A meta‐synthesis of how parents of children with autism describe their experience of advocating for their children during the process of diagnosis
Datos Bibliográficos
The diagnostic process for children with autism can be complex for parents to navigate as they advocate for their child in order to obtain answers to their concerns, and receive the subsequent support they need. Gaining an understanding of parents' experiences during this process, will assist service providers in supporting families adequately. This systematic review was undertaken to consolidate in-depth qualitative data from parents of their experience of advocating for their child with autism, during the process of diagnosis. A qualitative meta-synthesis was conducted, whereby fifteen databases were systematically searched. Twenty-two studies were identified and appraised using an adapted version of the Critical Appraisal Skills Programme tool. Data were synthesised into themes through the steps of review, meta-aggregation, integration, and interpretation. The date range of the included studies spans 1999-2016. The voices of 1,178 parents are presented in this review describing their experiences in two overarching themes: "Pathway to diagnosis-Confusion and not feeling heard"; and "Pursuing diagnosis-Resilience and commitment." Each one of these main themes had sub-themes. Our findings highlight the intense emotional journey for parents during identification of their initial concerns and the formal process of diagnosis, and their perceptions of not being supported by others on this journey. This review illustrates the significant impact that positive experiences with first-line professionals have during the process of diagnosis, and how these experiences lay the foundation for all future relationships with other service providers. As a result, awareness of parents' experiences will assist service providers to reconsider their communication style, information sharing, provision of support and to incorporate parents' contributions in facilitating a more streamlined and more supportive process of diagnosis
Alternative medicine · Autism · Critical appraisal · Developmental psychology · Feeling · Medical education · Perception · Qualitative research · Service provider · Sociology · Autism Spectrum Disorder Research · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Psychology · Social Psychology
The Quality of Autism Spectrum Disorder Diagnosis
Parenting on the margins
From Child-Focused to Family-Centered
Prevalence of autism spectrum disorder in children in the Azores Islands (Portugal)
Emotional Experience of Families With an Immigrant Background Throughout the Autism Service Trajectory in Early Childhood
An innovative and collaborative method to develop a model care and service trajectory for the assessment, diagnosis, and support of children with developmental disabilities
Experiences of fathers caring for children with neurodevelopmental disorders
“Let them show what they can do”
Effective elements of the diagnostic assessment process in youth care. A scoping review
A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children
Diagnostic and Statistical Manual of Mental Disorders
A hierarchy of evidence for assessing qualitative health research
Enhancing transparency in reporting the synthesis of qualitative research
Women Exposed to Intimate Partner Violence
Parent and Family Impact of Autism Spectrum Disorders
Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders
Preferred Reporting Items for Systematic Reviews and Meta-Analyses
From symptom recognition to services
At home with disability
At a moment, you could collapse”
Maternal self-efficacy and associated parenting cognitions among mothers of children with autism
Meta-Synthesis of Qualitative Findings
Challenges faced by parents of children diagnosed with autism spectrum disorder
| Obras citantes distintas | 10 |
|---|---|
| Citas por año | 1,67 |
| Intervalo de citas | 2020 - 2026 (7) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 9 |