Mercedes Guilabert
Datos Biográficos
| ID | 6774887 |
|---|---|
| NOMBRE | Mercedes Guilabert |
| NOMBRES | Mercedes |
| APELLIDO | Guilabert |
| FIRMA | GUILABERT M |
| AFILIACIONES | Universitat de Miguel Hernández d'Elx |
| ORCID | 0000-0002-0706-9911 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 23 |
| TOTAL DE CITAS | 2 |
| TOTAL COMO AUTOR | 23 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 1 |
Doing Qualitative Participatory Research With Patients With Chronic Rare Diseases
Peer research is a participatory approach in which citizens are actively involved as peer researchers (PRs) in all aspects of the research project alongside academic researchers (ARs). In qualitative studies, “peer-interviewing” raises some specific issues. There has been little discussion disentangling these specificities of peer-interviewing, and few papers report the processual experience of patients engaged in qualitative research as peer-int…
For Me, Quality of Life Is When I Get Through the Day Without Thinking
BACKGROUND: Vascular liver diseases (VLDs) predominantly affect young adults and require lifelong monitoring. The health-related quality of life (HRQoL) of patients with VLDs is deteriorated, with high levels of fatigue and depressive symptoms, but their lived experience and unmet needs remain unknown. To fully integrate the patients' perspective and generate actionable insights, we conducted a qualitative peer-research study. METHODS: Twelve pee…
Differences in Perception of Healthcare Management between Patients and Professionals
Patient perception and the organizational and safety culture of health professionals are an indirect indicator of the quality of care. Both patient and health professional perceptions were evaluated, and their degree of coincidence was measured in the context of a mutual insurance company (MC Mutual). This study was based on the secondary analysis of routine data available in databases of patients' perceptions and professionals' evaluations of th…
Development and validation in Ecuador of the EPD Questionnaire, a diabetes‐specific patient‐reported experience and outcome measure
INTRODUCTION: The global prevalence of diabetes in 2019 in adults was estimated to be 9.3%. This study developed in Ecuador, for the first time, instruments to assess patient-reported outcomes and experiences. METHODS: The Experiences of the Person with Diabetes (EPD) Questionnaire is a diabetes-specific instrument. A mixed-methods study was conducted. First, a qualitative item development phase that included four focus groups and six semi-struct…
Indicators for adequate diabetes care for the indigenous communities of Ecuador
INTRODUCTION: Diabetes is the second leading cause of death in Ecuador, as 79% of the indigenous population live in rural areas that are difficult to access and have below-average health resources. The objective of this study was to define person-centred indicators to monitor the care received by patients with diabetes in the indigenous population. METHOD: Qualitative research combining three focus groups (with the participation of 10 patients an…
Patient Engagement Using Telemedicine in Primary Care during Covid-19 Pandemic
The correct treatment of most non-transmissible diseases requires, in addition to adequate medication, adherence to physical activity and diet guidelines, as well as health data monitoring and patient motivation. The restrictions caused by the COVID-19 pandemic made telemedicine tools and mobile apps the best choice for monitoring patient compliance. The objective of this study was to analyze the benefits of an m-Health solution designed specific…
PROSHADE Protocol
Background: Opportunistic prostate-specific antigen (PSA) screening may reduce prostate cancer mortality risk but is associated with false positive results, biopsy complications and overdiagnosis. Although different organisations have emphasised the importance of shared decision making (SDM) to assist men in deciding whether to undergo prostate cancer screening, recent evaluations show that the available decision aids fail to facilitate SDM, main…
Proposals for person‐centred care in the Covid‐19 era. Delphi study
BACKGROUND: In this COVID-19 era, we need to rethink the criteria used to measure the results of person-centred care strategies. OBJECTIVE: To identify priorities, and criteria that health services can use to pursue actually the goal of achieving person-centred care. DESIGN: Three-phase online qualitative study performed during May-July of 2020 using the Delphi technique. SETTING AND PARTICIPANTS: An online platform was used for a consensus meeti…
Medication Experience and Adherence to Oral Chemotherapy
Lack of adherence constitutes one of the most important challenges in patients undergoing treatment with oral antineoplastic drugs (ANEO). Understanding cancer patients' experiences with respect to their medication is key for optimizing adherence and therapeutic results. We aimed to assess the medication experience (ME) in patients with cancer in treatment with ANEO, to describe the barriers and facilitators related to the disease and its treatme…
Root Cause? Yes of course … but then what
Experience of Good Practice in an Occupational Accident Mutual Insurance Society, Based on the Voice of Patients and Professionals
In Spain, the protection of workers’ health is organized through what are known as occupational accident mutual insurance societies. While health protection is a fundamental issue within a mutual society, dimensions, such as patient quality and safety, are measured in the same way as in the conventional healthcare sector. However, in mutual societies, it is traditionally acknowledged that experiences of medical evaluation systems of healthcare pr…
The Colonoscopy Satisfaction and Safety Questionnaire (CSSQP) for Colorectal Cancer Screening
Colonoscopy services working in colorectal cancer screening programs must perform periodic controls to improve the quality based on patients' experiences. However, there are no validated instruments in this setting that include the two core dimensions for optimal care: satisfaction and safety. The aim of this study was to design and validate a specific questionnaire for patients undergoing screening colonoscopy after a positive fecal occult blood…
Iemac (Instrumento de Evaluación de Modelos de Atención a la Cronicidad) e Iexpac (Instrumento de Experiencia del Paciente Crónico y su Cuidador)
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Quality Assurance and Patient Safety Measures
The assessments of the quality assurance goals were consistent with the safety culture assessment. Hence, the results on Safety Culture were observed to be more stable over time
The Measure of the Family Caregivers’ Experience
Objective : Design and validate a measure of the experience of family caregivers with the integrated care that receive the persons they care for. Methods : The new instrument for measuring the experience of caregivers is based on the Instrument to Evaluate the EXperience of PAtients with Chronic Diseases (acronym in Spanish: IEXPAC) scale instrument. With the qualitative technique of the discussion group, nine professionals and eight caregivers a…
Measuring Caregivers Experience
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Implementation of an evaluation system for chronic care models in Spain
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Assessing integration in diabetes care
Introduction: Diabetes care faces enormous challenges due to the progressiveness and multiple manifestations and complications of the disease, which make necessary the coordination of numerous professionals from different settings around the diabetic patient. The current structure and functioning of diabetes care in many Spanish regions, mainly fragmented through primary care centers, departments of endocrinology and other hospital specialties, s…
Iexpac website for measuring advances in People-Centred and Integrated Care in healthcare organizations
Introduction: Systematic assessment of patient experience (PE) might contribute to transform the patient-professional interaction model and to improve outcomes. This type of assessments stems from the recognition of the person’s rights and, therefore, of his/her active role in their wellbeing. It is a promising alternative to the fruitless efforts of the traditional approaches to achieve patient’s participation in the design of care processes.Pat…
Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care
IEXPAC allows measurement of the patient experience of chronic illness care. Together with other indicators, IEXPAC can determine the quality of care provided according to the Triple Aim framework, facilitating health systems reorientation towards integrated patient-centred care
Readiness to tackle chronicity in Spanish health care organisations
Instrumento de Evaluación de Modelos de Atención ante la Cronicidad/Assessment of Readiness for Chronicity in Health Care Organisations is an instrument that allows health care organisations to perform self-assessments regarding their readiness to tackle chronicity and to identify areas for improvement in chronic care
Barriers for an effective communication around clinical decision making
BACKGROUND: There are doubts on whether patients feel that they have sufficient information for actively participating in clinical decisions. OBJECTIVE: To describe the type of information that patients receive. To determine whether patients consider this information sufficient, and whether it contributes or not to improve clinical safety. To identify the barriers for patient participation in clinical decision making. STUDY DESIGN: Cross-sectiona…
Frecuencia de errores de los pacientes con su medicación
In addition to the known risks of an adverse event due to a health intervention resulting from a system or practitioner error, there are risks associated with patient errors in the self-administration of medication. Patients who were unsatisfied with the information provided by the physician reported a greater number of errors
Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care
IEXPAC allows measurement of the patient experience of chronic illness care. Together with other indicators, IEXPAC can determine the quality of care provided according to the Triple Aim framework, facilitating health systems reorientation towards integrated patient-centred care
Readiness to tackle chronicity in Spanish health care organisations
Instrumento de Evaluación de Modelos de Atención ante la Cronicidad/Assessment of Readiness for Chronicity in Health Care Organisations is an instrument that allows health care organisations to perform self-assessments regarding their readiness to tackle chronicity and to identify areas for improvement in chronic care
Frecuencia de errores de los pacientes con su medicación
In addition to the known risks of an adverse event due to a health intervention resulting from a system or practitioner error, there are risks associated with patient errors in the self-administration of medication. Patients who were unsatisfied with the information provided by the physician reported a greater number of errors
Barriers for an effective communication around clinical decision making
BACKGROUND: There are doubts on whether patients feel that they have sufficient information for actively participating in clinical decisions. OBJECTIVE: To describe the type of information that patients receive. To determine whether patients consider this information sufficient, and whether it contributes or not to improve clinical safety. To identify the barriers for patient participation in clinical decision making. STUDY DESIGN: Cross-sectiona…
Readiness to tackle chronicity in Spanish health care organisations
Instrumento de Evaluación de Modelos de Atención ante la Cronicidad/Assessment of Readiness for Chronicity in Health Care Organisations is an instrument that allows health care organisations to perform self-assessments regarding their readiness to tackle chronicity and to identify areas for improvement in chronic care
Assessing integration in diabetes care
Introduction: Diabetes care faces enormous challenges due to the progressiveness and multiple manifestations and complications of the disease, which make necessary the coordination of numerous professionals from different settings around the diabetic patient. The current structure and functioning of diabetes care in many Spanish regions, mainly fragmented through primary care centers, departments of endocrinology and other hospital specialties, s…
Iexpac website for measuring advances in People-Centred and Integrated Care in healthcare organizations
Introduction: Systematic assessment of patient experience (PE) might contribute to transform the patient-professional interaction model and to improve outcomes. This type of assessments stems from the recognition of the person’s rights and, therefore, of his/her active role in their wellbeing. It is a promising alternative to the fruitless efforts of the traditional approaches to achieve patient’s participation in the design of care processes.Pat…
Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care
IEXPAC allows measurement of the patient experience of chronic illness care. Together with other indicators, IEXPAC can determine the quality of care provided according to the Triple Aim framework, facilitating health systems reorientation towards integrated patient-centred care
Implementation of an evaluation system for chronic care models in Spain
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Quality Assurance and Patient Safety Measures
The assessments of the quality assurance goals were consistent with the safety culture assessment. Hence, the results on Safety Culture were observed to be more stable over time
The Measure of the Family Caregivers’ Experience
Objective : Design and validate a measure of the experience of family caregivers with the integrated care that receive the persons they care for. Methods : The new instrument for measuring the experience of caregivers is based on the Instrument to Evaluate the EXperience of PAtients with Chronic Diseases (acronym in Spanish: IEXPAC) scale instrument. With the qualitative technique of the discussion group, nine professionals and eight caregivers a…
Measuring Caregivers Experience
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Root Cause? Yes of course … but then what
Experience of Good Practice in an Occupational Accident Mutual Insurance Society, Based on the Voice of Patients and Professionals
In Spain, the protection of workers’ health is organized through what are known as occupational accident mutual insurance societies. While health protection is a fundamental issue within a mutual society, dimensions, such as patient quality and safety, are measured in the same way as in the conventional healthcare sector. However, in mutual societies, it is traditionally acknowledged that experiences of medical evaluation systems of healthcare pr…
The Colonoscopy Satisfaction and Safety Questionnaire (CSSQP) for Colorectal Cancer Screening
Colonoscopy services working in colorectal cancer screening programs must perform periodic controls to improve the quality based on patients' experiences. However, there are no validated instruments in this setting that include the two core dimensions for optimal care: satisfaction and safety. The aim of this study was to design and validate a specific questionnaire for patients undergoing screening colonoscopy after a positive fecal occult blood…
Iemac (Instrumento de Evaluación de Modelos de Atención a la Cronicidad) e Iexpac (Instrumento de Experiencia del Paciente Crónico y su Cuidador)
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Proposals for person‐centred care in the Covid‐19 era. Delphi study
BACKGROUND: In this COVID-19 era, we need to rethink the criteria used to measure the results of person-centred care strategies. OBJECTIVE: To identify priorities, and criteria that health services can use to pursue actually the goal of achieving person-centred care. DESIGN: Three-phase online qualitative study performed during May-July of 2020 using the Delphi technique. SETTING AND PARTICIPANTS: An online platform was used for a consensus meeti…
Medication Experience and Adherence to Oral Chemotherapy
Lack of adherence constitutes one of the most important challenges in patients undergoing treatment with oral antineoplastic drugs (ANEO). Understanding cancer patients' experiences with respect to their medication is key for optimizing adherence and therapeutic results. We aimed to assess the medication experience (ME) in patients with cancer in treatment with ANEO, to describe the barriers and facilitators related to the disease and its treatme…
Development and validation in Ecuador of the EPD Questionnaire, a diabetes‐specific patient‐reported experience and outcome measure
INTRODUCTION: The global prevalence of diabetes in 2019 in adults was estimated to be 9.3%. This study developed in Ecuador, for the first time, instruments to assess patient-reported outcomes and experiences. METHODS: The Experiences of the Person with Diabetes (EPD) Questionnaire is a diabetes-specific instrument. A mixed-methods study was conducted. First, a qualitative item development phase that included four focus groups and six semi-struct…
Indicators for adequate diabetes care for the indigenous communities of Ecuador
INTRODUCTION: Diabetes is the second leading cause of death in Ecuador, as 79% of the indigenous population live in rural areas that are difficult to access and have below-average health resources. The objective of this study was to define person-centred indicators to monitor the care received by patients with diabetes in the indigenous population. METHOD: Qualitative research combining three focus groups (with the participation of 10 patients an…
Patient Engagement Using Telemedicine in Primary Care during Covid-19 Pandemic
The correct treatment of most non-transmissible diseases requires, in addition to adequate medication, adherence to physical activity and diet guidelines, as well as health data monitoring and patient motivation. The restrictions caused by the COVID-19 pandemic made telemedicine tools and mobile apps the best choice for monitoring patient compliance. The objective of this study was to analyze the benefits of an m-Health solution designed specific…
PROSHADE Protocol
Background: Opportunistic prostate-specific antigen (PSA) screening may reduce prostate cancer mortality risk but is associated with false positive results, biopsy complications and overdiagnosis. Although different organisations have emphasised the importance of shared decision making (SDM) to assist men in deciding whether to undergo prostate cancer screening, recent evaluations show that the available decision aids fail to facilitate SDM, main…
Differences in Perception of Healthcare Management between Patients and Professionals
Patient perception and the organizational and safety culture of health professionals are an indirect indicator of the quality of care. Both patient and health professional perceptions were evaluated, and their degree of coincidence was measured in the context of a mutual insurance company (MC Mutual). This study was based on the secondary analysis of routine data available in databases of patients' perceptions and professionals' evaluations of th…
Doing Qualitative Participatory Research With Patients With Chronic Rare Diseases
Peer research is a participatory approach in which citizens are actively involved as peer researchers (PRs) in all aspects of the research project alongside academic researchers (ARs). In qualitative studies, “peer-interviewing” raises some specific issues. There has been little discussion disentangling these specificities of peer-interviewing, and few papers report the processual experience of patients engaged in qualitative research as peer-int…
For Me, Quality of Life Is When I Get Through the Day Without Thinking
BACKGROUND: Vascular liver diseases (VLDs) predominantly affect young adults and require lifelong monitoring. The health-related quality of life (HRQoL) of patients with VLDs is deteriorated, with high levels of fatigue and depressive symptoms, but their lived experience and unmet needs remain unknown. To fully integrate the patients' perspective and generate actionable insights, we conducted a qualitative peer-research study. METHODS: Twelve pee…
Medicine (17 obras) · Health care (13 obras) · Nursing (11 obras) · Computer Science (9 obras) · Family medicine (9 obras) · Political science (8 obras) · Psychology (8 obras) · Chronic Disease Management Strategies (6 obras) · Internal Medicine (6 obras) · Patient Satisfaction in Healthcare (6 obras)