Chronic illness and informal carers
Non-persons' in the health system, neither carers, workers or citizens
Bibliographic Data
| ID | 3607619 |
|---|---|
| Authors | Claire Williams (0000-0002-0791-744X), Claire R Williams (0000-0001-5467-149X, Flinders University, corresponding author) |
| Year | 2012 |
| Volume | 21 |
| Issue | 1 |
| Pages | 58-68 |
| Publication date | 2012-03-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Health Sociology Review (JOURNAL) |
| Journal identifiers | ISSN: 1446-1242 • E-ISSN: 1839-3551 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.5172/hesr.2012.21.1.58 |
| OpenAlex | W2071255559 |
| Language | EN |
| Citations received | 8 |
| References cited | 31 |
I give an account of disquieting experiences in relation to my treatment and those with chronic illness in the acute system during my 5 years’ experience as an informal caregiver. People with chronic illness (and their caregivers), particularly stroke survivors face a biased, frustrating and even dangerous acute care hospital system where they are second class. Well-being and stability from rehabilitation and self-management can be undermined. Dow and McDonald’s (2007) concept: ‘disenfranchised care contractors’ within early discharge and ‘hospital in the home’ programs is generalised more broadly. The studies that initiated Hospital at Home programs are scrutinised. The Australian medical system relies on informal carers in a fundamental way but still does not identify or acknowledge them despite the presence of laws such as the Carers Recognition Act (2005). A new concept argues informal caregivers ‘do social bonds’ at a deep level, weaving the social fabric into a denser structure. But as part of the private world, the formal system treats them routinely with disrespect and they can be manipulated to obtain their participation in early discharge programs and long term care
Political science · Project commissioning · Publishing · Sociology · Chronic Disease Management Strategies · Diabetes Management and Education · Healthcare innovation and challenges · Law · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Rehabilitation
‘Re-Engineering the Workforce to Meet Service Needs’
Crafting a Subjective Experience of a Rehabilitative Facility
Negotiating the care-giving role
Social participation and family carers of people living with dementia in Australia
Autoethnography in Health Research
Impacts of regulatory processes on the experiences of carers of people in LGBTQ communities living with mental illness or experiencing a mental health crisis
Improving Primary Care for Patients With Chronic Illness
Validation of a Caregiver Strain Index
Self-management education
A caring society? Care and the dilemmas of human service in the 21st century
Home-based palliative care in Sydney, Australia
Contextualising the ‘Crisis in Aged Care’ in Australia
Opencut
System induced setbacks in stroke recovery
The Politics of Field Research
Going public as an Aids family caregiver
Daily geographies of caregivers
Introduction
Care, Work and Feeling
Analyzing Analytic Autoethnography
Analytic Autoethnography
| Unique citing works | 6 |
|---|---|
| Citations per year | 0,62 |
| Citation span | 2013 - 2019 (7) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 8 |