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Exploring the impact of engagement in mental health and substance use research

A scoping review and thematic analysis

Datos Bibliográficos

ID19506910
AutoresNatasha Y Sheikhan (0000-0002-0471-4735, Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada), Kerry Kuluski (0000-0002-6377-6653, Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada), Shelby McKee (Centre for Addiction and Mental Health Toronto Ontario Canada), Melissa Hiebert (0009-0000-3493-642X, Centre for Addiction and Mental Health Toronto Ontario Canada), Lisa D Hawke (0000-0003-1108-9453, Centre for Addiction and Mental Health Toronto Ontario Canada, autor de correspondencia)
Año2023
Volumen26
Número5
Páginas1806-1819
Fecha de publicación2023-10-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth Expectations (JOURNAL)
Identificadores de la revistaISSN: 1369-6513 • E-ISSN: 1369-7625
EditorialWiley (PUBLISHER • GB)
DOI10.1111/hex.13779
PMID37282732
OpenAlexW4379599895
IdiomaEN
Citas recibidas18
Referencias citadas94

Geography · Mental health · Psychiatry · Psychotherapist · Qualitative research · Social science · Sociology · Substance use · Thematic analysis · Thematic map · Applied Psychology · Health Policy Implementation Science · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology

  • Exploring the impact of engagement in mental health and substance use research

    Open Access•Natasha Y Sheikhan, Kerry Kuluski et al.•Health Expectations•2023

  • “A sense of community.” A qualitative descriptive study on how to build relationships and rapport with people with lived/living experience and caregivers engaged in mental health and substance use health research

    Open Access•Diana Kaliza, Wuraola Dada-Phillips et al.•Social Sciences & Humanities Open•2026

  • The engagement of people with lived experiences in substance use research

    Open Access•Catherine Kim, Catherine J S Kim•Frontiers in Public Health•2025

  • Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research

    Open Access•Lisa D Hawke, Abigail Amartey et al.•Health Expectations•2026

  • ‘Working Together to Meet in the Middle’. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research

    Open Access•Lisa D Hawke, Joshua Dunphy et al.•Health Expectations•2026

  • Frameworks Used to Engage Postsecondary Students in Campus Mental Health Research

    Open Access•Kristin Cleverley, Soha Salman et al.•Health Expectations•2025

  • Co‐Designing Lived Experience Guide Support for First Responder Mental Health

    Open Access•Hussain-Abdulah Arjmand, Tim Peck et al.•Health Expectations•2025

  • Gaps in the Engagement of People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Health Research

    Open Access•Lisa D Hawke, Jingyi Hou et al.•Health Expectations•2025

  • Lived experience and family engagement in psychiatry research

    Open Access•Lisa D Hawke, Natasha Y Sheikhan et al.•Health Expectations•2024

  • The elephant in the room

    Open Access•Lisa D Hawke, Connie Putterman et al.•Health Expectations•2023

  • Co‐Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research

    Open Access•Natasha Y Sheikhan, Kerry Kuluski et al.•Health Expectations•2025

  • ‘All About My Ideal Mental Health Service’

    Open Access•Michele Rocelli, Ludovica Aquili et al.•Health Expectations•2024

  • Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental Health and Substance Use Health Research

    Open Access•Lisa D Hawke, Wuraola Dada‐Phillips et al.•Health Expectations•2025

  • Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research

    Open Access•Lisa D Hawke, Abigail Amartey et al.•Health Expectations•2026

  • ‘Every Voice Matters’

    Open Access•Lisa D Hawke, Shelby McKee et al.•Health Expectations•2025

  • How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research

    Open Access•Jo Evans, Samuel Keightley et al.•Health Expectations•2026

  • “It’s Something That Will Stay With Me.”

    Open Access•Lisa D Hawke, Shelby McKee et al.•International Journal of…•2026

  • Searching for relief from suffering

    Open Access•Hamer Bastidas-Bilbao, Vicky Stergiopoulos et al.•Social Science & Medicine•2023

  • A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities

    Open Access•Jo Brett, Sophie Staniszewska et al.•The Patient - Patient-Centered…•2014

  • Research co-design in health

    Open Access•Patrick Slattery, Alexander Saeri et al.•Health Research Policy and Systems•2020

  • Patient engagement in research

    Open Access•Juan Pablo Domecq, Gabriela Prutsky et al.•BMC Health Services Research•2014

  • GRIPP2 reporting checklists

    Open Access•Sophie Staniszewska, Jo Brett et al.•Research Involvement and Engagement•2017

  • From tokenism to empowerment

    Open Access•Josephine Ocloo, Rachel Matthews•BMJ Quality & Safety•2016

  • Scoping studies

    Open Access•Danielle Levac, Heather Colquhoun et al.•Implementation Science•2010

  • Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach

    Open Access•Zachary Munn, Micah D J Peters et al.•BMC Medical Research Methodology•2018

  • A research approach for co‐designing education with healthcare consumers

    Open Access•Gabrielle Brand, Carli Sheers et al.•Medical Education•2021

  • The impact of patient and public involvement in health research versus healthcare

    Open Access•Anton Modigh, Filipa Sampaio et al.•Health Policy•2021

  • Frameworks for supporting patient and public involvement in research

    Open Access•Trisha Greenhalgh, Lisa Hinton et al.•Health Expectations•2019

  • Engaging youth in research planning, design and execution

    Open Access•Lisa D Hawke, Jacqueline Relihan et al.•Health Expectations•2018

  • Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults

    Open Access•M Isabela Troya, Carolyn A Chew-Graham et al.•Health Expectations•2019

  • Bringing together coproduction and community participatory research approaches

    Open Access•Colin Guthrie King, Colin King et al.•Health Expectations•2019

  • The impact of Patient and Public Involvement in the SlowMo study

    Open Access•Kathryn Greenwood, Sam Robertson et al.•Health Expectations•2022

  • An engaged approach to exploring issues around poverty and mental health

    Open Access•F Thomas, Lorraine Hansford et al.•Health Expectations•2021

  • Research and recovery

    Open Access•Catherine Matheson, Elizabeth Weightman•Health Expectations•2021

  • Innovate Research

    Open Access•Lisa D Hawke, Karleigh Darnay et al.•Health Expectations•2020

  • ‘It reshaped how I will do research’

    Open Access•Natasha Y Sheikhan, Lisa D Hawke et al.•Health Expectations•2021

  • Embedding lived experience into mental health academic research organizations

    Open Access•Lisa D Hawke, Natasha Y Sheikhan et al.•Health Expectations•2022

  • Implementation of a youth‐adult partnership model in youth mental health systems research

    Open Access•Olivia Heffernan, Olivia S Heffernan et al.•Health Expectations•2017

  • Getting it right! Enhancing youth involvement in mental health research

    Open Access•Lauren Mawn, Patrick Welsh et al.•Health Expectations•2016

  • Finding harmony within dissonance

    Open Access•Gillian Mulvale, Jenn Green et al.•Health Expectations•2021

  • Patient involvement in developing a patient‐targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.Feedback.GP

    Open Access•Tharanya Seeralan, Martin Härter et al.•Health Expectations•2021

  • Enhancing researcher capacity to engage youth in research

    Open Access•Lisa D Hawke, Karleigh Darnay et al.•Health Expectations•2020

  • Measuring the impact of participatory research in psychiatry

    Open Access•Phoebe Friesen, Sapfo Lignou et al.•Health Expectations•2021

  • A devolved model for public involvement in the field of mental health research

    Open Access•Pam Moule, Rosie Davies•Health Expectations•2016

  • Patient and public engagement in research and health system decision making

    Open Access•Aurelien Boivin, Audrey L'Espérance et al.•Health Expectations•2018

  • Exploring the impact of engagement in mental health and substance use research

    Open Access•Natasha Y Sheikhan, Kerry Kuluski et al.•Health Expectations•2023

  • Reflections, impact and recommendations of a co‐produced qualitative study with young people who have experience of mental health difficulties

    Open Access•Lindsay H Dewa, Anna Lawrence‐Jones et al.•Health Expectations•2021

  • ‘Dignity and respect’

    Open Access•Alison Faulkner, Sarah Carr et al.•Health Expectations•2021

  • Service user involvement in the coproduction of a mental health nursing metric

    Open Access•Mary Chambers, Susan Mcandrew et al.•Health Expectations•2017

  • ‘I felt like a human being’—An exploratory, multi‐method study of refugee involvement in the development of mental health intervention research

    Open Access•Georgina Warner, Z Baghdasaryan et al.•Health Expectations•2021

  • Patient and public involvement in mental health research

    Open Access•Alison Faulkner, Mary Chambers•Health Expectations•2021

  • Transformation Beyond Covid-19

    Open Access•Lauren Walker, Suzanne Crosland et al.•Frontiers in Psychiatry•2022

  • Housing and Support Narratives of People Experiencing Mental Health Issues

    Open Access•Ellie Fossey, Carol Harvey et al.•Frontiers in Psychiatry•2020

  • Participant, peer and Peep

    Open Access•Alissa Greer, Alissa M Greer et al.•BMC Public Health•2018

  • If You Want to Know About the Book, Ask the Author”

    Miraj U Desai, Chyrell Bellamy et al.•Behavioral Medicine•2019

  • Developing a Community-Based Participatory Research Model to Engage Transition Age Youth Using Mental Health Service in Research

    Alisa K Lincoln, Ryan C Borg et al.•Family & Community Health•2014

  • Co-producing Randomized Controlled Trials

    Open Access•Lucy Goldsmith, Rosaleen Morshead et al.•Frontiers in Sociology•2019

  • One size fits all? What counts as quality practice in (reflexive) thematic analysis

    Braun, Victoria Clarke•Qualitative Research in Psychology•2020

  • Producing different analytical narratives, coproducing integrated analytical narrative

    Steve Gillard, Rohan Borschmann et al.•International Journal of Social…•2011

  • Stakeholders’ Perspectives on Community‐Based Participatory Research to Enhance Mental Health Services

    Open Access•Andrew D Case, Ronald Byrd et al.•American Journal of Community…•2014

  • Scoping studies

    Hilary Arksey, Lisa O’malley•International Journal of Social…•2005

  • The Three Rs

    Open Access•Carolina Balazs, Carolina L Balazs et al.•Environmental Justice•2013

  • The Social and Emotional Impact of Involving Individuals With Mental Illness in the Research Process

    Open Access•Aliza Werner-Seidler, Aliza Werner‐seidler et al.•Qualitative Health Research•2019

  • Community-based participatory research in a heavily researched inner city neighbourhood

    Open Access•Will Damon, Callie Callon et al.•Social Science & Medicine•2017

Obras citantes distintas18
Citas por año6
Intervalo de citas2023 - 2026 (4)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 17
Ethnos_APP • Proyecto Open Source • Licencia MIT • Frontend v2.0.0 • Privacidad y Cookies • Documentación de la API: api.ethnos.app/docs • Código de la API: GitHub • DOI: 10.5281/zenodo.17049435 • Código del Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae