Patricia A Marshall
Biographic Data
| ID | 146812 |
|---|---|
| NAME | Patricia A Marshall |
| GIVEN NAMES | Patricia A |
| FAMILY NAME | Marshall |
| SIGNATURE | MARSHALL P A |
| AFFILIATIONS | Case Western Reserve University |
| VERIFIED | No |
| TOTAL WORKS | 28 |
| TOTAL CITATIONS | 85 |
| AUTHOR COUNT | 28 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1982 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 5 |
Lessons learned from the translation of the Internalised Stigma of Mental Illness (Ismi) scale into isiXhosa for use with South African Xhosa people with schizophrenia
Internalised stigma is highly prevalent among people with mental illness. This is concerning because internalised stigma is often associated with negative consequences affecting individuals' personal, familial, social, and overall wellbeing, employment opportunities and recovery. Currently, there is no psychometrically validated instrument to measure internalised stigma among Xhosa people in their home language. Our study aimed to translate the I…
Guideline for feedback of individual genetic research findings for genomics research in Africa
As human genomics research in Africa continues to generate large amounts of data, ethical issues arise regarding how actionable genetic information is shared with research participants. The Human Heredity and Health in Africa Consortium (H3Africa) Ethics and Community Engagement Working group acknowledged the need for such guidance, identified key issues and principles relevant to genomics research in Africa and developed a practical guideline fo…
The role of causal knowledge in stigma considerations in African genomics research
Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa
Is There a Space for Place in Family History Assessment? Underserved Community Views on the Impact of Neighborhood Factors on Health and Prevention
Gene–environment interactions and health inequalities
Negotiating Decisions during Informed Consent for Pediatric Phase I Oncology Trials
During informed consent conferences (ICCs) for Phase I trials, oncologists must present complex information while addressing concerns. Research on communication that evolves during ICCs remains largely unexplored. We examined communication during ICCs for pediatric Phase I cancer trials using a stratified random sample from six pediatric cancer centers. A grounded theory approach identified key communication steps and factors influencing the nego…
Informed Consent Practices in Nigeria
Most writing on informed consent in Africa highlights different cultural and social attributes that influence informed consent practices, especially in research settings. This review presents a composite picture of informed consent in Nigeria using empirical studies and legal and regulatory prescriptions, as well as clinical experience. It shows that Nigeria, like most other nations in Africa, is a mixture of sociocultural entities, and, notwiths…
Informed Consent in International Health Research
Informed consent is universally recognized as a central component of ethical conduct in scientific research. Investigators working with diverse populations throughout the world face myriad challenges. The application of standards for informed consent can be daunting for researchers when they face the pragmatic constraints of the field and the reality of cultural beliefs about consent that may be in direct conflict with regulatory requirements. Th…
Voluntary Participation and Informed Consent to International Genetic Research
Objectives. We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. Methods. Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study’s genetic purpose. A total of 655 individuals (United States: 348; Nige…
Psychosocial and Behavioral Differences Among Drug Injectors who Use and do not Use Syringe Exchange Programs
On Research Ethics
The International HapMap Project
The goal of the International HapMap Project is to determine the common patterns of DNA sequence variation in the human genome and to make this information freely available in the public domain. An international consortium is developing a map of these patterns across the genome by determining the genotypes of one million or more sequence variants, their frequencies and the degree of association between them, in DNA samples from populations with a…
Maintaining Respectability and Responsibility
Gender-related factors and the social and economic conditions that impact the lives and health of women injection drug users (IDUs) in Chicago are described. Although study participants are highly imaginative and resourceful in terms of income-generating self-sufficiency, they engage in a variety of behaviors that put them at risk of contracting infectious diseases such as HIV and hepatitis B and C viruses. We point out that labor inequalities ex…
Society for Medical Anthropology
Bioéthique et anthropologie
Bioéthique et anthropologie. Situer le « bien » dans la pratique médicale Cet article examine comment des anthropologues qui travaillent sur la bioéthique ont réussi à concilier deux conceptions de la morale médicale : l'une qui s'enracine dans les mondes locaux et l'autre, issue de la philosophie occidentale, qui applique des principes universels. Nous replaçons différentes notions de la personne dans le contexte de leur émergence pour montrer l…
The Decision Dynamics of Clinical Research
This article explores the neglected dimensions of informed consent. In such documents as the Code of Federal Regulations that govern clinical research, it is explicitly stated that informed consent is a process, not a form to be signed. However, virtually all research on informed consent has proceeded as if informed consent is an event similar to a Miranda warning. The authors review what is known about the process of informed consent and ask wha…
The emergent impact of syringe exchange programs on shooting galleries and injection behaviors in three ethnically diverse Chicago neighborhoods
This paper examines the influence of syringe exchange programs (SEPs) in three ethnically diverse Chicago neighborhoods on changes in injection risk behaviors and the settings in which they occur. Despite community diversity, findings show a trend away from large, traditional “cash” or “free” galleries, housed in neighborhood apartments or in abandoned buildings, to smaller, “cash” or “taste” galleries, located in drug associates’ residences or o…
Sickness and Healing
Sickness and Healing: An Anthropological Perspective. Robert A. Hahn. New Haven, CT: Yale University Press, 1995 (cloth and paper), viii. 327 pp
The Ethics of Caring for Conjoined Twins
David C. Thomasma, Jonathan Muraskas, Patricia A. Marshall, Thomas Myers, Paul Tomich, James A. O'Neill, Jr., The Ethics of Caring for Conjoined Twins: The Lakeberg Twins, The Hastings Center Report, Vol. 26, No. 4 (Jul. - Aug., 1996), pp. 4-12
The Support Study
SUPPORT failed to produce the intended results partly because it\ncreated an intervention that kept a cultural system intact
Medical students' first-person narratives of a patient's story of Aids
Ethics in Human Reproduction Research in the Muslim World
Research Ethics in Applied Anthropology
The defining characteristics of applied anthropology are first, a strong commitment to social change through the application of anthropological concepts and skills in collaborative and interdisciplinary research, and second, a fundamental belief in the importance of utilizing anthropological knowledge. The type of research conducted by applied anthropologists may involve evaluations of ongoing human behavior or interventions designed to change th…
Anthropology and Bioethics
The field of bioethics has been dominated by the tenets and assumptions of Western philosophical rationalistic thought. A principles and rights-based approach to discussions of moral dilemmas has sustained and reinforced a pervasive reductionism, utilitarianism, and ethnocentrism in the field. Recent explorations of casuistry and hermeneutics suggest a movement toward an expanded theoretical and conceptual framing of medical ethical problems. Inc…
Anthropology and Bioethics
The field of bioethics has been dominated by the tenets and assumptions of Western philosophical rationalistic thought. A principles and rights-based approach to discussions of moral dilemmas has sustained and reinforced a pervasive reductionism, utilitarianism, and ethnocentrism in the field. Recent explorations of casuistry and hermeneutics suggest a movement toward an expanded theoretical and conceptual framing of medical ethical problems. Inc…
Anthropological Contributions to Aids Research
Medical students' first-person narratives of a patient's story of Aids
Informed Consent in International Health Research
Informed consent is universally recognized as a central component of ethical conduct in scientific research. Investigators working with diverse populations throughout the world face myriad challenges. The application of standards for informed consent can be daunting for researchers when they face the pragmatic constraints of the field and the reality of cultural beliefs about consent that may be in direct conflict with regulatory requirements. Th…
Research Ethics in Applied Anthropology
The defining characteristics of applied anthropology are first, a strong commitment to social change through the application of anthropological concepts and skills in collaborative and interdisciplinary research, and second, a fundamental belief in the importance of utilizing anthropological knowledge. The type of research conducted by applied anthropologists may involve evaluations of ongoing human behavior or interventions designed to change th…
Bioéthique et anthropologie
Bioéthique et anthropologie. Situer le « bien » dans la pratique médicale Cet article examine comment des anthropologues qui travaillent sur la bioéthique ont réussi à concilier deux conceptions de la morale médicale : l'une qui s'enracine dans les mondes locaux et l'autre, issue de la philosophie occidentale, qui applique des principes universels. Nous replaçons différentes notions de la personne dans le contexte de leur émergence pour montrer l…
Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa
Touch and Contamination
In this study we investigate patients' concerns about HIV transmission from doctors during the course of routine medical care. Patients' fear of AIDS, level of discomfort with medical procedures performed by a physician suspected of having AIDS, and perceived risk of AIDS transmission in physician-patient interactions were examined among 313 patients attending adult clinics at a university-based outpatient center in a large Midwestern city. Resul…
Negotiating Decisions during Informed Consent for Pediatric Phase I Oncology Trials
During informed consent conferences (ICCs) for Phase I trials, oncologists must present complex information while addressing concerns. Research on communication that evolves during ICCs remains largely unexplored. We examined communication during ICCs for pediatric Phase I cancer trials using a stratified random sample from six pediatric cancer centers. A grounded theory approach identified key communication steps and factors influencing the nego…
Voluntary Participation and Informed Consent to International Genetic Research
Objectives. We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. Methods. Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study’s genetic purpose. A total of 655 individuals (United States: 348; Nige…
The role of causal knowledge in stigma considerations in African genomics research
On Research Ethics
The emergent impact of syringe exchange programs on shooting galleries and injection behaviors in three ethnically diverse Chicago neighborhoods
This paper examines the influence of syringe exchange programs (SEPs) in three ethnically diverse Chicago neighborhoods on changes in injection risk behaviors and the settings in which they occur. Despite community diversity, findings show a trend away from large, traditional “cash” or “free” galleries, housed in neighborhood apartments or in abandoned buildings, to smaller, “cash” or “taste” galleries, located in drug associates’ residences or o…
Sickness and Healing
Sickness and Healing: An Anthropological Perspective. Robert A. Hahn. New Haven, CT: Yale University Press, 1995 (cloth and paper), viii. 327 pp
Locus of Illness Control
A comparative study of rural Haitian and southern Appalachian health beliefs revealed significant differences both within and between groups regarding perceived control over illness. Data consisted of scores (N = 293) on the Locus of Illness Control Scale, a 15-item forced-choice instrument designed to include two subscales, one focused on illness prevention, the other on cure. Both cultural groups scored more externally on the cure dimension tha…
Touch and Contamination
In this study we investigate patients' concerns about HIV transmission from doctors during the course of routine medical care. Patients' fear of AIDS, level of discomfort with medical procedures performed by a physician suspected of having AIDS, and perceived risk of AIDS transmission in physician-patient interactions were examined among 313 patients attending adult clinics at a university-based outpatient center in a large Midwestern city. Resul…
Anthropological Contributions to Aids Research
Ethics in Human Reproduction Research in the Muslim World
Research Ethics in Applied Anthropology
The defining characteristics of applied anthropology are first, a strong commitment to social change through the application of anthropological concepts and skills in collaborative and interdisciplinary research, and second, a fundamental belief in the importance of utilizing anthropological knowledge. The type of research conducted by applied anthropologists may involve evaluations of ongoing human behavior or interventions designed to change th…
Anthropology and Bioethics
The field of bioethics has been dominated by the tenets and assumptions of Western philosophical rationalistic thought. A principles and rights-based approach to discussions of moral dilemmas has sustained and reinforced a pervasive reductionism, utilitarianism, and ethnocentrism in the field. Recent explorations of casuistry and hermeneutics suggest a movement toward an expanded theoretical and conceptual framing of medical ethical problems. Inc…
The Support Study
SUPPORT failed to produce the intended results partly because it\ncreated an intervention that kept a cultural system intact
Medical students' first-person narratives of a patient's story of Aids
The Ethics of Caring for Conjoined Twins
David C. Thomasma, Jonathan Muraskas, Patricia A. Marshall, Thomas Myers, Paul Tomich, James A. O'Neill, Jr., The Ethics of Caring for Conjoined Twins: The Lakeberg Twins, The Hastings Center Report, Vol. 26, No. 4 (Jul. - Aug., 1996), pp. 4-12
Sickness and Healing
Sickness and Healing: An Anthropological Perspective. Robert A. Hahn. New Haven, CT: Yale University Press, 1995 (cloth and paper), viii. 327 pp
The emergent impact of syringe exchange programs on shooting galleries and injection behaviors in three ethnically diverse Chicago neighborhoods
This paper examines the influence of syringe exchange programs (SEPs) in three ethnically diverse Chicago neighborhoods on changes in injection risk behaviors and the settings in which they occur. Despite community diversity, findings show a trend away from large, traditional “cash” or “free” galleries, housed in neighborhood apartments or in abandoned buildings, to smaller, “cash” or “taste” galleries, located in drug associates’ residences or o…
The Decision Dynamics of Clinical Research
This article explores the neglected dimensions of informed consent. In such documents as the Code of Federal Regulations that govern clinical research, it is explicitly stated that informed consent is a process, not a form to be signed. However, virtually all research on informed consent has proceeded as if informed consent is an event similar to a Miranda warning. The authors review what is known about the process of informed consent and ask wha…
The International HapMap Project
The goal of the International HapMap Project is to determine the common patterns of DNA sequence variation in the human genome and to make this information freely available in the public domain. An international consortium is developing a map of these patterns across the genome by determining the genotypes of one million or more sequence variants, their frequencies and the degree of association between them, in DNA samples from populations with a…
Maintaining Respectability and Responsibility
Gender-related factors and the social and economic conditions that impact the lives and health of women injection drug users (IDUs) in Chicago are described. Although study participants are highly imaginative and resourceful in terms of income-generating self-sufficiency, they engage in a variety of behaviors that put them at risk of contracting infectious diseases such as HIV and hepatitis B and C viruses. We point out that labor inequalities ex…
Society for Medical Anthropology
Bioéthique et anthropologie
Bioéthique et anthropologie. Situer le « bien » dans la pratique médicale Cet article examine comment des anthropologues qui travaillent sur la bioéthique ont réussi à concilier deux conceptions de la morale médicale : l'une qui s'enracine dans les mondes locaux et l'autre, issue de la philosophie occidentale, qui applique des principes universels. Nous replaçons différentes notions de la personne dans le contexte de leur émergence pour montrer l…
Psychosocial and Behavioral Differences Among Drug Injectors who Use and do not Use Syringe Exchange Programs
On Research Ethics
Informed Consent in International Health Research
Informed consent is universally recognized as a central component of ethical conduct in scientific research. Investigators working with diverse populations throughout the world face myriad challenges. The application of standards for informed consent can be daunting for researchers when they face the pragmatic constraints of the field and the reality of cultural beliefs about consent that may be in direct conflict with regulatory requirements. Th…
Voluntary Participation and Informed Consent to International Genetic Research
Objectives. We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. Methods. Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study’s genetic purpose. A total of 655 individuals (United States: 348; Nige…
Informed Consent Practices in Nigeria
Most writing on informed consent in Africa highlights different cultural and social attributes that influence informed consent practices, especially in research settings. This review presents a composite picture of informed consent in Nigeria using empirical studies and legal and regulatory prescriptions, as well as clinical experience. It shows that Nigeria, like most other nations in Africa, is a mixture of sociocultural entities, and, notwiths…
Negotiating Decisions during Informed Consent for Pediatric Phase I Oncology Trials
During informed consent conferences (ICCs) for Phase I trials, oncologists must present complex information while addressing concerns. Research on communication that evolves during ICCs remains largely unexplored. We examined communication during ICCs for pediatric Phase I cancer trials using a stratified random sample from six pediatric cancer centers. A grounded theory approach identified key communication steps and factors influencing the nego…
Gene–environment interactions and health inequalities
Is There a Space for Place in Family History Assessment? Underserved Community Views on the Impact of Neighborhood Factors on Health and Prevention
Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa
Medicine (18 works) · Psychology (17 works) · Sociology (13 works) · Ethics in Clinical Research (8 works) · Political science (8 works) · Computer Science (6 works) · Ethics in medical practice (6 works) · Social Psychology (6 works) · Social Psychology (6 works) · Alternative medicine (5 works)