Katrina A B Goddard
Biographic Data
| ID | 6065689 |
|---|---|
| NAME | Katrina A B Goddard |
| GIVEN NAMES | Katrina A B |
| FAMILY NAME | Goddard |
| SIGNATURE | GODDARD K A B |
| AFFILIATIONS | Kaiser Permanente Center for Health Research |
| ORCID | 0000-0001-9535-8993 |
| VERIFIED | Yes |
| TOTAL WORKS | 4 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 4 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2009 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Measuring health-related quality of life in children with suspected genetic conditions
Demonstrating ‘respect for persons’ in clinical research
The ethical principle of ‘respect for persons’ in clinical research has traditionally focused on protecting individuals’ autonomy rights, but respect for participants also includes broader, although less well understood, ethical obligations to regard individuals’ rights, needs, interests and feelings. However, there is little empirical evidence about how to effectively convey respect to potential and current participants. To fill this gap, we con…
Practical Barriers and Ethical Challenges in Genetic Data Sharing
The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended this requirement to next-generation sequencing data. However, recent literature and anecdotal reports suggest lingering logistical and ethical concern…
Public Awareness and Use of Direct-to-Consumer Genetic Tests
We conducted population-based surveys on direct-to-consumer nutrigenomic testing in Michigan, Oregon, and Utah as part of the 2006 Behavioral Risk Factor Surveillance System. Awareness of the tests was highest in Oregon (24.4%) and lowest in Michigan (7.6%). Predictors of awareness were more education, higher income, and increasing age, except among those 65 years or older. Less than 1% had used a health-related direct-to-consumer genetic test. P…
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Public Awareness and Use of Direct-to-Consumer Genetic Tests
We conducted population-based surveys on direct-to-consumer nutrigenomic testing in Michigan, Oregon, and Utah as part of the 2006 Behavioral Risk Factor Surveillance System. Awareness of the tests was highest in Oregon (24.4%) and lowest in Michigan (7.6%). Predictors of awareness were more education, higher income, and increasing age, except among those 65 years or older. Less than 1% had used a health-related direct-to-consumer genetic test. P…
Practical Barriers and Ethical Challenges in Genetic Data Sharing
The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended this requirement to next-generation sequencing data. However, recent literature and anecdotal reports suggest lingering logistical and ethical concern…
Demonstrating ‘respect for persons’ in clinical research
The ethical principle of ‘respect for persons’ in clinical research has traditionally focused on protecting individuals’ autonomy rights, but respect for participants also includes broader, although less well understood, ethical obligations to regard individuals’ rights, needs, interests and feelings. However, there is little empirical evidence about how to effectively convey respect to potential and current participants. To fill this gap, we con…
Measuring health-related quality of life in children with suspected genetic conditions
Medicine (4 works) · Alternative medicine (2 works) · BRCA gene mutations in cancer (2 works) · Ethics in Clinical Research (2 works) · Medical education (2 works) · Psychology (2 works) · Public health (2 works) · Sociology (2 works) · Applied Psychology (1 work) · Attribution (1 work)