Lisa D Hawke
Datos Biográficos
| ID | 355259 |
|---|---|
| NOMBRE | Lisa D Hawke |
| NOMBRES | Lisa D |
| APELLIDO | Hawke |
| FIRMA | HAWKE L D |
| AFILIACIONES | Centre for Addiction and Mental Health |
| ORCID | 0000-0003-1108-9453 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 49 |
| TOTAL DE CITAS | 29 |
| TOTAL COMO AUTOR | 49 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 3 |
Guidelines, Frameworks, and Trainings on Lived Experience and Caregiver Engagement in Research
Centre for Addiction and Mental HealthIndividuals with lived and living experience of health challenges and family members/caregivers are experts of their experience and are key knowledge keepers in research about their needs [1].Increasingly, they are engaged as advisors, coresearchers, or equal partners in research projects.In these roles, they advise, collaborate on, co-produce, co-create, or lead many aspects of research projects.Possible con…
Climate change experiences among women with psychiatric illness – a qualitative exploration of lived experiences and service needs
“A sense of community.” A qualitative descriptive study on how to build relationships and rapport with people with lived/living experience and caregivers engaged in mental health and substance use hea…
Engaging people with lived/living experience (PLLEX) and caregivers (-C) is becoming more widely adopted in mental health and substance use health research. Their engagement meaningfully improves the relevance and impact of research outcomes. Yet, authentic engagement can be difficult to achieve without building and maintaining strong relationships with PLLEX-C. This qualitative descriptive study explores the perspectives of PLLEX-C engaged in me…
Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research
‘Working Together to Meet in the Middle’. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research
Writing Patient Engagement Effectively Into Grant Applications
Engaging people with lived/living experience and caregivers in research (also known as ‘patient engagement’ or ‘patient and public involvement’) has many benefits to research, to the community, and to the people involved in the process [1]. Engagement is increasingly valued by many funding bodies [2, 3] as being best practice when possible. However, funding barriers have been described as getting in the way of authentic engagement [4]. It is ther…
Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research
BACKGROUND: There is increasing recognition of the value of engaging people with lived and living experience and caregivers in mental health and substance use health research, in roles such as advisors, collaborators, and co-researchers. While tools and resources are required to support teams in conducting authentic engagement, it is unclear what is most needed by academic researchers and those with lived/living experience. This study aimed to id…
“It’s Something That Will Stay With Me.”
Photovoice is a participatory visual methodology that can be used to collect rich qualitative insights into sensitive issues. Photovoice lends itself to a co-production framework. This qualitative study evaluates the experience of participating in a co-produced photovoice project in a Recovery College setting. A sample of 18 participants participated in this study, which consisted of three rounds of seven photography workshops, followed by focus …
Understanding the impact of an integrated Housing First, mental health, and addiction service model for youth experiencing homelessness and concurrent disorders
Gaps in the Engagement of People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Health Research
BACKGROUND: People with lived/living experience and family/caregivers (PLLEX-C) can be engaged in mental health and substance use health research in roles such as advisors, collaborators, and co-researchers. While there is a substantial body of research describing the barriers and facilitators to effective lived experience engagement, the actual contributions that PLLEX-C are making to the research remains under-explored. This qualitative descrip…
Co‐Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research
INTRODUCTION: There is a move towards engaging people with lived experience and families (PWLE/F)-also referred to as PWLE/F engagement-in mental health and/or substance use research. However, PWLE/F engagement is inadequately reported on in mental health and/or substance use research papers. OBJECTIVE: To understand what PWLE/F and researchers perceive are important components to report on related to engagement in mental health and/or substance …
Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental Health and Substance Use Health Research
INTRODUCTION: People with lived experience of mental health and/or substance use conditions and their families (PWLE) are increasingly engaged in research, yet rigorous guidelines for engagement are lacking. This study aims to co-design best practice guidelines to support the authentic, meaningful engagement of PWLE in mental health and/or substance use health research. METHODS: A multi-panel modified Delphi study was conducted with 61 expert pan…
‘Every Voice Matters’
BACKGROUND: The engagement of people with lived experience (PWLE) of mental health and substance use health challenges in the co-production of health services, programming and research has many benefits, but how co-production impacts those involved remains unclear. Recovery Colleges are low-barrier, generally co-produced education programmes focused on mental health and wellness. Designed to support individuals on their personal recovery journeys…
Are we out of the woods yet? Youth-developed recommendations on recovery from the Covid-19 pandemic
Findings indicate the need for stronger partnerships between schools, community-based MHSU services, and hospitals, and job opportunities that pay a living wage
Youth-developed recommendations on public health planning for future pandemics or public health emergencies
For Canada to move forward in a relevant, efficient, and ethically sound manner, decisions must be guided by the population that these decisions affect. These recommendations can be used to guide Canada's strategies and policies to prepare for future public health emergencies and pandemics, prioritizing the needs of youth, families/caregivers, and communities
Lived Experience and Family Engagement in Mental Health and Substance use Health Research
INTRODUCTION: People with lived and living experience (PWLLE) and family members (F) can engage in mental health and substance use health research beyond participant roles, as advisors, co-researchers, equal partners and research leads. However, implementing meaningful and effective engagement is complex. METHODS: This article profiles five research initiatives involving different lived experience engagement structures, situated in a single terti…
‘Is It Safe? Is it not?’ A Youth‐Led Photovoice Study of Youth Perspectives of Covid‐19 Vaccine Confidence
BACKGROUND: Youth have been uniquely affected by the COVID-19 pandemic. Despite high rates of COVID-19 infection, youth had one of the lowest vaccine uptake rates. Certain characteristics can affect vaccine uptake, such as mental health and substance use, but it is important to understand uptake for an effective response to pandemics. OBJECTIVE: This study examined the perspectives of youth with mental health or substance use concerns on COVID-19…
Lived experience and family engagement in psychiatry research
Youth not engaged in education, employment, or training
This study identified employment, education, and training service preferences among Upcoming youth. The findings indicate a need to create a service model that supports holistic skills building, mental health and wellness, and long-term school and job opportunities
Integrated Youth Service Preferences of Caregivers of Justice-Involved Youth
Data gleaned from this analysis provides an understanding of what components of IYS models may help to engage caregivers of justice-involved youth
I Think Peer Support Helps to Demystify People Who Have Mental Health Issues and Helps to Remove That Stigma”
Reaching Youth With Reliable Information During the Covid-19 Pandemic
As the COVID-19 pandemic evolves, it is important to continue providing accurate updates and public health information to various target audiences. In support of such efforts, this study aims to understand how youth have accessed information about COVID-19 and to record their perspectives on how such information is best communicated. As part of a larger longitudinal study, 463 youth (M = 21.2 years, SD = 2.2) were surveyed about their sources of …
Changes to coping and its relationship to improved wellbeing in the optimal health program for chronic disease
Adaptive-style coping strategies are associated with favourable mental health and quality of life outcomes among individuals with chronic disease. The Optimal Health Program (OHP) is a psychosocial self-efficacy program that empowers individuals to be active leaders in their health and wellness management. This study aimed to evaluate the impact of the OHP on coping styles. Adults with Type 1 or Type 2 diabetes, chronic kidney disease, stroke sur…
The elephant in the room
Exploring the impact of engagement in mental health and substance use research
Mental health among transgender and gender diverse youth
Objective: The coronavirus 2019 (COVID-19) pandemic is raising concerns about mental health across the population Because transgender and gender-diverse youth have particular mental health vulnerabilities, this study examines their mental health challenges during the early stages of the pandemic Method: A cross-sectional survey was conducted in the early COVID-19 pandemic period, which included 29 transgender and gender-diverse youth and 593 cisg…
Not in employment, education or training
Youth who are not engaged in employment, education or training (NEET) face multiple health, economic and psychosocial challenges. Despite the popularity of the NEET metric internationally, there is a paucity of research describing Canadian NEET youth. The proportion of NEET youth aged 12 to 24 presenting for services across multiple service sectors in Canada was examined. Their sociodemographic characteristics and mental health concerns were comp…
Exploring Peer Support Services for Youth Experiencing Multiple Health and Social Challenges in Canada
The Canadian youth services system is fragmented with less than one third of youth accessing the mental health services they need. Experts have called for systems transformation that will increase the integration of youth services and take advantage of complementary services, such as peer supports. Further, researchers have suggested that there is a need to identify the unique contribution and underlying mechanisms that support client recovery wi…
Are we out of the woods yet? Youth-developed recommendations on recovery from the Covid-19 pandemic
Findings indicate the need for stronger partnerships between schools, community-based MHSU services, and hospitals, and job opportunities that pay a living wage
I Think Peer Support Helps to Demystify People Who Have Mental Health Issues and Helps to Remove That Stigma”
La psychoéducation pour les troubles bipolaires
Le trouble bipolaire est une maladie chronique caractérisée par une récurrence des rechutes thymiques, et par des symptômes résiduels interférant avec le fonctionnement de l’individu. La pharmacothérapie demeure la pierre angulaire du traitement. Malheureusement, la médication a des effets limités sur certains aspects de la maladie, sans compter qu’une grande proportion de patients présente des problèmes d’observance à leur traitement pharmacolog…
Reducing stigma toward people with bipolar disorder
BACKGROUND: Stigma toward people with bipolar disorder (BD) is pervasive and can have many negative repercussions. Common approaches to stigma reduction include education and intergroup contact. From this perspective, the Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder (CREST.BD) and Canadian Network for Mood and Anxiety Treatments (CANMAT) partnered to develop an intervention to combat stigma. The result is a persona…
Implementation of a youth‐adult partnership model in youth mental health systems research
BACKGROUND: By integrating Youth-Adult Partnerships (Y-APs) in organizational decision making and programming in health-care settings, youth can be engaged in decisions that affect them in a way that draws on their unique skills and expertise. Despite challenges, Y-APs can have many benefits for youth and adults alike, as well as for the programmes and initiatives that they undertake together. OBJECTIVE: This article describes the development, im…
Not in employment, education or training
Youth who are not engaged in employment, education or training (NEET) face multiple health, economic and psychosocial challenges. Despite the popularity of the NEET metric internationally, there is a paucity of research describing Canadian NEET youth. The proportion of NEET youth aged 12 to 24 presenting for services across multiple service sectors in Canada was examined. Their sociodemographic characteristics and mental health concerns were comp…
Engaging youth in research planning, design and execution
Impacts of Covid-19 on Youth Mental Health, Substance Use, and Well-being
Objectives: The current novel coronavirus disease of 2019 (COVID-19) pandemic presents a time-sensitive opportunity to rapidly enhance our knowledge about the impacts of public health crises on youth mental health, substance use, and well-being. This study examines youth mental health and substance use during the pandemic period. Methods: A cross-sectional survey was conducted with 622 youth participants across existing clinical and community coh…
Early cannabis initiation
INTRODUCTION: Early cannabis use is associated with mental health and substance use (MHSU) challenges into adulthood. Given the vulnerability of youth who use cannabis, it is important to understand their clinical profiles and markers of risk. This cross-sectional descriptive study examines youth who began using cannabis during early adolescence compared to those who initiated at an older age. METHODS: 634 youth and emerging adults (age M = 19.5,…
Innovate Research
BACKGROUND: Engaging youth in research provides substantial benefits to research about youth-related needs, concerns and interventions. However, researchers require training and capacity development to work in this manner. METHODS: A capacity-building intervention, INNOVATE Research, was co-designed with youth and adult researchers and delivered to researchers in three major academic research institutions across Canada. Fifty-seven attendees part…
Enhancing researcher capacity to engage youth in research
BACKGROUND: There is increasing emphasis on engaging youth in research about youth, their needs, experiences and preferences, notably in health services research. By engaging youth as full partners, research becomes more feasible and relevant, and the validity and richness of findings are enhanced. Consequently, researchers need guidance in engaging youth effectively. This study examines the experiences, needs and knowledge gaps of researchers. M…
The Wellness Quest
BACKGROUND: Less than 20% of youth who experience mental health difficulties access and receive appropriate treatment. This is exacerbated by barriers such as stigma, confidentiality concerns and lack of mental health literacy. A youth team developed the Wellness Quest: a health literacy tool to enable help-seeking youth to advocate for themselves. OBJECTIVE: To evaluate the content, presentation and utility of the Wellness Quest tool among youth…
Evaluating the effectiveness of the Family Connections program for caregivers of youth with mental health challenges, part II
Background The Family ConnectionsTM (FC) program is a 12‐week support and skill‐training program for caregivers of youth with mental health challenges. The intervention was originally developed with a focus on borderline personality disorder (BPD). It is important to understand the experiences of caregivers in such interventions, as well as its applicability beyond BPD, for the purposes of evaluation and ongoing program improvement. Objective To …
‘It reshaped how I will do research’
BACKGROUND: Engaging youth and family members as active partners in research and service design offers great promise in improving projects. In youth mental health, recent research has highlighted the value of youth and family engagement. However, research on the experience and impacts of engagement is sparse. OBJECTIVE: This study explores the project team's experience of youth and family engagement in the design and development of the YouthCan I…
Evaluating the effectiveness of the Family Connections program for caregivers of youth with mental health challenges, part I
Caregivers were involved in the facilitation of FC. A person with lived experience was involved in analysing the data, reporting the results, and drafting the manuscript
Shortening and validation of the Patient Engagement In Research Scale (Peirs) for measuring meaningful patient and family caregiver engagement
Objective To shorten the Patient Engagement In Research Scale (PEIRS) to its most essential items and evaluate its measurement properties for assessing the degree of patients’ and family caregivers’ meaningful engagement as partners in research projects. Methods A prospective cross‐sectional web‐based survey in Canada and the USA, and also paper‐based in Canada. Participants were patients or family caregivers who had engaged in research projects …
The Study of Developmental Risk Factors for Early Fire Involvement
Mental health among transgender and gender diverse youth
Objective: The coronavirus 2019 (COVID-19) pandemic is raising concerns about mental health across the population Because transgender and gender-diverse youth have particular mental health vulnerabilities, this study examines their mental health challenges during the early stages of the pandemic Method: A cross-sectional survey was conducted in the early COVID-19 pandemic period, which included 29 transgender and gender-diverse youth and 593 cisg…
Exploring Peer Support Services for Youth Experiencing Multiple Health and Social Challenges in Canada
The Canadian youth services system is fragmented with less than one third of youth accessing the mental health services they need. Experts have called for systems transformation that will increase the integration of youth services and take advantage of complementary services, such as peer supports. Further, researchers have suggested that there is a need to identify the unique contribution and underlying mechanisms that support client recovery wi…
The mental health of young people who are not in education, employment, or training
Embedding lived experience into mental health academic research organizations
BACKGROUND: As part of a growing emphasis on engaging people with lived experience of mental health conditions in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to acad…
Learning Through a Pandemic
The objective of this paper was to examine the school-related experiences of youth during the COVID-19 pandemic. Participants represented both clinical and community youth aged 14 to 28 who were sampled as part of a larger study. Feedback from youth attending school during the pandemic was qualitatively examined and youth who planned to attend school prior to the pandemic and did ( n = 246) and youth who planned to attend but did not ( n = 28) we…
Intervention outcome preferences for youth who are out of work and out of school
Young people want interventions to be individualized and integrated, providing a high level of support for their educational and employment pursuits as well as their mental health and well-being. Incorporating youth's perspectives when designing interventions can increase intervention relevance and potentially service uptake, helping youth continue to pursue their educational and vocational goals
Reaching Youth With Reliable Information During the Covid-19 Pandemic
As the COVID-19 pandemic evolves, it is important to continue providing accurate updates and public health information to various target audiences. In support of such efforts, this study aims to understand how youth have accessed information about COVID-19 and to record their perspectives on how such information is best communicated. As part of a larger longitudinal study, 463 youth (M = 21.2 years, SD = 2.2) were surveyed about their sources of …
Changes to coping and its relationship to improved wellbeing in the optimal health program for chronic disease
Adaptive-style coping strategies are associated with favourable mental health and quality of life outcomes among individuals with chronic disease. The Optimal Health Program (OHP) is a psychosocial self-efficacy program that empowers individuals to be active leaders in their health and wellness management. This study aimed to evaluate the impact of the OHP on coping styles. Adults with Type 1 or Type 2 diabetes, chronic kidney disease, stroke sur…
The elephant in the room
Exploring the impact of engagement in mental health and substance use research
Mental health (33 obras) · Psychology (33 obras) · Psychiatry (26 obras) · Medicine (25 obras) · Mental Health and Patient Involvement (23 obras) · Political science (18 obras) · Qualitative research (17 obras) · Health Policy Implementation Science (14 obras) · Medical education (13 obras) · Sociology (13 obras)