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Respecting relational agency in the context of vulnerability

What can research ethics learn from the social sciences

Bibliographic Data

ID21504175
AuthorsJ G van der Roest (0000-0002-0496-3205, Nuffield Department of Population Health, Ethox Centre and Wellcome Centre for Ethics & Humanities University of Oxford Oxford UK, corresponding author), Busisiwe Nkosi (0000-0002-7084-3252, Africa Health Research Institute KwaZulu‐Natal South Africa), Janet Seeley (0000-0002-0583-5272, Africa Health Research Institute KwaZulu‐Natal South Africa), Sassy Molyneux (0000-0001-9522-416X, Department of Tropical Medicine University of Oxford and KEMRI Wellcome Trust Research Programme Kilifi Kenya), Maureen Kelley (0000-0001-8230-5315, Nuffield Department of Population Health, Ethox Centre and Wellcome Centre for Ethics & Humanities University of Oxford Oxford UK)
Year2023
Volume37
Issue4
Pages379-388
Publication date2023-05-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueBioethics (JOURNAL)
Journal identifiersISSN: 0269-9702 • E-ISSN: 1467-8519
PublisherWiley (PUBLISHER • GB)
DOI10.1111/bioe.13139
PMID36709500
OpenAlexW4318449990
LanguageEN
Citations received11
References cited1

Despite advances in theory, often driven by feminist ethicists, research ethics struggles in practice to adequately account for and respond to the agency and autonomy of people considered vulnerable in the research context. We argue that shifts within feminist research ethics scholarship to better characterise and respond to autonomy and agency can be bolstered by further grounding in discourses from the social sciences, in work that confirms the complex nature of human agency in contexts of structural and other sources of vulnerability. We discuss some of the core concepts and critiques emerging from the literature on women and children's agency in under‐resourced settings, highlighting calls to move from individualistic to relational models of agency, and to recognise the ambiguous, value‐laden, and heterogeneous nature of the concept. We then draw out what these conceptual shifts might mean for research ethics obligations and guidance, illustrating our analysis using a case vignette based on research ethics work conducted in South Africa. We conclude that if research practices are to be supportive of agency, it will be crucial to scrutinise the moral judgements which underpin accounts of agency, derive more situated definitions of and responses to agency, and enable people and participants to influence these based on their own experiences and self‐perceptions

Autonomy · Engineering ethics · Epistemology · Moral agency · Political science · Research ethics · Scholarship · Situated · Social science · Sociology · Vignette · Ethics in Clinical Research · Ethics in medical practice · Law · Psychology · Qualitative Research Methods and Ethics · Social Psychology

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Unique citing works11
Citations per year3,67
Citation span2023 - 2026 (4)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 11
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