Internalizing Motivation to Self-Care

A Multifaceted Challenge for Young Liver Transplant Recipients

Bibliographic Data

ID4636739
AuthorsIsabelle Aujoulat (0000-0002-7678-6252, Université Catholique de Louvain, Brussels, Belgium), Magda Janssen (Université Catholique de Louvain, Brussels, Belgium), France Libion (Université Catholique de Louvain, Brussels, Belgium), Anne-Sophie Charles (Université Catholique de Louvain, Brussels, Belgium), Anne‐Sophie Charles (UCLouvain), Catherine Struyf (Université Catholique de Louvain, Brussels, Belgium), Françoise Smets (Université Catholique de Louvain, Brussels, Belgium), Xavier Stephenne (0000-0002-1381-2265, Université Catholique de Louvain, Brussels, Belgium), Catherine De Magnée (0000-0002-9208-9414, Université Catholique de Louvain, Brussels, Belgium), Etienne Sokal (0000-0001-5597-4708, Université Catholique de Louvain, Brussels, Belgium), Jan Lerut (0000-0003-4015-463X, Université Catholique de Louvain, Brussels, Belgium), Olga Ciccarelli (0000-0003-0638-1660, Université Catholique de Louvain, Brussels, Belgium), Raymond Reding (0000-0003-0699-4600, Université Catholique de Louvain, Brussels, Belgium)
Year2014
Volume24
Issue3
Pages357-365
Publication date2014-03-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732314523505
PMID24572011
OpenAlexW2125293352
LanguageEN
Citations received3
References cited34

The transition from parent-controlled care to self-managed care represents an important challenge for adolescents with chronic conditions. We sought to gain a deeper understanding of the factors influencing the internalization of motivation to self-care in adolescent liver transplant recipients. We conducted a qualitative study using in-depth interviews with 18 young patients. We triangulated the data collected from the patients with data from parents and health care providers, and used an inductive approach to analyze the data. Our results illustrate three interrelated challenges that impact on young patients' motivation to self-care: (a) the cognitive challenge of fully understanding one's condition and personal health risks; (b) the behavioral challenge of developing independence regarding self-management issues; and (c) the psychological challenge of building a sense of self-ownership and purpose. The latter involves overcoming the trauma of survival and coming to terms with feelings of obligation, two challenges inherent to transplantation that warrant further investigation

Cognition · Feeling · Health care · Obligation · Psychiatry · Qualitative research · Self care · Self-management · Warrant · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Family Support in Illness · Medicine · Nursing · Psychology · Social Psychology

Tools

Open DOISci-Hub