Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis

A qualitative exploration of the views of service users and carers

Bibliographic Data

ID19506138
AuthorsHerni Susanti (0000-0002-6033-741X, Faculty of Nursing Universitas Indonesia Depok Indonesia), Karen James (Faculty of Health, Social Care and Education Centre for Health and Social Care Research Kingston and St Georges London UK), Bagus Wahyu Utomo (0000-0002-7889-6471, Indonesian Orthopaedic Association), Bagus Utomo (KPSI Jakarta Indonesia), Budi Anna Keliat (0000-0003-1103-5404, University of Indonesia), Budi‐Anna Keliat (Faculty of Nursing Universitas Indonesia Depok Indonesia), Katherine Lovell (0000-0001-8821-895X, Division of Nursing, Midwifery and Social Work School of Health Sciences Faculty of Biology, Medicine and Health University of Manchester Manchester Academic Health Science Centre Manchester UK), Irmansyah Irmansyah (0000-0003-4635-1650, IPB University), Diana Rose (0000-0002-5707-2633, Department of Health Services Research Kings College London London UK), E Colucci (0000-0001-9714-477X, Department of Psychology Middlesex University London UK), Helen Brooks (0000-0002-2157-0200, Department of Health Services Research Institute of Population Health Sciences University of Liverpool Liverpool UK, corresponding author)
Year2020
Volume23
Issue2
Pages377-387
Publication date2020-04-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13007
PMID31782266
OpenAlexW2989572480
LanguageEN
Citations received10
References cited43

BACKGROUND: Patient and public involvement (PPI) has the potential to strengthen mental health systems in Indonesia and improve care for people living with psychosis. Current evidence from other parts of the world demonstrates the need to understand the contexts in which PPI is to be enacted to ensure optimal implementation. OBJECTIVE: To understand service users' and carers' views on the current use and potential applicability of PPI within Indonesian mental health services. DESIGN: Qualitative study incorporating focus groups analysed using thematic analysis. SETTING AND PARTICIPANTS: Participants included 22 service users and 21 carers recruited from two study sites in Indonesia (Jakarta and Bogor). All participants had experience of psychosis either as a service user or carer. RESULTS: Despite the value attributed to PPI in relation to improving services and promoting recovery, current use of such activities in Indonesian mental health services was limited. Participants expressed a desire for greater levels of involvement and more holistic care but felt community organizations were best placed to deliver this because PPI was considered more congruent with the ethos of third-sector organizations. Additional barriers to PPI included stigma and low levels of mental health literacy in both health services and communities. DISCUSSION AND CONCLUSION: Participants felt that there was potential value in the use of PPI within Indonesian mental health services with careful consideration of individual contexts. Future aspirations of involvement enactment should ensure a central design and delivery role for third-sector organizations. Facilitators to global collaborative research in the context of the current study are also discussed

Business · Focus group · Indonesian · Mental health · Mental health literacy · Mental illness · Psychiatry · Qualitative research · Sociology · Thematic analysis · Family Caregiving in Mental Illness · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Schizophrenia research and treatment · Marketing