Katrina Goddard
Biographic Data
| ID | 10472463 |
|---|---|
| NAME | Katrina Goddard |
| GIVEN NAMES | Katrina |
| FAMILY NAME | Goddard |
| SIGNATURE | GODDARD K |
| AFFILIATIONS | Center for Health Research, Kaiser Permanente Northwest, Portland, OR 97227, USA |
| VERIFIED | No |
| TOTAL WORKS | 2 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 2 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2014 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Measuring health-related quality of life in children with suspected genetic conditions
Practical Barriers and Ethical Challenges in Genetic Data Sharing
The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended this requirement to next-generation sequencing data. However, recent literature and anecdotal reports suggest lingering logistical and ethical concern…
No prominent works on this page.
Practical Barriers and Ethical Challenges in Genetic Data Sharing
The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended this requirement to next-generation sequencing data. However, recent literature and anecdotal reports suggest lingering logistical and ethical concern…
Measuring health-related quality of life in children with suspected genetic conditions
Medicine (2 works) · Alternative medicine (1 work) · Biobank (1 work) · Bioinformatics (1 work) · Biorepository (1 work) · BRCA gene mutations in cancer (1 work) · Cancer Genomics and Diagnostics (1 work) · Childhood Cancer Survivors' Quality of Life (1 work) · Clinical Psychology (1 work) · Clinical Psychology (1 work)