Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Methods and impact of engagement in research, from theory to practice and back again

Early findings from the Patient-Centered Outcomes Research Institute

Bibliographic Data

ID15298854
AuthorsLaura Forsythe, Laura P Forsythe (0000-0003-2280-992X, Patient-Centered Outcomes Research Institute, corresponding author), Andrea Heckert (Patient-Centered Outcomes Research Institute), Mary Kay Margolis (Patient-Centered Outcomes Research Institute), Suzanne Schrandt (Arthritis Foundation), Lori Frank (0000-0002-0023-7003, Patient-Centered Outcomes Research Institute)
Year2017
Volume27
Issue1
Pages17-31
Publication date2017-05-12
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQuality of Life Research (JOURNAL)
Journal identifiersISSN: 0962-9343 • E-ISSN: 1573-2649
PublisherSpringer Science+Business Media (PUBLISHER • DE)
DOI10.1007/s11136-017-1581-x
PMID28500572
OpenAlexW2613964782
LanguageEN
Citations received19
References cited18

The evaluation framework and the underlying conceptual model are supported by results to date. PCORI will continue to assess the effects of engagement as the funded projects progress toward completion, dissemination, and uptake into clinical decision making

Health services research · Public health · Quality of Life Research · Sociology · Applied Psychology · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Nursing · Primary Care and Health Outcomes · Psychology · Gerontology

  • Bridging Lived and Expert Experience

    Open Access•Piotr Teodorowski, Beth J Maclin et al.•Health Expectations•2026

  • Patient partners’ perspectives of meaningful engagement in synthesis reviews

    Open Access•Catherine Boden, Anne Marie Edmonds et al.•Health Expectations•2021

  • Building and Sustaining Patient Engagement Infrastructure Focused on Overdose Prevention Within a US Veterans Affairs National Research Network

    Open Access•Tracy L Sides, Malloree M Argust et al.•Health Expectations•2026

  • Development of the Engage with Impact Toolkit

    Open Access•Julia Abelson, Laura Tripp et al.•Health Expectations•2023

  • Reliability and Validity of the Arabic Translation of the Public and Patient Engagement Evaluation Tool

    Open Access•Alaa Dayekh, Zahraa Raychouni et al.•Health Expectations•2025

  • Frameworks Used to Engage Postsecondary Students in Campus Mental Health Research

    Open Access•Kristin Cleverley, Soha Salman et al.•Health Expectations•2025

  • ‘It reshaped how I will do research’

    Open Access•Natasha Y Sheikhan, Lisa D Hawke et al.•Health Expectations•2021

  • What motivates patients and caregivers to engage in health research and how engagement affects their lives

    Open Access•Rachel Hemphill, Laura P Forsythe et al.•Health Expectations•2020

  • Evaluation of patient engagement in medicine development

    Open Access•Lidewij Eva Vat, Teresa Finlay et al.•Health Expectations•2021

  • Patient and public engagement in research and health system decision making

    Open Access•Aurelien Boivin, Audrey L'Espérance et al.•Health Expectations•2018

  • Preparing for patient partnership

    Open Access•Marissa Bird, Carley Ouellette et al.•Health Expectations•2020

  • Operationalizing a patient engagement plan for health research

    Open Access•Holly Etchegary, Andrea Pike et al.•Health Expectations•2022

  • Shortening and validation of the Patient Engagement In Research Scale (Peirs) for measuring meaningful patient and family caregiver engagement

    Open Access•Clayon B Hamilton, Alison M Hoens et al.•Health Expectations•2021

  • Examining how study teams manage different viewpoints and priorities in patient‐centered outcomes research

    Open Access•Maureen Maurer, Tandrea Hilliard‐Boone et al.•Health Expectations•2023

  • Patient stakeholder engagement in research

    Open Access•Julia D Harrison, Andrew D Auerbach et al.•Health Expectations•2019

  • Evaluating the “return on patient engagement initiatives” in medicines research and development

    Open Access•Lidewij Eva Vat, Teresa Finlay et al.•Health Expectations•2020

  • A 360 Degree Qualitative Ethical Assessment of Reporting Patient Reported Outcomes

    Open Access•Andrew P Huang, Jennifer Corcoran et al.•Journal of Empirical Research on…•2026

  • Network Engagement in Action

    Jennifer M Poger, Jennifer Poger et al.•Medical Care•2020

  • Pragmatic Considerations in Incorporating Stakeholder Engagement Into a Palliative Care Transitions Study

    Open Access•Claire de Forcrand, Mara Flannery et al.•Medical Care•2021

  • Nothing About Us Without UsDisability Oppression and Empowerment

    Joy Charlton, James Charlton et al.•Nothing about Us Without Us•1998

  • Applied Thematic Analysis

    Greg Guest, Kathleen Macqueen et al.•Applied Thematic Analysis•2012

  • Patient engagement in research

    Open Access•Juan Pablo Domecq, Gabriela Prutsky et al.•BMC Health Services Research•2014

  • Real qualitative researchers do not count

    Open Access•Margarete Sandelowski•Research in Nursing & Health•2001

  • Isoqol recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research

    Open Access•Bryce B Reeve, Kathleen W Wyrwich et al.•Quality of Life Research•2013

  • A Systematic Review of Stakeholder Engagement in Comparative Effectiveness and Patient-Centered Outcomes Research

    Open Access•Thomas W Concannon, Melissa Fuster et al.•Journal of General Internal…•2014

  • Content analysis and thematic analysis

    Open Access•Mojtaba Vaismoradi, Hannele Turunen et al.•Nursing & Health Sciences•2013

  • Mapping the impact of patient and public involvement on health and social care research

    Open Access•Jo Brett, Sophie Staniszewska et al.•Health Expectations•2014

  • Patient and service user engagement in research

    Open Access•Nathan D Shippee, Juan Pablo Domecq Garces et al.•Health Expectations•2015

  • Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

    Open Access•Lori Frank, Laura Forsythe et al.•Quality of Life Research•2015

Unique citing works19
Citations per year2,38
Citation span2018 - 2026 (9)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 17
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae