Wendy Mitchell
Datos Biográficos
| ID | 3976114 |
|---|---|
| NOMBRE | Wendy Mitchell |
| NOMBRES | Wendy |
| APELLIDO | Mitchell |
| FIRMA | MITCHELL W |
| AFILIACIONES | University of York |
| ORCID | 0000-0003-0862-7935 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 28 |
| TOTAL DE CITAS | 155 |
| TOTAL COMO AUTOR | 29 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1999 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2022 |
| ÍNDICE H | 7 |
Personalisation
Lifespan Navigation-Building Framework for Children/Youth With Neurodisability and Their Families
This study served to conceptualize neurodisability (ND) navigation-building. Capacity-building toward wide-reaching ND navigation or help-seeking service lacks empirical evidence. Researchers widely agree that a system-wide framework is absent. While research emphasizes service-level findings, other jurisdiction- and policy-level insights are lacking. Using Collective Community Impact and Participatory Action Research, government and nongovernmen…
Maximising the engagement of older people with mental health needs and dementia with social care
Older people with mental health needs and dementia often face difficulties with daily living and community participation, requiring the intervention of social care services. However, cognitive and emotional needs often mean that mainstream support is not appropriate. In England, mental health support workers may attempt to address these concerns, to prevent mounting care needs and the potential for institutional care. Yet, their work has not been…
Dementia enquirers
This paper explores the Dementia Enquirers approach to dementia research, and the 10 local projects which have been funded in the first wave of the programme. The paper is written by six people with dementia with expertise by experience, supported by a traditional academic with expertise by research. This co-production enables the voices of people with dementia to be heard, and expands the field of disability studies. The authors discuss problems…
Personalisation
Carers, Choice and Personalisation
Despite the long-term strategic shift to personalisation, with its emphasis on choice and control for those who use public services, there has been relatively little policy consideration of family carers’ choice within personalisation. The relationship between carers and personalisation also remains under-researched. This article is based on a review of existing knowledge around personalisation. It shows that carer choice is highly complex, not l…
Carers' Roles in Personal Budgets
Adult social care in England emphasises the service and support preferences of disabled and older people. Personal budgets play a central role in this development. Carers in England have also secured rights to assessment and support in their care-giving roles. However, these policies have developed largely separately, with little consideration of the interdependencies between disabled and older people and their carers. There is limited evidence d…
Debates in Personalisation
This unique book brings together, for the first time, advocates and critics of the personalisation agenda in English social care services to debate key issues relating to personalisation. Perspectives from service users, practitioners, academics and policy commentators come together to give an account of the practicalities and controversies associated with the implementation of personalised approaches. The conclusion examines how to make sense of…
Making choices about medical interventions
Background Current western policy, including the UK, advocates choice for service users and their families, taking greater control and being more involved in decision making. However, children’s role in health decision making, especially from their own perspective, has received less research attention compared to doctors and parents’ perspectives. Objective To explore the perspective and experiences of disabled young people with degenerative cond…
Ambiguity in practice? Carers' roles in personalised social care in England
Carers play an ambiguous role within the personalisation paradigm currently shaping adult social care practice in England. Although carers have rights to assessments and support in their own right, these rights sit uneasily alongside the practices of assessment, support planning and personal budget (PB) allocation for older and disabled people. This paper reports how 14 dyads of older and learning disabled people with cognitive and/or communicati…
Debates in personalisation
Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …
Parents' accounts
Making choices in my life
User Participation in Health and Social Care Research
"User Participation in Health and Social Care Research: Voices, Values and Evaluation." Health, Risk & Society, 11(4), pp. 388–389
An Exemplary Scheme? An Evaluation of the Integrated Children's System
We outline selected central results from a formative evaluation of four pilot sites in England and Wales of the Integrated Children's System (ICS) – one part of the UK's e-Government strategy. We concentrate on the aspiration of the ICS towards ‘integration’ and ‘systematization’ of services within children's services, at local and national levels. We look in turn at, the use of the ICS as a foundation for aggregate statistical profiles; the expe…
Risk and adult social care
Risk is a central defining feature and area of concern in adult social care provision, but what do we actually know about how service users, carers and practitioners define and manage risk? This question is increasingly important as current policy advocates greater service user choice and control through a range of self-directed support mechanisms, and statutory duties and professional boundaries are challenged. This paper reports the results of …
The Integrated Children's System and disabled children
The Integrated Children's System (ICS) is premised on a single approach to assessment/review, ideally providing a more coherent, comprehensive and efficient system of electronic information recording and sharing among different groups of practitioners. Despite its holistic aims for all children in need, questions have been raised about the use of ICS with certain groups of children, especially those who do not follow normative patterns, such as d…
I'm Okay, You're Okay
In this paper the authors present their reflections on a U.K. government-funded study exploring mental health and employment. Conducting research on a sensitive theme with a potentially vulnerable group gave renewed focus to some social research issues, including consent and control, rapport building, managing and responding to emotion, and offering appropriate longer term support. The researchers discuss their personal approaches and experiences…
Research Review
The family in late modernity faces demographic change. However, it is still apparent that intergenerational relationships and exchanges of resources are valued. There is a growing literature on the important role that grandparents play in their children’s families. In contrast, there is limited research exploring the support grandparents provide to families with disabled children. This is an important gap in our knowledge, as families with disabl…
Better for the Break? Short Break Services for Children and Teenagers with Autistic Spectrum Disorders and their Families
Participation and partnerships in research
Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discu…
Quality Indicators
Current health and social care policy seeks to develop and refine standards of service quality. However, policies have so far largely focused upon statistically based service output indicators. Recognizing the importance and yet limitations of this, especially in services for disabled children and their families, this paper draws upon qualitative and quantitative data to explore indicators that are meaningful and relevant to disabled children and…
Information that informs rather than alienates families with disabled children
The importance to families with disabled children of relevant and accessible information about services has been illustrated in numerous studies and was re-emphasised by the Department of Health's 'quality protects' initiative. Indeed, the provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory pr…
I don't know what I'd do without our Mam' motherhood, identity and support networks
This paper explores the role and importance of kinship within the lives of 14 working class women as they seek to make sense of motherhood and their own self-identity as a young mother. Within late modernity, numerous discourses suggest that kin networks and the role and importance of kinship are in decline as ‘the family’ changes and adapts. Indeed, the idea of extended family support and networking is frequently viewed as a historically cozy im…
Situating young people's experiences of risk and identity
Within late modernity a sense of 'risk' and increased individualisation are theoretically much discussed and debated, especially ideas surrounding risk, risky behaviour and its impact upon identity construction. Drawing upon data from a recent Department of the Environment funded project exploring risk and risk management in young people's lives, this article moves beyond theory and official discourses of 'risk', in order to demonstrate the impor…
I'm Okay, You're Okay
In this paper the authors present their reflections on a U.K. government-funded study exploring mental health and employment. Conducting research on a sensitive theme with a potentially vulnerable group gave renewed focus to some social research issues, including consent and control, rapport building, managing and responding to emotion, and offering appropriate longer term support. The researchers discuss their personal approaches and experiences…
An Exemplary Scheme? An Evaluation of the Integrated Children's System
We outline selected central results from a formative evaluation of four pilot sites in England and Wales of the Integrated Children's System (ICS) – one part of the UK's e-Government strategy. We concentrate on the aspiration of the ICS towards ‘integration’ and ‘systematization’ of services within children's services, at local and national levels. We look in turn at, the use of the ICS as a foundation for aggregate statistical profiles; the expe…
Debates in personalisation
Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …
Contextualizing Risk and Danger
Current debates about the nature of risk in late modernity suggest that changing social structures and a weakening, or increasingly global mediation of social constraints associated with the old order, have given rise to a new set of risks and opportunities. Social inequalities continue to impact upon people's lives but from within the contingencies of individualizing processes of 'risk society'. Whilst it is acknowledged that there are differenc…
I don't know what I'd do without our Mam' motherhood, identity and support networks
This paper explores the role and importance of kinship within the lives of 14 working class women as they seek to make sense of motherhood and their own self-identity as a young mother. Within late modernity, numerous discourses suggest that kin networks and the role and importance of kinship are in decline as ‘the family’ changes and adapts. Indeed, the idea of extended family support and networking is frequently viewed as a historically cozy im…
Quality in services for disabled children and their families
Many discourses surround the concept of 'service quality', however, it continues to remain partial and ambiguous. This paper seeks to unpack 'quality' in services for disabled children and their families. Theoretical models are initially reviewed and then considered in relation to key policy guidelines, empirical data drawing upon parents' and children's experiences of 'quality' in services are presented. This paper demonstrates the many differen…
Ambiguity in practice? Carers' roles in personalised social care in England
Carers play an ambiguous role within the personalisation paradigm currently shaping adult social care practice in England. Although carers have rights to assessments and support in their own right, these rights sit uneasily alongside the practices of assessment, support planning and personal budget (PB) allocation for older and disabled people. This paper reports how 14 dyads of older and learning disabled people with cognitive and/or communicati…
Carers, Choice and Personalisation
Despite the long-term strategic shift to personalisation, with its emphasis on choice and control for those who use public services, there has been relatively little policy consideration of family carers’ choice within personalisation. The relationship between carers and personalisation also remains under-researched. This article is based on a review of existing knowledge around personalisation. It shows that carer choice is highly complex, not l…
The Integrated Children's System and disabled children
The Integrated Children's System (ICS) is premised on a single approach to assessment/review, ideally providing a more coherent, comprehensive and efficient system of electronic information recording and sharing among different groups of practitioners. Despite its holistic aims for all children in need, questions have been raised about the use of ICS with certain groups of children, especially those who do not follow normative patterns, such as d…
Information that informs rather than alienates families with disabled children
The importance to families with disabled children of relevant and accessible information about services has been illustrated in numerous studies and was re-emphasised by the Department of Health's 'quality protects' initiative. Indeed, the provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory pr…
Participation and partnerships in research
Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discu…
Leaving Special School
One of the most important changes within the life-course is the movement from 'childhood' to 'adulthood'. This takes place through many different dimensions of experience, for example, biological, legal, social, cultural, emotional and attitudinal. It is also important to recognise that the concepts, 'childhood' and 'adulthood' are ambiguous and hard to define [Jones, G. & Wallace, C. (1992) Youth, Family and Citizenship (Buckingham, Open Univers…
Maximising the engagement of older people with mental health needs and dementia with social care
Older people with mental health needs and dementia often face difficulties with daily living and community participation, requiring the intervention of social care services. However, cognitive and emotional needs often mean that mainstream support is not appropriate. In England, mental health support workers may attempt to address these concerns, to prevent mounting care needs and the potential for institutional care. Yet, their work has not been…
Dementia enquirers
This paper explores the Dementia Enquirers approach to dementia research, and the 10 local projects which have been funded in the first wave of the programme. The paper is written by six people with dementia with expertise by experience, supported by a traditional academic with expertise by research. This co-production enables the voices of people with dementia to be heard, and expands the field of disability studies. The authors discuss problems…
Parents' accounts
Making choices in my life
Better for the Break? Short Break Services for Children and Teenagers with Autistic Spectrum Disorders and their Families
Leaving Special School
One of the most important changes within the life-course is the movement from 'childhood' to 'adulthood'. This takes place through many different dimensions of experience, for example, biological, legal, social, cultural, emotional and attitudinal. It is also important to recognise that the concepts, 'childhood' and 'adulthood' are ambiguous and hard to define [Jones, G. & Wallace, C. (1992) Youth, Family and Citizenship (Buckingham, Open Univers…
Contextualizing Risk and Danger
Current debates about the nature of risk in late modernity suggest that changing social structures and a weakening, or increasingly global mediation of social constraints associated with the old order, have given rise to a new set of risks and opportunities. Social inequalities continue to impact upon people's lives but from within the contingencies of individualizing processes of 'risk society'. Whilst it is acknowledged that there are differenc…
Situating young people's experiences of risk and identity
Within late modernity a sense of 'risk' and increased individualisation are theoretically much discussed and debated, especially ideas surrounding risk, risky behaviour and its impact upon identity construction. Drawing upon data from a recent Department of the Environment funded project exploring risk and risk management in young people's lives, this article moves beyond theory and official discourses of 'risk', in order to demonstrate the impor…
Situating young people's experiences of risk and identity
Within late modernity a sense of 'risk' and increased individualisation are theoretically much discussed and debated, especially ideas surrounding risk, risky behaviour and its impact upon identity construction. Drawing upon data from a recent Department of the Environment funded project exploring risk and risk management in young people's lives, this article moves beyond theory and official discourses of 'risk', in order to demonstrate the impor…
Quality in services for disabled children and their families
Many discourses surround the concept of 'service quality', however, it continues to remain partial and ambiguous. This paper seeks to unpack 'quality' in services for disabled children and their families. Theoretical models are initially reviewed and then considered in relation to key policy guidelines, empirical data drawing upon parents' and children's experiences of 'quality' in services are presented. This paper demonstrates the many differen…
Information that informs rather than alienates families with disabled children
The importance to families with disabled children of relevant and accessible information about services has been illustrated in numerous studies and was re-emphasised by the Department of Health's 'quality protects' initiative. Indeed, the provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory pr…
I don't know what I'd do without our Mam' motherhood, identity and support networks
This paper explores the role and importance of kinship within the lives of 14 working class women as they seek to make sense of motherhood and their own self-identity as a young mother. Within late modernity, numerous discourses suggest that kin networks and the role and importance of kinship are in decline as ‘the family’ changes and adapts. Indeed, the idea of extended family support and networking is frequently viewed as a historically cozy im…
Participation and partnerships in research
Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discu…
Quality Indicators
Current health and social care policy seeks to develop and refine standards of service quality. However, policies have so far largely focused upon statistically based service output indicators. Recognizing the importance and yet limitations of this, especially in services for disabled children and their families, this paper draws upon qualitative and quantitative data to explore indicators that are meaningful and relevant to disabled children and…
Better for the Break? Short Break Services for Children and Teenagers with Autistic Spectrum Disorders and their Families
Research Review
The family in late modernity faces demographic change. However, it is still apparent that intergenerational relationships and exchanges of resources are valued. There is a growing literature on the important role that grandparents play in their children’s families. In contrast, there is limited research exploring the support grandparents provide to families with disabled children. This is an important gap in our knowledge, as families with disabl…
Risk and adult social care
Risk is a central defining feature and area of concern in adult social care provision, but what do we actually know about how service users, carers and practitioners define and manage risk? This question is increasingly important as current policy advocates greater service user choice and control through a range of self-directed support mechanisms, and statutory duties and professional boundaries are challenged. This paper reports the results of …
The Integrated Children's System and disabled children
The Integrated Children's System (ICS) is premised on a single approach to assessment/review, ideally providing a more coherent, comprehensive and efficient system of electronic information recording and sharing among different groups of practitioners. Despite its holistic aims for all children in need, questions have been raised about the use of ICS with certain groups of children, especially those who do not follow normative patterns, such as d…
I'm Okay, You're Okay
In this paper the authors present their reflections on a U.K. government-funded study exploring mental health and employment. Conducting research on a sensitive theme with a potentially vulnerable group gave renewed focus to some social research issues, including consent and control, rapport building, managing and responding to emotion, and offering appropriate longer term support. The researchers discuss their personal approaches and experiences…
User Participation in Health and Social Care Research
"User Participation in Health and Social Care Research: Voices, Values and Evaluation." Health, Risk & Society, 11(4), pp. 388–389
An Exemplary Scheme? An Evaluation of the Integrated Children's System
We outline selected central results from a formative evaluation of four pilot sites in England and Wales of the Integrated Children's System (ICS) – one part of the UK's e-Government strategy. We concentrate on the aspiration of the ICS towards ‘integration’ and ‘systematization’ of services within children's services, at local and national levels. We look in turn at, the use of the ICS as a foundation for aggregate statistical profiles; the expe…
Making choices in my life
Parents' accounts
Debates in Personalisation
This unique book brings together, for the first time, advocates and critics of the personalisation agenda in English social care services to debate key issues relating to personalisation. Perspectives from service users, practitioners, academics and policy commentators come together to give an account of the practicalities and controversies associated with the implementation of personalised approaches. The conclusion examines how to make sense of…
Making choices about medical interventions
Background Current western policy, including the UK, advocates choice for service users and their families, taking greater control and being more involved in decision making. However, children’s role in health decision making, especially from their own perspective, has received less research attention compared to doctors and parents’ perspectives. Objective To explore the perspective and experiences of disabled young people with degenerative cond…
Ambiguity in practice? Carers' roles in personalised social care in England
Carers play an ambiguous role within the personalisation paradigm currently shaping adult social care practice in England. Although carers have rights to assessments and support in their own right, these rights sit uneasily alongside the practices of assessment, support planning and personal budget (PB) allocation for older and disabled people. This paper reports how 14 dyads of older and learning disabled people with cognitive and/or communicati…
Debates in personalisation
Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …
Carers, Choice and Personalisation
Despite the long-term strategic shift to personalisation, with its emphasis on choice and control for those who use public services, there has been relatively little policy consideration of family carers’ choice within personalisation. The relationship between carers and personalisation also remains under-researched. This article is based on a review of existing knowledge around personalisation. It shows that carer choice is highly complex, not l…
Carers' Roles in Personal Budgets
Adult social care in England emphasises the service and support preferences of disabled and older people. Personal budgets play a central role in this development. Carers in England have also secured rights to assessment and support in their care-giving roles. However, these policies have developed largely separately, with little consideration of the interdependencies between disabled and older people and their carers. There is limited evidence d…
Personalisation
Psychology (24 obras) · Sociology (20 obras) · Healthcare innovation and challenges (17 obras) · Political science (14 obras) · Computer Science (10 obras) · Medicine (10 obras) · Public relations (10 obras) · Social Psychology (9 obras) · Business (8 obras) · Mental Health and Patient Involvement (7 obras)