Positioning Children's Voice in Clinical Trials Research

A New Model for Planning, Collaboration, and Reflection

Datos Bibliográficos

ID4610461
AutoresAmanda Lees (0000-0001-5446-6592, University of Winchester, Winchester, United Kingdom, autor de correspondencia), Jane Payler (0000-0002-4826-1440, The Open University, Milton Keynes, United Kingdom), Claire Ballinger (0000-0002-3647-7631, University of Southampton, Southampton, United Kingdom), Penny Lawrence (0000-0002-5628-2815, University of Roehampton, London, United Kingdom), Saul N Faust (0000-0003-3410-7642, University of Southampton, Southampton, United Kingdom), Geoffrey Meads (0000-0003-0714-6769, University of Winchester, Winchester, United Kingdom)
Año2017
Volumen27
Número14
Páginas2162-2176
Fecha de publicación2017-12-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaQualitative Health Research (JOURNAL)
Identificadores de la revistaISSN: 1049-7323 • E-ISSN: 1552-7557
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732317726760
PMID28836474
OpenAlexW2746965337
IdiomaEN
Citas recibidas11
Referencias citadas47

Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children's perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children's views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children's engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts

Convention on the Rights of the Child · Engineering ethics · Human rights · Medical education · Political science · Public relations · Qualitative research · Social science · Sociology · Children's Rights and Participation · Early Childhood Education and Development · Ethics and Legal Issues in Pediatric Healthcare · Law · Medicine · Psychology · Social Psychology