Social Support and the Management of Uncertainty for People Living With HIV or Aids
Bibliographic Data
| ID | 23385490 |
|---|---|
| Authors | Dale E Brashers (University of Illinois Urbana-Champaign), Judith L Neidig (The Ohio State University), Daena J Goldsmith (0000-0003-1466-0256, University of Illinois Urbana-Champaign) |
| Year | 2004 |
| Volume | 16 |
| Issue | 3 |
| Pages | 305-331 |
| Publication date | 2004-07-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Health Communication (JOURNAL) |
| Journal identifiers | ISSN: 1041-0236 • E-ISSN: 1532-7027 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1207/s15327027hc1603_3 |
| PMID | 15265753 |
| OpenAlex | W2089653002 |
| Language | EN |
| Citations received | 98 |
| References cited | 53 |
People with chronic and acute illnesses experience uncertainty about their prognoses, potential treatments, social relationships, and identity concerns. In a focus group study of people living with HIV or AIDS, we examined how social support may facilitate or interfere with the management of uncertainty about health, identity, and relationships. We found that support from others helps people with HIV or AIDS to manage uncertainty by (a) assisting with information seeking and avoiding, (b) providing instrumental support, (c) facilitating skill development, (d) giving acceptance or validation, (e) allowing ventilation, and (f) encouraging perspective shifts. Respondents also reported a variety of ways in which supportive others interfered with uncertainty management or in which seeking support imposed costs. Problems associated with social support and uncertainty management included a lack of coordination in uncertainty management assistance, the addition of relational uncertainty to illness uncertainty, and the burden of others' uncertainty management. Our study reveals strategies respondents used to manage costs and complications of receiving support, including developing an active or self-advocating orientation, reframing supportive interactions, withdrawing from nonproductive social situations, selectively allowing others to be support persons, and maintaining boundaries.
Business · Cognitive reframing · Focus group · Identity (music) · Perspective (graphical) · Social support · Computer Science · Family Caregiving in Mental Illness · HIV/AIDS Research and Interventions · Homelessness and Social Issues · Marketing · Psychology · Social Psychology
When treatment hurts
Social support during stressful waiting periods
Contextual Health Information Behavior in the Daily Lives of People with Type 2 Diabetes
Competing Discourses Surrounding Primary Caregivers of Hospice Patients
Perceived social support from friends and family and psychosocial functioning in bisexual young adult college students.
Relational Uncertainty and Interpersonal Communication
Communicating Social Support
An Augmented Risk Information Seeking Model
Communication Competence, Social Support, and Depression Among College Students
Relational Uncertainty and Relational Information Processing
The positive outlook study- a randomised controlled trial evaluating the effectiveness of an online self-management program targeting psychosocial issues for men living with HIV
Using the multiphase optimization strategy (Most) to optimize an HIV care continuum intervention for vulnerable populations
It’s all about connection
Information and Relationship Functions of Communication between Pregnant Women and Their Health Care Providers
How different online self-presentations relate to life satisfaction differently in college students
An Examination of Visually Impaired Individuals’ Uncertainty Management
Being PAL
The Association Among Intolerance of Uncertainty, Health Information Retrieval on SNSs, and Health Anxiety
Media Exposure and Health Behavior during Pandemics
Uncertainty Management in Online Sexual Health Forums
Health Information Seeking as a Coping Strategy to Reduce Alzheimer’s Caregivers’ Stress
Health Disparities in Online Covid-19 Information Seeking and Protective Behaviors
An Examination of How Individuals Manage Uncertainty Around Scoliosis
An Examination of How People Appraise and Manage Health-Related Financial Uncertainty
What Drives People Away from Covid-19 Information
Medical Students’ Stress and Uncertainty During the Covid-19 Pandemic
The Influence of Attributions, Emotions, and Sexual Health Knowledge on Support Provision to Friends with Sexual Health Uncertainties
Clinical and Family Conversations Regarding Genetic Testing
The influence of agent and message type on perceptions of social support in human-machine communication
Fake news in a time of plague
Menopausal transition, uncertainty, and women’s identity construction
Perceived online social support for Parkinson’s disease patients
Providing support to friends experiencing a sexual health uncertainty
Uncertainty and support-seeking in US-based online diabetes forums
‘Everybody Else in That Room’
There are support resources, but they are kind of hidden”
You Never Know What’s Gonna Happen”
After coming out
Adult Stepchildren’s Uncertainty Management in Later Life Stepfamilies
Returning to Normal in an Abnormal Environment
Differential media exposure and perceptions of fear and behavior change in China and Israel during the Covid-19 pandemic
Consumers’ avoidance of information on red meat risks
Weak-Tie Support Network Preference and Perceived Life Stress Among Participants in Health-Related, Computer-Mediated Support Groups
The influence of online social support on health self‐management among gay men living with HIV in China
Interpersonal influences on self‐management in the eHealth era
An Examination of Support (In)Adequacy
A Measure of Weak-Tie/Strong-Tie Support Network Preference
Uncertainty management, transformational leadership, and job performance in an AI-powered organizational context
An Experimental Test of Medical Disclosure and Consent Documentation
A longitudinal investigation of information and support seeking processes that alter the uncertainty experiences of mental illness
Issue Forum
Being Open without Talking about It
Coping, surviving, or thriving
Evaluation of Patient Needs and Patient Navigator Communication About Cervical Cancer Prevention in Appalachian Kentucky
The Moderating Role of Social Support on the Relationship Between Anxiety, Stigma, and Intention to Use Illicit Drugs Among HIV-Positive Men Who Have Sex with Men
A Confirmatory Factor Analysis of the NIH Emotions Toolbox Among People Living with HIV and Who May Use Methamphetamine
The Role of Emotional Avoidance, the Patient–Provider Relationship, and Other Social Support in ART Adherence for HIV+ Individuals
The Impact of Social Capital on HIV-related Actions as Mediated by Personal and Proxy Efficacies in Namibia
The Positive Outlook Study
Navigating higher education with chronic illness
A qualitative evidence synthesis of normative rhetorical theory scholarship
Prism
How U.S. college athletes manage Covid-19 related uncertainty
Predicting Adjustment to Divorce from Social Support and Relational Quality in Multiple Relationships
A meta-analysis of disclosure of one's HIV-positive status, stigma and social support
Testing theoretical network classes and HIV-related correlates with latent class analysis
Does scientific uncertainty alter public perception of HIV-cure science? A message experiment with U.S. adults
Social support exchanges in a social media community for people living with HIV/Aids in China
Psychosocial and structural factors and changes in quality of life measures among people living with HIV in British Columbia, Canada
Variation in Networks and Forms of Support for Care‐Seeking Across the HIV Care Continuum in the Rural Southeastern United States
Longitudinal Effect of Perceived Family Support on Marital Adjustment Moderated by Stepfamily Type
Digital divides in verification
The Shifting Landscape of Health Care
The Message Design Logics of Responses to HIV Disclosures
Promoting Covid-19 Vaccination
Person, Place, or Thing
Seeking and Processing Information about Impersonal Risk
Gay, Straight, and Who I Am
Reframing HIV Stigma and Fear
Adolescent Females and Their Mothers
Perceived barriers and facilitators to HIV testing in South African communities
Aligned and Divergent Perceptions of Support Persons' Role in Triadic Gynecologic Cancer Communication
Uncertainty of Social Network Members in the Case of Communication-Debilitating Illness or Injury
Sources of the Uncertainty Experienced by Women With HPV
Medical, Personal, and Social Forms of Uncertainty Across the Transplantation Trajectory
Perceptions About Organ Donation Among African American, Hispanic, and White High School Students
Disclosure Decisions
Shared Illness and Social Support Within Two HIV-Affected African American Communities
Managing Uncertainty for and With Family
Uncertainty Management Strategies in Communication About Urinary Tract Infections
Perceptions of Supportive Behavior by Young Adults With Bipolar Disorder
Information seeking during "bad news" oncology interactions
Can Messages Make a Difference? The Association Between E-Mail Messages and Health Outcomes in Diabetes Patients
Computer-mediated communication (CMC) and social support
Coping with uncertainty in mental illness
Male same-sex couple dynamics and received social support for HIV medication adherence
Challenges in conceptualizing social support
When families fail
The Many Meanings of Uncertainty in Illness
Social Support and the Cancer Patient
Uncertainty in Illness
Stress
Managing Conflicting Goals in Supportive Interaction
Reconceptualization of the Uncertainty in Illness Theory
Information Seeking and Avoiding in Health Contexts
A Normative Approach to the Study of Uncertainty and Communication
Communication and Uncertainty Management
'In an important way, I did die'
Identifying helpful and unhelpful behaviours of loved ones
Social support and unsupportive social interactions
Progression to Aids
Changes in Cognitive Coping Skills and Social Support During Cognitive Behavioral Stress Management Intervention and Distress Outcomes in Symptomatic Human Immunodeficiency Virus (HIV)-Seropositive Gay Men
Collective Aids activism and individuals' perceived self-advocacy in physician-patient communication
Information Seeking and Avoiding in Health Contexts
Soliciting advice
The logic of message design
Social support messages and the management of uncertainty in the experience of breast cancer
Illness‐Related Support and Negative Network Interactions
Coping, Conflictual Social Interactions, Social Support, and Mood Among HIV‐Infected Persons
The multidimensional nature of received social support in gay men at risk of HIV infection and Aids
Quality of life among women living with HIV
From "reducing" to "coping with" uncertainty
Social networks, social support and coping with serious illness
Stigma, HIV and Aids
Perceiving benefits in adversity
Psychological well-being of gay men with Aids
Social Support as Relationship Maintenance in Gay Male Couples Coping with Hiv or Aids
Social Activism, Self-Advocacy, and Coping with Hiv Illness
Coping as a Communal Process
Determinants of Social Support Among Gay Men
Uncertainty and the Lives of Persons with Aids
Living with HIV Infection
The Normative Context of Advice as Social Support
The Structure of Communication
| Unique citing works | 98 |
|---|---|
| Citations per year | 4,45 |
| Citation span | 2004 - 2026 (23) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 93 |