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Measuring health-related quality of life in children with suspected genetic conditions

Validation of the PedsQL proxy-report versions

Bibliographic Data

ID15299869
AuthorsHadley Stevens Smith (0000-0003-1247-6535, Harvard University, corresponding author), Michael C Leo (0000-0001-7052-8183, Kaiser Permanente Center for Health Research), Michael Leo, Katrina A B Goddard (0000-0001-9535-8993, Kaiser Permanente Center for Health Research), Katrina Goddard, Kristin R Muessig (0000-0001-9883-2224, Kaiser Permanente Center for Health Research), Kristin Muessig, Frank Angelo (0000-0001-7387-7581, Northwestern University), Sara J Knight (0000-0001-9452-9375, University of Utah), Sara Knight, Simon Outram (0000-0003-3588-6764, University of California, San Francisco), Nicole Kelly (0000-0003-4476-5462, Albert Einstein College of Medicine), Nicole R Kelly, Christine Rini (0000-0002-3169-3626, Northwestern University)
Year2024
Volume33
Issue6
Pages1541-1553
Publication date2024-03-12
Open AccessYes
TypeARTICLE
VenueQuality of Life Research (JOURNAL)
Journal identifiersISSN: 0962-9343 • E-ISSN: 1573-2649
PublisherSpringer Science+Business Media (PUBLISHER • DE)
DOI10.1007/s11136-024-03623-1
PMID38472717
OpenAlexW4392683360
LanguageEN
Citations received2
References cited55

Confirmatory factor analysis · Convergent validity · Cronbach's alpha · Disease · Health related quality of life · Internal consistency · Proxy (statistics · Psychiatry · Psychological intervention · Psychometrics · Public health · Quality of life (healthcare · Quality of Life Research · Structural equation modeling · BRCA gene mutations in cancer · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Genetics and Neurodevelopmental Disorders · Medicine

  • Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders

    Open Access•Asem Berkalieva, Nicole Kelly et al.•Quality of Life Research•2024

  • EuroQol Toddler and Infant Populations (EQ-Tips)

    Open Access•Janine Verstraete, Razia Amien et al.•Children•2024

  • Parent proxy-report of their children's health-related quality of life

    Open Access•James W Varni, Christine A Limbers et al.•Health and Quality of Life Outcomes•2007

  • Multivariate Analysis with Latent Variables

    Peter M Bentler•Annual Review of Psychology•1980

  • Cutoff criteria for fit indexes in covariance structure analysis

    Li‐tze Hu, Peter M Bentler•Structural Equation Modeling: A…•1999

  • Mapping PedsQLTM scores to CHU9D utility weights for children with chronic conditions in a multi-ethnic and deprived metropolitan population

    Open Access•C Kelly, Clare B Kelly et al.•Quality of Life Research•2023

  • The PedsQLTM Infant Scales

    Open Access•James W Varni, Christine A Limbers et al.•Quality of Life Research•2010

  • Development of the EQ-5D-Y

    Open Access•Nora Wille, Xavier Badia et al.•Quality of Life Research•2010

  • Application of validated mapping algorithms between generic PedsQL scores and utility values to individuals with sickle cell disease

    Open Access•Boshen Jiao, Jane S Hankins et al.•Quality of Life Research•2022

  • Quality of life assessment in children

    Deb K Pal•Journal of Epidemiology and…•1996

  • Coefficient alpha and the internal structure of tests

    Open Access•Lee J Cronbach•Psychometrika•1951

  • PedsQLTM 4.0

    James W Varni, Michael Seid et al.•Medical Care•2001

  • The PedsQLTM

    James W Varni, Michael Seid et al.•Medical Care•1999

  • Conventional wisdom on measurement

    K A Bollen, Kenneth Bollen et al.•Psychological Bulletin•1991

  • A power primer

    Jacob Cohen•Psychological Bulletin•1992

Citations per year1
Citation span2024 - 2024 (1)
Highly citedNo

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