Measuring health-related quality of life in children with suspected genetic conditions
Validation of the PedsQL proxy-report versions
Bibliographic Data
| ID | 15299869 |
|---|---|
| Authors | Hadley Stevens Smith (0000-0003-1247-6535, Harvard University, corresponding author), Michael C Leo (0000-0001-7052-8183, Kaiser Permanente Center for Health Research), Michael Leo, Katrina A B Goddard (0000-0001-9535-8993, Kaiser Permanente Center for Health Research), Katrina Goddard, Kristin R Muessig (0000-0001-9883-2224, Kaiser Permanente Center for Health Research), Kristin Muessig, Frank Angelo (0000-0001-7387-7581, Northwestern University), Sara J Knight (0000-0001-9452-9375, University of Utah), Sara Knight, Simon Outram (0000-0003-3588-6764, University of California, San Francisco), Nicole Kelly (0000-0003-4476-5462, Albert Einstein College of Medicine), Nicole R Kelly, Christine Rini (0000-0002-3169-3626, Northwestern University) |
| Year | 2024 |
| Volume | 33 |
| Issue | 6 |
| Pages | 1541-1553 |
| Publication date | 2024-03-12 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Quality of Life Research (JOURNAL) |
| Journal identifiers | ISSN: 0962-9343 • E-ISSN: 1573-2649 |
| Publisher | Springer Science+Business Media (PUBLISHER • DE) |
| DOI | 10.1007/s11136-024-03623-1 |
| PMID | 38472717 |
| OpenAlex | W4392683360 |
| Language | EN |
| Citations received | 2 |
| References cited | 55 |
Confirmatory factor analysis · Convergent validity · Cronbach's alpha · Disease · Health related quality of life · Internal consistency · Proxy (statistics · Psychiatry · Psychological intervention · Psychometrics · Public health · Quality of life (healthcare · Quality of Life Research · Structural equation modeling · BRCA gene mutations in cancer · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Genetics and Neurodevelopmental Disorders · Medicine
Parent proxy-report of their children's health-related quality of life
Multivariate Analysis with Latent Variables
Cutoff criteria for fit indexes in covariance structure analysis
Mapping PedsQLTM scores to CHU9D utility weights for children with chronic conditions in a multi-ethnic and deprived metropolitan population
The PedsQLTM Infant Scales
Development of the EQ-5D-Y
Application of validated mapping algorithms between generic PedsQL scores and utility values to individuals with sickle cell disease
Quality of life assessment in children
Coefficient alpha and the internal structure of tests
PedsQLTM 4.0
The PedsQLTM
Conventional wisdom on measurement
A power primer
| Citations per year | 1 |
|---|---|
| Citation span | 2024 - 2024 (1) |
| Highly cited | No |