infecções Intrauterinas
A catarata congênita é uma das principais causas de cegueira tratável na infância, e sua não correção urgente resulta em ambliopia e déficits visuais permanentes. Dentre suas etiologias, as infecções intrauterinas representam um grupo prevenível de grande importância para a saúde pública. O objetivo desta revisão sistemática foi sintetizar as evidências dos últimos dez anos sobre a relação causal entre as infecções, especialmente do complexo TORC…
Person-centered integrated care for people living with kidney disease and multimorbidity
Background: People with chronic kidney disease (CKD) and other chronic conditions commonly experience fragmented care. A person-centered integrated care (PC-IC) approach has shown to effectively address care delivery and health outcomes for other populations. However, evidence to guide the application of PC-IC in patients with early-stage CKD and multimorbidity remains limited.To understand challenges and opportunities to address PC-IC for early-…
Operationalizing the principles of patient engagement through a Patient Advisory Council
BACKGROUND: Inclusiveness, Support, Mutual Respect and Co-Build are the four pillars of patient engagement according to the Strategy for Patient-Oriented Research (SPOR). The aim of this manuscript is to describe the operationalization of these principles through the creation of a Patient Advisory Council (PAC) for the research study titled 'Re-Purposing the Ordering of Routine laboratory Tests (RePORT)'. METHODS: Researchers collaborated with th…
Alignment of patient‐centredness definitions with real‐life patient and clinician experiences
INTRODUCTION: Patient-centred care (PCC) has come to the forefront for many institutions, funding agencies and clinicians, and is integrated into care. Does a disconnect in understanding still exist between patients, healthcare organizations and clinicians in what PCC means and how outstanding issues might be addressed? METHODS: We conducted interviews and focus groups with self-reported chronic care patients and clinicians providing care to thes…
Co‐building a training programme to facilitate patient, family and community partnership on research grants
INTRODUCTION: Patient engagement in patient-oriented research (POR) is described as patients collaborating as active and equal research team members (patient research partners [PRPs]) on the health research projects and activities that matter to them. The Canadian Institutes of Health Research (CIHR), Canada's federal funding agency for health research, asks that patients be included as partners early, often and at as many stages of the health re…
Youth engagement in mental health research
Accessing Care Services for Long Covid Sufferers in Alberta, Canada
Designing appropriate rehabilitation programs for long COVID-19 remains challenging. The purpose of this study was to explore the patient experience of accessing long COVID-19 rehabilitation and recovery services. In this cross-sectional, observational study, a telephone survey was administered to a random sample of persons with long COVID-19 in a Canadian province. Participants included adults who tested positive for COVID-19 between March and O…
Examining the Relationship Between Screening for Postpartum Depression and Associated Child Health Service Utilization and Costs
Findings from this study describe the secondary associations of screening for maternal PPD using a public health system perspective. More research is required to fully understand variations in health costs for children across maternal PPD screening categories
Response shift in coronary artery disease
Patient and public involvement (PPI) in health care
Introduction: While patient and public involvement (PPI) is increasingly required by policymakers and funding agencies, the vast amount of literature on this topic makes it difficult for stakeholders who are at the beginning of their journey to find guidance on conceptual frameworks, successful methods, and good examples for PPI in contexts/settings similar to their own. Although there are various conceptual frameworks available, especially for P…
Codesigning person‐centred quality indicators with diverse communities
INTRODUCTION: Effective engagement of underrepresented communities in health research and policy remains a challenge due to barriers that hinder participation. Our study had two objectives: (1) identify themes of person-centred care (PCC) from perspectives of diverse patients/caregivers that would inform the development of person-centred quality indicators (PC-QIs) for evaluating the quality of PCC and initiatives to improve PCC and (2) explore i…
Including the voice of paediatric patients
BACKGROUND: Engaging patients in health care, research and policy is essential to improving patient-important health outcomes and the quality of care. Although the importance of patient engagement is increasingly acknowledged, clinicians and researchers still find it difficult to engage patients, especially paediatric patients. To facilitate the engagement of children and adolescents in health care, the aim of this project is to develop an engage…
Patients as partners in health research
Patient-reported outcome measures in pediatric solid organ transplantation
This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives
Measurement invariance of the Seattle Angina Questionnaire in coronary artery disease
Using implementation science to inform the integration of electronic patient-reported experience measures (ePREMs) into healthcare quality improvement
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings
Multilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to su…
Bibliographie de Denys Delâge
Bibliographie de Denys Delâge. Un article de la revue Recherches amérindiennes au Québec (Les peuples autochtones face aux régimes coloniaux en Amérique du Nord (XVI-XX e siècle) : hommage à Denys Delâge) diffusée par la plateforme Érudit
No prominent works on this page.
Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients
Framework to assess the effects of using patient-reported outcome measures in chronic care management
Building new roles and relationships in research
Patient and public engagement in health-related quality of life and patient-reported outcomes research
The use of cognitive interviews to revise the Quality of Trauma Care Patient-Reported Experience Measure (QTAC-PREM)
Training clinicians in how to use patient-reported outcome measures in routine clinical practice
How to practice person‐centred care
Trajectories of perceived social support in acute coronary syndrome
Using implementation science to inform the integration of electronic patient-reported experience measures (ePREMs) into healthcare quality improvement
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings
Multilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to su…
Bibliographie de Denys Delâge
Bibliographie de Denys Delâge. Un article de la revue Recherches amérindiennes au Québec (Les peuples autochtones face aux régimes coloniaux en Amérique du Nord (XVI-XX e siècle) : hommage à Denys Delâge) diffusée par la plateforme Érudit
Patients as partners in health research
Patient-reported outcome measures in pediatric solid organ transplantation
This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives
Measurement invariance of the Seattle Angina Questionnaire in coronary artery disease
Codesigning person‐centred quality indicators with diverse communities
INTRODUCTION: Effective engagement of underrepresented communities in health research and policy remains a challenge due to barriers that hinder participation. Our study had two objectives: (1) identify themes of person-centred care (PCC) from perspectives of diverse patients/caregivers that would inform the development of person-centred quality indicators (PC-QIs) for evaluating the quality of PCC and initiatives to improve PCC and (2) explore i…
Including the voice of paediatric patients
BACKGROUND: Engaging patients in health care, research and policy is essential to improving patient-important health outcomes and the quality of care. Although the importance of patient engagement is increasingly acknowledged, clinicians and researchers still find it difficult to engage patients, especially paediatric patients. To facilitate the engagement of children and adolescents in health care, the aim of this project is to develop an engage…
Alignment of patient‐centredness definitions with real‐life patient and clinician experiences
INTRODUCTION: Patient-centred care (PCC) has come to the forefront for many institutions, funding agencies and clinicians, and is integrated into care. Does a disconnect in understanding still exist between patients, healthcare organizations and clinicians in what PCC means and how outstanding issues might be addressed? METHODS: We conducted interviews and focus groups with self-reported chronic care patients and clinicians providing care to thes…
Co‐building a training programme to facilitate patient, family and community partnership on research grants
INTRODUCTION: Patient engagement in patient-oriented research (POR) is described as patients collaborating as active and equal research team members (patient research partners [PRPs]) on the health research projects and activities that matter to them. The Canadian Institutes of Health Research (CIHR), Canada's federal funding agency for health research, asks that patients be included as partners early, often and at as many stages of the health re…
Youth engagement in mental health research
Accessing Care Services for Long Covid Sufferers in Alberta, Canada
Designing appropriate rehabilitation programs for long COVID-19 remains challenging. The purpose of this study was to explore the patient experience of accessing long COVID-19 rehabilitation and recovery services. In this cross-sectional, observational study, a telephone survey was administered to a random sample of persons with long COVID-19 in a Canadian province. Participants included adults who tested positive for COVID-19 between March and O…
Examining the Relationship Between Screening for Postpartum Depression and Associated Child Health Service Utilization and Costs
Findings from this study describe the secondary associations of screening for maternal PPD using a public health system perspective. More research is required to fully understand variations in health costs for children across maternal PPD screening categories
Response shift in coronary artery disease
Patient and public involvement (PPI) in health care
Introduction: While patient and public involvement (PPI) is increasingly required by policymakers and funding agencies, the vast amount of literature on this topic makes it difficult for stakeholders who are at the beginning of their journey to find guidance on conceptual frameworks, successful methods, and good examples for PPI in contexts/settings similar to their own. Although there are various conceptual frameworks available, especially for P…
Operationalizing the principles of patient engagement through a Patient Advisory Council
BACKGROUND: Inclusiveness, Support, Mutual Respect and Co-Build are the four pillars of patient engagement according to the Strategy for Patient-Oriented Research (SPOR). The aim of this manuscript is to describe the operationalization of these principles through the creation of a Patient Advisory Council (PAC) for the research study titled 'Re-Purposing the Ordering of Routine laboratory Tests (RePORT)'. METHODS: Researchers collaborated with th…
What Are the Barriers and Supports to a Return to Health From Long Covid? A Qualitative Study Designed, Developed, and Conducted by Individuals With Lived Experience of Long Covid
Long COVID is a debilitating and persistent illness that affects individuals in multiple and dynamic ways. Because of the significant physical, emotional, and economic impacts long COVID holds on individuals, their families, and society more broadly, it is imperative that a multi-faceted approach is taken to the long COVID research that aims to improve outcomes for those affected. Expertise about the barriers and supports to accessing appropriate…
Medicine (27 works) · Nursing (18 works) · Psychology (15 works) · Health care (14 works) · Mental Health and Patient Involvement (11 works) · Political science (11 works) · Qualitative research (11 works) · Medical education (9 works) · Patient-Provider Communication in Healthcare (9 works) · Public health (9 works)