Marij A Hillen
Biographic Data
| ID | 1256062 |
|---|---|
| NAME | Marij A Hillen |
| GIVEN NAMES | Marij A |
| FAMILY NAME | Hillen |
| SIGNATURE | HILLEN M A |
| AFFILIATIONS | Amsterdam University Medical Centers |
| ORCID | 0000-0001-5724-7934 |
| VERIFIED | Yes |
| TOTAL WORKS | 15 |
| TOTAL CITATIONS | 55 |
| WORKS AS AUTHOR | 15 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2015 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
Challenges in Providing Gender-Affirming Care to Nonbinary and Genderqueer Individuals
First-year residents’ experiences of uncertainty in rural and urban emergency departments
Guidelines for reporting research using systematic coding of observed human behaviour (SCOBe)
Systematic coding of observed human behaviour (SCOBe) is used across disciplines and topics but methodological reporting is often incomplete. We developed internationally generated, interdisciplinary guidelines for methodological reporting of such research. Using Delphi methodology, a working group of 22 experts sought group consensus in three rounds. Participants first assessed an initial set of reporting criteria (round 1). Next, in interactive…
Cancer patients’ trust as a motivator to seek a second opinion and its effects on trust
OBJECTIVE: Cancer patients may seek a second opinion (SO) driven by reduced trust in their own providers. Their trust may be diminished or reinforced through the SO. This study aimed to assess (1) what proportion of patients seek SOs motivated by lacking trust and how trust changes over time; (2) whether patients' trust differs by the outcome of the SO (i.e. similar/different opinion); and (3) how communication during the SO affects trust. DESIGN…
The Video Engagement Scale (VES)
The Video Engagement Scale (VES) is a quality indicator to assess engagement in experimental video-vignette studies, but its measurement properties warrant improvement. Data from previous studies were combined (N = 2676) and split into three subsamples for a stepped analytical approach. We tested construct validity, criterion validity, reliability, and measurement invariance. Confirmatory factor analysis (CFA) reiterated poor fit of the previousl…
A scoping review of practice recommendations for clinicians’ communication of uncertainty
Communication about Prognosis during Patient-Initiated Second Opinion Consultations in Advanced Cancer Care
Prognostic communication is essential for patients with advanced cancer to enable informed medical decision-making and end-of-life planning. Discussing prognosis is challenging, and might be especially complex for oncologists conducting a second opinion (SO). Survival data are often lacking, and consulting oncologists need to consider previously conveyed information and patients' relationship with the referring oncologist. We qualitatively invest…
The Measurement of Eye Contact in Human Interactions
Eye contact is a fundamental aspect of nonverbal communication and therefore important for understanding human interaction. Eye contact has been the subject of research in many disciplines, including communication sciences, social psychology, and psychiatry, and a variety of techniques have been used to measure it. The choice of measurement method has consequences for research outcomes and their interpretation. To ensure that research findings al…
Communicating uncertainties when disclosing diagnostic test results for (Alzheimer's) dementia in the memory clinic
BACKGROUND: The development of novel diagnostics enables increasingly earlier diagnosis of Alzheimer's disease (AD). Timely diagnosis may benefit patients by reducing their uncertainty regarding the cause of symptoms, yet does not always provide patients with the desired certainty. OBJECTIVE: To examine, using both quantitative and qualitative methods, uncertainty communicated by memory clinic clinicians in post-diagnostic testing consultations w…
Uncertainty related to multigene panel testing for cancer
Multigene panel testing is mainly used to improve identification of genetic causes in families with characteristics fitting multiple possible cancer syndromes. This technique may yield uncertainty, for example when variants of unknown significance are identified. This study explores counsellors' and counselees' experiences with uncertainty, and how they discuss uncertainties and decide about multigene panel testing. Six focus groups were conducte…
The evolution of uncertainty in second opinions about prostate cancer treatment
BACKGROUND: People who have cancer increasingly seek second opinions. Yet, we know little about what motivates patients to seek them and how beneficial they are. Uncertainty-experienced by patients or communicated by physician and patient-may be crucial throughout the second opinion process. OBJECTIVE: This study sought to investigate (1) how uncertainty influences men with prostate cancer to seek second opinions and (2) how second opinions may a…
Trust and Perceptions of Physicians’ Nonverbal Behavior Among Women with Immigrant Backgrounds
Previous findings suggest immigrant patients have lower trust in their physicians, and perceive nonverbal communication differently compared to non-immigrant patients. We tested discrepancies in trust and the impact of non-verbal behavior between immigrants and non-immigrants in The Netherlands. Nonverbal communication of an oncologist was systematically varied in an experimental video vignettes design. Breast cancer patients (n = 34) and healthy…
Tolerance of uncertainty
Uncertainty tolerance is an important and complex phenomenon requiring more precise and consistent definition. An integrative definition and conceptual model, intended as a tentative and flexible point of departure for future research, adds needed breadth, specificity, and precision to efforts to conceptualize and measure UT
The inherent tensions and ambiguities of hope
Sociological and anthropological analyses of hope in health-care contexts have tended to address institutional processes, especially the power dynamics that function through such systems or political economies of hope, which in turn shape interactions through which hopes are managed. This article extends this approach through a more detailed consideration of the experience of hoping itself. Our post-formal analysis denotes the tensions that are i…
The interweaving of pharmaceutical and medical expectations as dynamics of micro-pharmaceuticalisation
Tolerance of uncertainty
Uncertainty tolerance is an important and complex phenomenon requiring more precise and consistent definition. An integrative definition and conceptual model, intended as a tentative and flexible point of departure for future research, adds needed breadth, specificity, and precision to efforts to conceptualize and measure UT
The inherent tensions and ambiguities of hope
Sociological and anthropological analyses of hope in health-care contexts have tended to address institutional processes, especially the power dynamics that function through such systems or political economies of hope, which in turn shape interactions through which hopes are managed. This article extends this approach through a more detailed consideration of the experience of hoping itself. Our post-formal analysis denotes the tensions that are i…
The interweaving of pharmaceutical and medical expectations as dynamics of micro-pharmaceuticalisation
The inherent tensions and ambiguities of hope
Sociological and anthropological analyses of hope in health-care contexts have tended to address institutional processes, especially the power dynamics that function through such systems or political economies of hope, which in turn shape interactions through which hopes are managed. This article extends this approach through a more detailed consideration of the experience of hoping itself. Our post-formal analysis denotes the tensions that are i…
The interweaving of pharmaceutical and medical expectations as dynamics of micro-pharmaceuticalisation
The evolution of uncertainty in second opinions about prostate cancer treatment
BACKGROUND: People who have cancer increasingly seek second opinions. Yet, we know little about what motivates patients to seek them and how beneficial they are. Uncertainty-experienced by patients or communicated by physician and patient-may be crucial throughout the second opinion process. OBJECTIVE: This study sought to investigate (1) how uncertainty influences men with prostate cancer to seek second opinions and (2) how second opinions may a…
Trust and Perceptions of Physicians’ Nonverbal Behavior Among Women with Immigrant Backgrounds
Previous findings suggest immigrant patients have lower trust in their physicians, and perceive nonverbal communication differently compared to non-immigrant patients. We tested discrepancies in trust and the impact of non-verbal behavior between immigrants and non-immigrants in The Netherlands. Nonverbal communication of an oncologist was systematically varied in an experimental video vignettes design. Breast cancer patients (n = 34) and healthy…
Tolerance of uncertainty
Uncertainty tolerance is an important and complex phenomenon requiring more precise and consistent definition. An integrative definition and conceptual model, intended as a tentative and flexible point of departure for future research, adds needed breadth, specificity, and precision to efforts to conceptualize and measure UT
Uncertainty related to multigene panel testing for cancer
Multigene panel testing is mainly used to improve identification of genetic causes in families with characteristics fitting multiple possible cancer syndromes. This technique may yield uncertainty, for example when variants of unknown significance are identified. This study explores counsellors' and counselees' experiences with uncertainty, and how they discuss uncertainties and decide about multigene panel testing. Six focus groups were conducte…
The Measurement of Eye Contact in Human Interactions
Eye contact is a fundamental aspect of nonverbal communication and therefore important for understanding human interaction. Eye contact has been the subject of research in many disciplines, including communication sciences, social psychology, and psychiatry, and a variety of techniques have been used to measure it. The choice of measurement method has consequences for research outcomes and their interpretation. To ensure that research findings al…
Communicating uncertainties when disclosing diagnostic test results for (Alzheimer's) dementia in the memory clinic
BACKGROUND: The development of novel diagnostics enables increasingly earlier diagnosis of Alzheimer's disease (AD). Timely diagnosis may benefit patients by reducing their uncertainty regarding the cause of symptoms, yet does not always provide patients with the desired certainty. OBJECTIVE: To examine, using both quantitative and qualitative methods, uncertainty communicated by memory clinic clinicians in post-diagnostic testing consultations w…
A scoping review of practice recommendations for clinicians’ communication of uncertainty
Communication about Prognosis during Patient-Initiated Second Opinion Consultations in Advanced Cancer Care
Prognostic communication is essential for patients with advanced cancer to enable informed medical decision-making and end-of-life planning. Discussing prognosis is challenging, and might be especially complex for oncologists conducting a second opinion (SO). Survival data are often lacking, and consulting oncologists need to consider previously conveyed information and patients' relationship with the referring oncologist. We qualitatively invest…
The Video Engagement Scale (VES)
The Video Engagement Scale (VES) is a quality indicator to assess engagement in experimental video-vignette studies, but its measurement properties warrant improvement. Data from previous studies were combined (N = 2676) and split into three subsamples for a stepped analytical approach. We tested construct validity, criterion validity, reliability, and measurement invariance. Confirmatory factor analysis (CFA) reiterated poor fit of the previousl…
Cancer patients’ trust as a motivator to seek a second opinion and its effects on trust
OBJECTIVE: Cancer patients may seek a second opinion (SO) driven by reduced trust in their own providers. Their trust may be diminished or reinforced through the SO. This study aimed to assess (1) what proportion of patients seek SOs motivated by lacking trust and how trust changes over time; (2) whether patients' trust differs by the outcome of the SO (i.e. similar/different opinion); and (3) how communication during the SO affects trust. DESIGN…
Guidelines for reporting research using systematic coding of observed human behaviour (SCOBe)
Systematic coding of observed human behaviour (SCOBe) is used across disciplines and topics but methodological reporting is often incomplete. We developed internationally generated, interdisciplinary guidelines for methodological reporting of such research. Using Delphi methodology, a working group of 22 experts sought group consensus in three rounds. Participants first assessed an initial set of reporting criteria (round 1). Next, in interactive…
Challenges in Providing Gender-Affirming Care to Nonbinary and Genderqueer Individuals
First-year residents’ experiences of uncertainty in rural and urban emergency departments
Psychology (12 works) · Medicine (8 works) · Patient-Provider Communication in Healthcare (6 works) · Social Psychology (6 works) · Family medicine (5 works) · MEDLINE (5 works) · Sociology (5 works) · Applied Psychology (4 works) · Clinical Reasoning and Diagnostic Skills (4 works) · Health care (4 works)