Kaya Akyüz
Biographic Data
| ID | 1250048 |
|---|---|
| NAME | Kaya Akyüz |
| GIVEN NAMES | Kaya |
| FAMILY NAME | Akyüz |
| SIGNATURE | AKYÜZ K |
| AFFILIATIONS | University of Vienna |
| ORCID | 0000-0002-2444-2095 |
| VERIFIED | Yes |
| TOTAL WORKS | 5 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 5 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Ethical, legal, and social implications in research biobanking
Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of informed consent, the reporting of incidental findings and the use of Transfer Agreements remain a vast challenge. This paper aims to offer first–hand tangible solutions on those issues in the context of collabora…
Post-identifiability in changing sociotechnological genomic data environments
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spatial dimension, especially in regard to genomic data. In this paper, we analyze how genomic identifiability is considered as a specific data issue in a recent controversial case: publication of the genome sequence…
Biobanking and risk assessment
Biobanks act as the custodians for the access to and responsible use of human biological samples and related data that have been generously donated by individuals to serve the public interest and scientific advances in the health research realm. Risk assessment has become a daily practice for biobanks and has been discussed from different perspectives. This paper aims to provide a literature review on risk assessment in order to put together a co…
Moving back to the future of big data-driven research
With the advance of genomics, specific individual conditions have received increased attention in the generation of scientific knowledge. This spans the extremes of the aim of curing genetic diseases and identifying the biological basis of social behaviour. In this development, the ways knowledge is produced have gained significant relevance, as the data-intensive search for biology/sociality associations has repercussions on doing social researc…
(Re)Configuring Hybrid Meetings
Despite sophisticated technologies for representational fidelity in hybrid meetings, in which co-located and remote participants collaborate via video or audio, meetings are still often disrupted by practical problems with trying to include remote participants. In this paper, we use micro-analysis of three disruptive moments in a hybrid meeting from a global software company to unpack blended technological and conversational practices of inclusio…
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Moving back to the future of big data-driven research
With the advance of genomics, specific individual conditions have received increased attention in the generation of scientific knowledge. This spans the extremes of the aim of curing genetic diseases and identifying the biological basis of social behaviour. In this development, the ways knowledge is produced have gained significant relevance, as the data-intensive search for biology/sociality associations has repercussions on doing social researc…
(Re)Configuring Hybrid Meetings
Despite sophisticated technologies for representational fidelity in hybrid meetings, in which co-located and remote participants collaborate via video or audio, meetings are still often disrupted by practical problems with trying to include remote participants. In this paper, we use micro-analysis of three disruptive moments in a hybrid meeting from a global software company to unpack blended technological and conversational practices of inclusio…
Biobanking and risk assessment
Biobanks act as the custodians for the access to and responsible use of human biological samples and related data that have been generously donated by individuals to serve the public interest and scientific advances in the health research realm. Risk assessment has become a daily practice for biobanks and has been discussed from different perspectives. This paper aims to provide a literature review on risk assessment in order to put together a co…
Ethical, legal, and social implications in research biobanking
Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of informed consent, the reporting of incidental findings and the use of Transfer Agreements remain a vast challenge. This paper aims to offer first–hand tangible solutions on those issues in the context of collabora…
Post-identifiability in changing sociotechnological genomic data environments
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spatial dimension, especially in regard to genomic data. In this paper, we analyze how genomic identifiability is considered as a specific data issue in a recent controversial case: publication of the genome sequence…
Biology (3 works) · Biomedical Ethics and Regulation (3 works) · Computer Science (3 works) · Epistemology (3 works) · Ethics in Clinical Research (3 works) · Sociology (3 works) · Big data (2 works) · Biobank (2 works) · Data science (2 works) · Engineering ethics (2 works)