'In an important way, I did die'
Uncertainty and revival in persons living with HIV or Aids
Bibliographic Data
| ID | 19442293 |
|---|---|
| Authors | Dale E Brashers (University of Illinois Urbana-Champaign), Judith L Neidig, Linda Wheeler Cardillo, L K Dobbs, Loren Dobbs, JANE A RUSSELL, Stephen M Haa (0000-0001-5426-1861), S M Haas (0000-0002-7713-3341) |
| Year | 1999 |
| Volume | 11 |
| Issue | 2 |
| Pages | 201-219 |
| Publication date | 1999-04-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | AIDS Care (JOURNAL) |
| Journal identifiers | ISSN: 0954-0121 • E-ISSN: 1360-0451 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/09540129948090 |
| PMID | 10474623 |
| OpenAlex | W2078324689 |
| Language | EN |
| Citations received | 46 |
| References cited | 60 |
This study reports the revival experiences of persons who once were reconciled to their death from HIV/AIDS but who, as a result of dramatic treatment responses, now believe they may survive (popularly known as the Lazarus Syndrome). A purposive sample of men and women living with HIV infection or AIDS were interviewed in six focus groups. As part of a larger study of uncertainty in HIV illness, participants described their uncertainty accompanying renewed health and a return to the joys and problems of continued life. While new discoveries about the disease and exciting antiretroviral therapies hold the promise of improved survival, ambiguity about the durability of treatment response and ultimate survival contribute to the level of uncertainty with which a patient must cope. The experience of uncertainty in the narratives about revival involved renegotiation. Participants described physical renewal as an unexpected new stressor forcing them to renegotiate: (a) feelings of hope and future orientation, (b) social roles and identities, (c) interpersonal relations, and (d) the quality of their lives. Implications for prevention, practice, research and theory are presented and suggestions for education and assistance are offered
Ambiguity · Family medicine · Feeling · Interpersonal communication · Narrative · Psychotherapist · Stressor · Clinical Psychology · HIV/AIDS Research and Interventions · Homelessness and Social Issues · Medicine · Mental Health and Patient Involvement · Psychology · Social Psychology · Gerontology
Gay Men and HIV/Aids Risk Management
Social Support and the Management of Uncertainty for People Living With HIV or Aids
Avoiding Health Information
Trauma, Trust and Hope among Women
The Role of Stigma Management in HIV Treatment Adherence
Quality of life after liver transplantation for hepatitis C infection
Les médicaments antirétroviraux et le VIH/sida
Denying and Accepting a Family Member’s Illness
Beyond the Words
Uncertainty Management in Chinese Mainstream Media’s Health Communication on Weibo After Covid-19 Policy Shifts
From Abruption to Chronicity
Hope Maintenance in People Living Long‐term with HIV/Aids
The Multidimensional Challenge of Psychotherapy with HIV Positive Gay Men
We're Going to be Survivors”
Theory Comparison
Communication and Uncertainty Management
The presence of absence
The traumatic sequelae of surviving the Aids crisis
Embodied, clinical and pharmaceutical uncertainty
A comparative analysis of experienced uncertainties in relation to risk communication during Covid19
The work of negotiating HIV as a chronic condition
Experiencing uncertain HIV treatment delivery in a transitional setting
Economic and quality of life outcomes of antiretroviral therapy for HIV/Aids in developing countries
Participation among women living with HIV
Collective Aids activism and individuals' perceived self-advocacy in physician-patient communication
Sexuality and Sexual Risk Behavior in HIV-Positive Men Who Have Sex With Men
The changing world of HIV care
We never expected this to happen’
Magic Johnson doesn't worry about how to pay for medicine
To test or not? HIV antibody testing amongst gay men
The Shifting Landscape of Health Care
HIV and identity
Tactics of Concealment Among People Living with HIV
Hope Is Forked
Uncertainty and 'technological horizon' in qualitative interviews about HIV treatment
Hope is the pillar of the universe
Experiences of Contemplating Returning to Work for People Living with HIV/Aids
Uncertainty of Social Network Members in the Case of Communication-Debilitating Illness or Injury
The Unknown/The Unanticipated
To Work or Not to Work
HIV generations? Generational discourse in interviews with Australian general practitioners and their HIV positive gay male patients
Re-appraising HIV Testing among Scottish Gay Men
Social Support as Relationship Maintenance in Gay Male Couples Coping with Hiv or Aids
Social Activism, Self-Advocacy, and Coping with Hiv Illness
Stories and Silences
I Understand How You Feel
The Many Meanings of Uncertainty in Illness
Quality of Life in Persons with Human Immunodeficiency Virus Infection
Uncertainty in Illness
Reconceptualization of the Uncertainty in Illness Theory
Sample size in qualitative research
Dealing with a life-threatening diagnosis
HIV diagnosis rituals and identity narratives
The stressors and stress of being HIV-positive
Current knowledge and research on chronic sorrow
Unending Work and Care
The Practice of Social Research
The aids crisis and gay male survivor guilt
Psychological influences on immunity
Naturalistic inquiry
The practice of social research
Reconstructing My Life
Stigma, HIV and Aids
The experience of cancer
Psychosocial factors, immunologic mediation, and human susceptibility to infectious diseases
Aids-Related Stigmatization and the Disruption of Social Relationships
The Meanings Individuals Attach to Role Identities and Their Implications for Mental Health
Identity-Relevant Events and Psychological Symptoms
Uncertainty and the Lives of Persons with Aids
Living with HIV Infection
Identity Dilemmas of Chronically Ill Men
| Unique citing works | 46 |
|---|---|
| Citations per year | 1,77 |
| Citation span | 2000 - 2026 (27) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 45 |