Evaluating the impact of patient and carer involvement in suicide and self‐harm research

A mixed‐methods, longitudinal study protocol

Bibliographic Data

ID19506259
AuthorsDonna L Littlewood (0000-0003-4806-4540, NIHR Greater Manchester Patient Safety Translational Research Centre The University of Manchester Manchester UK, corresponding author), Leah Quinlivan (0000-0002-3944-3613, NIHR Greater Manchester Patient Safety Translational Research Centre The University of Manchester Manchester UK), Sarah Steeg (0000-0002-7935-1414, Centre for Mental Health and Safety School of Health Sciences The University of Manchester Manchester UK), C Susanne Bennett (University of Manchester), Carole Bennett (NIHR Greater Manchester Patient Safety Translational Research Centre The University of Manchester Manchester UK), Harriet Bickley (0000-0002-3756-7137, Centre for Mental Health and Safety School of Health Sciences The University of Manchester Manchester UK), Cathryn Rodway (0000-0003-0007-0124, Centre for Mental Health and Safety School of Health Sciences The University of Manchester Manchester UK), Roger T Webb (0000-0001-8532-2647, NIHR Greater Manchester Patient Safety Translational Research Centre The University of Manchester Manchester UK), Navneet Kapur (0000-0002-3100-3234, NIHR Greater Manchester Patient Safety Translational Research Centre The University of Manchester Manchester UK)
Year2021
Volume24
IssueS1
Pages47-53
Publication date2021-05-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13000
PMID31808266
OpenAlexW2991832923
LanguageEN
Citations received3
References cited26

BACKGROUND: Patient and public involvement (PPI) is becoming more commonplace in mental health research. There are strong moral and ethical arguments for good quality PPI. Few studies have documented and evaluated PPI in self-harm and suicide research. Inconsistent reporting of PPI makes it difficult to discern practices that deliver quality, effective and meaningful involvement. It is important to understand and address emotional support needs of PPI members contributing to sensitive topics such as suicide and self-harm. Therefore, this study will examine the effect of PPI on self-harm and suicide research and explore patients', carers' and researchers' experiences and views in relation to the quality of PPI practice and provision of appropriate support for PPI members. METHODS: This protocol outlines the longitudinal, mixed methodological approach that will be taken. Qualitative and quantitative data will be collected via baseline and repeated questionnaires, document review and semi-structured interviews. Both PPI members and researchers will be invited to participate in this study. The two-year data collection period will enable evaluation of PPI throughout the entire research cycle. An integrated approach will be taken to data analysis, using inductive thematic analysis and descriptive and repeated measures analyses, to address specified study aims. DISSEMINATION: Findings from this study will inform practical guidance to support self-harm and suicide researchers in effectively involving people with experiential knowledge in their research. Analyses will offer insight into the effect of PPI throughout the research process and assess changes in PPI members' and researchers' experiences of involvement across a two-year period

Alternative medicine · Data collection · Harm · Medical education · Mental health · Psychiatry · Qualitative research · Thematic analysis · Applied Psychology · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Mental Health Treatment and Access · Psychology · Social Psychology