Isabelle Aujoulat
Biographic Data
| ID | 140088 |
|---|---|
| NAME | Isabelle Aujoulat |
| GIVEN NAMES | Isabelle |
| FAMILY NAME | Aujoulat |
| SIGNATURE | AUJOULAT I |
| AFFILIATIONS | UCLouvain |
| ORCID | 0000-0002-7678-6252 |
| VERIFIED | Yes |
| TOTAL WORKS | 21 |
| TOTAL CITATIONS | 48 |
| AUTHOR COUNT | 21 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2007 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
Doing Qualitative Participatory Research With Patients With Chronic Rare Diseases: Backstage Processes of Peer-Interviewing
Peer research is a participatory approach in which citizens are actively involved as peer researchers (PRs) in all aspects of the research project alongside academic researchers (ARs). In qualitative studies, “peer-interviewing” raises some specific issues. There has been little discussion disentangling these specificities of peer-interviewing, and few papers report the processual experience of patients engaged in qualitative research as peer-int…
For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
BACKGROUND: Vascular liver diseases (VLDs) predominantly affect young adults and require lifelong monitoring. The health-related quality of life (HRQoL) of patients with VLDs is deteriorated, with high levels of fatigue and depressive symptoms, but their lived experience and unmet needs remain unknown. To fully integrate the patients' perspective and generate actionable insights, we conducted a qualitative peer-research study. METHODS: Twelve pee…
Being Afraid of and for One’s Parents: The Lived Experience of Children Exposed to Parental Burnout
Background: Parental burnout is a state of extreme exhaustion that is detrimental to family life. There is some evidence, albeit limited, that children of exhausted parents are at risk of neglect or abuse. The children’s lived experience remains an underinvestigated issue. This qualitative and participatory study aimed to explore children’s and adolescents’ perceptions and experience of parental burnout, as well as the resources they identify as …
Collaborative research in the medical humanities: The case for transdisciplinarity
In this article, we shall discuss the role of collaborative and transdisciplinary research, and its potential for the co-production of scientific and field knowledge that may serve the purpose of the medical humanities. Transdisciplinary research adds to the challenge of interdisciplinary dialogue – that of involving societal stakeholders to whom the research is accountable. The outcome of such research, in terms of generating knowledge that be b…
Primary prevention in hospitals in 20 high-income countries in Europe – A case of not “Making Every Contact Count”
How do exhausted parents experience their interactions with their children? A qualitative and participative study
Introduction: Parental burnout, known as a state of physical and psychological exhaustion, results in an imbalance between the parent's perceived stressors in relation to parenting, and the resources available to the parent to cope with such stressors. The causes and consequences of parental burnout for the parents themselves have been studied from the parents' point of view, but the perception of parents regarding the impact of parental burnout …
The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
This study provides, for the first time, an overview of the QoL of children and parents followed-up by PLTs in Belgium
Use and perception of information sources on Covid-19 measures by citizens of Belgium
Background The effectiveness of adherence to COVID-19 infection prevention and control (IPC) measures depends on effective risk communication. This study assessed use and perception of COVID-19 information sources and channels in Belgium, and the relationship with adherence to measures. Methods Data were collected through an online questionnaire among a sample of 2008 respondents, representative for citizens of Belgium in terms of gender, age, so…
Evolution of Therapeutic Patient Education: A Systematic Scoping Review and Scientometric Analysis
Therapeutic patient education (TPE) aims to empower the patients and their caregivers to effectively care for and manage their conditions. Such educational programs have been shown to improve health behaviors, disease outcomes, and quality of life among different patient populations. The field of TPE has evolved extensively over decades, owing to interdisciplinary research. No study so far has been done to map this field, to identify the stakehol…
Covid-19 measures in Belgium: How perception and adherence of the general population differ between time periods
It is important to consider the potential effect of fatigue among the population with regards to measures that are sustained for a long time, especially regarding measures related to social contacts. The identified risk factors for lower adherence offer insights to policy makers for future crisis communication regarding COVID-19
Hospital Resilience After the 2015 Earthquake in Nepal: Results From Semi-structured Interviews With Hospital Staff
Background: Resilient hospitals are increasingly recognized as a cornerstone of disaster reduction in global policies such as the Sendai Framework for Action. However, current hospital resilience frameworks emerged from pre-disaster conceptualizations, and have not been verified in real-life disaster contexts nor in the frontlines. Our aim was to study a tertiary hospital's resilience after the 2015 earthquake in Nepal, as experienced by its staf…
Adolescent and young adult patients as co‐researchers: A scoping review
The Relation between Perceived and Actual Understanding and Adherence: Results from a National Survey on Covid-19 Measures in Belgium
To reduce the spread of COVID-19 among the population, Belgium has implemented various infection prevention and control measures over time. This study investigated the extent to which understanding of the COVID-19 measures contributed to adherence, and which personal characteristics were considered risk factors for lower adherence. It consisted of a large online survey among a sample of the population ( n = 2008), representative of citizens of Be…
Transforming Vulnerability into Power: Exploring Empowerment among Women with Female Genital Mutilation/Cutting (FGM/C) in the Context of Migration in Belgium
This paper discusses an aspect of empowerment in relation to the central human capabilities for women with FGM/C in the diaspora. Many women who have undergone the practice of FGM/C come from societies where gender inequalities and gender-based discrimination between men and women persist, which compromises their capabilities, and many find themselves in vulnerable positions in their relationships with men, at work and in their everyday-life. The…
Maternal and Child Health of Internally Displaced Persons in Ukraine: A Qualitative Study
Due to the conflict that started in spring 2014 in Eastern Ukraine, a total of 1.75 million internally displaced persons (IDPs) fled the area and have been registered in government-controlled areas of the country. This paper explores perceived health, barriers to access to healthcare, caring practices, food security, and overall financial situation of mothers and young children displaced by the conflict in Ukraine. This is a qualitative study, wh…
Self-esteem and illness self-concept in emerging adults with Type 1 diabetes: Long-term associations with problem areas in diabetes
This long-term prospective study examined whether illness self-concept (or the degree to which chronic illness becomes integrated in the self) mediated the pathway from self-esteem to problem areas in diabetes in emerging adults with Type 1 diabetes. Having a central illness self-concept (i.e. feeling overwhelmed by diabetes) was found to relate to lower self-esteem, and more treatment, food, emotional, and social support problems. Furthermore, p…
Self‐care support in paediatric patients with type 1 diabetes: Bridging the gap between patient education and health promotion? A review
Internalizing Motivation to Self-Care: A Multifaceted Challenge for Young Liver Transplant Recipients
The transition from parent-controlled care to self-managed care represents an important challenge for adolescents with chronic conditions. We sought to gain a deeper understanding of the factors influencing the internalization of motivation to self-care in adolescent liver transplant recipients. We conducted a qualitative study using in-depth interviews with 18 young patients. We triangulated the data collected from the patients with data from pa…
Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control
Patient empowerment in theory and practice: Polysemy or cacophony?
The Perspective of Patients on Their Experience of Powerlessness
Although self-determination is a key issue in empowerment, the perspective of patients on their experience of empowerment has been poorly investigated. The authors have attempted to understand better what the process of empowerment means to patients by investigating the situations and feelings of powerlessness from which a process of empowerment might evolve. They conducted 40 interviews of patients with various chronic conditions and looked for …
Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control
The Perspective of Patients on Their Experience of Powerlessness
Although self-determination is a key issue in empowerment, the perspective of patients on their experience of empowerment has been poorly investigated. The authors have attempted to understand better what the process of empowerment means to patients by investigating the situations and feelings of powerlessness from which a process of empowerment might evolve. They conducted 40 interviews of patients with various chronic conditions and looked for …
Self-esteem and illness self-concept in emerging adults with Type 1 diabetes: Long-term associations with problem areas in diabetes
This long-term prospective study examined whether illness self-concept (or the degree to which chronic illness becomes integrated in the self) mediated the pathway from self-esteem to problem areas in diabetes in emerging adults with Type 1 diabetes. Having a central illness self-concept (i.e. feeling overwhelmed by diabetes) was found to relate to lower self-esteem, and more treatment, food, emotional, and social support problems. Furthermore, p…
Internalizing Motivation to Self-Care: A Multifaceted Challenge for Young Liver Transplant Recipients
The transition from parent-controlled care to self-managed care represents an important challenge for adolescents with chronic conditions. We sought to gain a deeper understanding of the factors influencing the internalization of motivation to self-care in adolescent liver transplant recipients. We conducted a qualitative study using in-depth interviews with 18 young patients. We triangulated the data collected from the patients with data from pa…
Transforming Vulnerability into Power: Exploring Empowerment among Women with Female Genital Mutilation/Cutting (FGM/C) in the Context of Migration in Belgium
This paper discusses an aspect of empowerment in relation to the central human capabilities for women with FGM/C in the diaspora. Many women who have undergone the practice of FGM/C come from societies where gender inequalities and gender-based discrimination between men and women persist, which compromises their capabilities, and many find themselves in vulnerable positions in their relationships with men, at work and in their everyday-life. The…
Patient empowerment in theory and practice: Polysemy or cacophony?
The Perspective of Patients on Their Experience of Powerlessness
Although self-determination is a key issue in empowerment, the perspective of patients on their experience of empowerment has been poorly investigated. The authors have attempted to understand better what the process of empowerment means to patients by investigating the situations and feelings of powerlessness from which a process of empowerment might evolve. They conducted 40 interviews of patients with various chronic conditions and looked for …
Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control
Internalizing Motivation to Self-Care: A Multifaceted Challenge for Young Liver Transplant Recipients
The transition from parent-controlled care to self-managed care represents an important challenge for adolescents with chronic conditions. We sought to gain a deeper understanding of the factors influencing the internalization of motivation to self-care in adolescent liver transplant recipients. We conducted a qualitative study using in-depth interviews with 18 young patients. We triangulated the data collected from the patients with data from pa…
Self‐care support in paediatric patients with type 1 diabetes: Bridging the gap between patient education and health promotion? A review
Self-esteem and illness self-concept in emerging adults with Type 1 diabetes: Long-term associations with problem areas in diabetes
This long-term prospective study examined whether illness self-concept (or the degree to which chronic illness becomes integrated in the self) mediated the pathway from self-esteem to problem areas in diabetes in emerging adults with Type 1 diabetes. Having a central illness self-concept (i.e. feeling overwhelmed by diabetes) was found to relate to lower self-esteem, and more treatment, food, emotional, and social support problems. Furthermore, p…
Maternal and Child Health of Internally Displaced Persons in Ukraine: A Qualitative Study
Due to the conflict that started in spring 2014 in Eastern Ukraine, a total of 1.75 million internally displaced persons (IDPs) fled the area and have been registered in government-controlled areas of the country. This paper explores perceived health, barriers to access to healthcare, caring practices, food security, and overall financial situation of mothers and young children displaced by the conflict in Ukraine. This is a qualitative study, wh…
Transforming Vulnerability into Power: Exploring Empowerment among Women with Female Genital Mutilation/Cutting (FGM/C) in the Context of Migration in Belgium
This paper discusses an aspect of empowerment in relation to the central human capabilities for women with FGM/C in the diaspora. Many women who have undergone the practice of FGM/C come from societies where gender inequalities and gender-based discrimination between men and women persist, which compromises their capabilities, and many find themselves in vulnerable positions in their relationships with men, at work and in their everyday-life. The…
Hospital Resilience After the 2015 Earthquake in Nepal: Results From Semi-structured Interviews With Hospital Staff
Background: Resilient hospitals are increasingly recognized as a cornerstone of disaster reduction in global policies such as the Sendai Framework for Action. However, current hospital resilience frameworks emerged from pre-disaster conceptualizations, and have not been verified in real-life disaster contexts nor in the frontlines. Our aim was to study a tertiary hospital's resilience after the 2015 earthquake in Nepal, as experienced by its staf…
Adolescent and young adult patients as co‐researchers: A scoping review
The Relation between Perceived and Actual Understanding and Adherence: Results from a National Survey on Covid-19 Measures in Belgium
To reduce the spread of COVID-19 among the population, Belgium has implemented various infection prevention and control measures over time. This study investigated the extent to which understanding of the COVID-19 measures contributed to adherence, and which personal characteristics were considered risk factors for lower adherence. It consisted of a large online survey among a sample of the population ( n = 2008), representative of citizens of Be…
Use and perception of information sources on Covid-19 measures by citizens of Belgium
Background The effectiveness of adherence to COVID-19 infection prevention and control (IPC) measures depends on effective risk communication. This study assessed use and perception of COVID-19 information sources and channels in Belgium, and the relationship with adherence to measures. Methods Data were collected through an online questionnaire among a sample of 2008 respondents, representative for citizens of Belgium in terms of gender, age, so…
Evolution of Therapeutic Patient Education: A Systematic Scoping Review and Scientometric Analysis
Therapeutic patient education (TPE) aims to empower the patients and their caregivers to effectively care for and manage their conditions. Such educational programs have been shown to improve health behaviors, disease outcomes, and quality of life among different patient populations. The field of TPE has evolved extensively over decades, owing to interdisciplinary research. No study so far has been done to map this field, to identify the stakehol…
Covid-19 measures in Belgium: How perception and adherence of the general population differ between time periods
It is important to consider the potential effect of fatigue among the population with regards to measures that are sustained for a long time, especially regarding measures related to social contacts. The identified risk factors for lower adherence offer insights to policy makers for future crisis communication regarding COVID-19
The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
This study provides, for the first time, an overview of the QoL of children and parents followed-up by PLTs in Belgium
How do exhausted parents experience their interactions with their children? A qualitative and participative study
Introduction: Parental burnout, known as a state of physical and psychological exhaustion, results in an imbalance between the parent's perceived stressors in relation to parenting, and the resources available to the parent to cope with such stressors. The causes and consequences of parental burnout for the parents themselves have been studied from the parents' point of view, but the perception of parents regarding the impact of parental burnout …
Primary prevention in hospitals in 20 high-income countries in Europe – A case of not “Making Every Contact Count”
Doing Qualitative Participatory Research With Patients With Chronic Rare Diseases: Backstage Processes of Peer-Interviewing
Peer research is a participatory approach in which citizens are actively involved as peer researchers (PRs) in all aspects of the research project alongside academic researchers (ARs). In qualitative studies, “peer-interviewing” raises some specific issues. There has been little discussion disentangling these specificities of peer-interviewing, and few papers report the processual experience of patients engaged in qualitative research as peer-int…
For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
BACKGROUND: Vascular liver diseases (VLDs) predominantly affect young adults and require lifelong monitoring. The health-related quality of life (HRQoL) of patients with VLDs is deteriorated, with high levels of fatigue and depressive symptoms, but their lived experience and unmet needs remain unknown. To fully integrate the patients' perspective and generate actionable insights, we conducted a qualitative peer-research study. METHODS: Twelve pee…
Being Afraid of and for One’s Parents: The Lived Experience of Children Exposed to Parental Burnout
Background: Parental burnout is a state of extreme exhaustion that is detrimental to family life. There is some evidence, albeit limited, that children of exhausted parents are at risk of neglect or abuse. The children’s lived experience remains an underinvestigated issue. This qualitative and participatory study aimed to explore children’s and adolescents’ perceptions and experience of parental burnout, as well as the resources they identify as …
Collaborative research in the medical humanities: The case for transdisciplinarity
In this article, we shall discuss the role of collaborative and transdisciplinary research, and its potential for the co-production of scientific and field knowledge that may serve the purpose of the medical humanities. Transdisciplinary research adds to the challenge of interdisciplinary dialogue – that of involving societal stakeholders to whom the research is accountable. The outcome of such research, in terms of generating knowledge that be b…
Psychology (15 works) · Medicine (14 works) · Qualitative research (9 works) · Political science (8 works) · Feeling (7 works) · Sociology (7 works) · Health care (6 works) · Nursing (6 works) · Perception (6 works) · Social Psychology (6 works)