But you don't look sick

Memorable messages of emerging adulthood autoimmune disease

Datos Bibliográficos

ID2925841
AutoresJacqueline N Gunning (0000-0002-0893-0777, University of Connecticut, autor de correspondencia)
Año2023
Volumen40
Número6
Páginas2008-2030
Fecha de publicación2023-06-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaJournal of Social and Personal Relationships (JOURNAL)
Identificadores de la revistaISSN: 0265-4075 • E-ISSN: 1460-3608
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/02654075221137548
OpenAlexW4307744735
IdiomaEN
Citas recibidas24
Referencias citadas50

Background: Experiencing the onset of autoimmune disease in emerging adulthood is disruptive and difficult to make sense of because youth and illness are not expected to co-exist. As a result, emerging adults with autoimmune disease are susceptible to messages that discredit and deny their health experiences. Though communication research has explored dismissive and disenfranchising communication in the face of chronic illness, a need for how to disrupt and replace this harmful or inadequate messaging remains. Purpose: Building upon prior memorable messages research that centers the call "I wish," asking individuals not only about messages received but messages desired, the present study identifies harmful and helpful memorable messages in the face of autoimmune disease onset and diagnosis. Research Design: Guided by Cooke-Jackson & Rubinsky's (2021) theory of memorable messages and call for research on message disruption, the present study explores the messages 25 assigned female at birth (AFAB) individuals with autoimmune disease received during their illness journeys using individual, semi-structured interviews. Results: Findings reveal messages of dismissal, blame, and presumed psychosis (e.g., "it's all in your head," "but you look healthy") as characterizing the diagnostic journey. Participants identify messages of belief, support, and interest (e.g., "I believe you," "you are not alone," "help me understand") as being helpful while navigating their disease. Conclusion: Findings illuminate how family members, friends, health care providers, intimate partners, and relational others can effectively support emerging adults navigating a difficult and disruptive health experience. Limitations and future directions are discussed

Blame · Disease · Health care · Adolescent and Pediatric Healthcare · Family Support in Illness · Medicine · Psychology · Social Psychology · Vaccine Coverage and Hesitancy