Maya Sabatello
Biographic Data
| ID | 1493142 |
|---|---|
| NAME | Maya Sabatello |
| GIVEN NAMES | Maya |
| FAMILY NAME | Sabatello |
| SIGNATURE | SABATELLO M |
| AFFILIATIONS | Cal Humanities |
| ORCID | 0000-0003-4444-5389 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 10 |
| EDITOR COUNT | 1 |
| FIRST PUBLICATION YEAR | 2009 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 1 |
Precision medicine and the problem of structural injustice
Many countries currently invest in technologies and data infrastructures to foster precision medicine (PM), which is hoped to better tailor disease treatment and prevention to individual patients. But who can expect to benefit from PM? The answer depends not only on scientific developments but also on the willingness to address the problem of structural injustice. One important step is to confront the problem of underrepresentation of certain pop…
The double helix at school: Behavioral genetics, disability, and precision education
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern
Since the inception of large‐scale human genome research, there has been much caution about the risks of exacerbating a number of socially dangerous attitudes linked to human genetics. These attitudes are usually labeled with one of a family of genetic or genomic “isms” or “ations” such as “genetic essentialism,” “genetic determinism,” “genetic reductionism,” “geneticization,” “genetic stigmatization,” and “genetic discrimination.” The psychosoci…
Between a Rock and a Hard Place: The Collective Good at a Time of Medical Narcissism
Not a single day goes by without some news about personalized medicine, especially in its genomic context (precision medicine). In tandem with the scientific excitement, however, come the cautionary notes. These include worries about Big Brother surveillance, concerns about the impact of genomic results on the psychosocial well‐being of patients and research subjects, and attention to issues of social and distributive justice . Personalised Medic…
Cultivating inclusivity in precision medicine research: Disability, diversity, and cultural competence
The Precision Medicine Nation
The United States’ ambitious Precision Medicine Initiative proposes to accelerate exponentially the adoption of precision medicine, an approach to health care that tailors disease diagnosis, treatment, and prevention to individual variability in genes, environment, and lifestyle. It aims to achieve this by creating a cohort of volunteers for precision medicine research, accelerating biomedical research innovation, and adopting policies geared tow…
Human Rights and Disability Advocacy
The United Nations adoption of the Convention on the Rights of Persons with Disabilities (CRPD) constituted a paradigm shift in attitudes and approaches to disability rights, marking the first time in law-making history that persons with disabilities participated as civil society representatives and contributed to the drafting of an international treaty. On the way, they brought a new kind of diplomacy forward: empowering nongovernmental stakehol…
Children with Disabilities: A Critical Appraisal
This essay contemplates the rights of children with disabilities under international law. It analyses the philosophical and practical reasons for the failure of the Convention on the Rights of the Child to protect the rights of children with disabilities, and looks at the remedial measures adopted under the Convention on the Rights of Persons with Disabilities (CRPD). The argument advanced is that, especially when children’s perspectives are cons…
Are the Kids All Right? A Child-Centred Approach to Assisted Reproductive Technologies
This article examines one of the least explored aspects of assisted reproductive technologies (ART) – that is, the rights of ART-born children. Taking an international human rights law perspective, the article considers two arguable clashes of rights that have been raised with regard to ART-born children: the use of ART as child abuse and genetic selection of offspring. It further explores whether and how adding children's perspective to the disc…
The Politics of the Child's Right to Identity in a Disability-Free Society
The essay examines the legal and moral implications of pre-natal genetic selection of disability in the context of children. I build on scholarly literature on the politics of identity and of culture to explore whether scientific developments prompt a child's "right to a sound mind and body." I consider this question in light of international human rights standards, including the recent European Conventions on Human Rights and Biomedicine, and pa…
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
Children with Disabilities: A Critical Appraisal
This essay contemplates the rights of children with disabilities under international law. It analyses the philosophical and practical reasons for the failure of the Convention on the Rights of the Child to protect the rights of children with disabilities, and looks at the remedial measures adopted under the Convention on the Rights of Persons with Disabilities (CRPD). The argument advanced is that, especially when children’s perspectives are cons…
The Politics of the Child's Right to Identity in a Disability-Free Society
The essay examines the legal and moral implications of pre-natal genetic selection of disability in the context of children. I build on scholarly literature on the politics of identity and of culture to explore whether scientific developments prompt a child's "right to a sound mind and body." I consider this question in light of international human rights standards, including the recent European Conventions on Human Rights and Biomedicine, and pa…
Children with Disabilities: A Critical Appraisal
This essay contemplates the rights of children with disabilities under international law. It analyses the philosophical and practical reasons for the failure of the Convention on the Rights of the Child to protect the rights of children with disabilities, and looks at the remedial measures adopted under the Convention on the Rights of Persons with Disabilities (CRPD). The argument advanced is that, especially when children’s perspectives are cons…
Are the Kids All Right? A Child-Centred Approach to Assisted Reproductive Technologies
This article examines one of the least explored aspects of assisted reproductive technologies (ART) – that is, the rights of ART-born children. Taking an international human rights law perspective, the article considers two arguable clashes of rights that have been raised with regard to ART-born children: the use of ART as child abuse and genetic selection of offspring. It further explores whether and how adding children's perspective to the disc…
Human Rights and Disability Advocacy
The United Nations adoption of the Convention on the Rights of Persons with Disabilities (CRPD) constituted a paradigm shift in attitudes and approaches to disability rights, marking the first time in law-making history that persons with disabilities participated as civil society representatives and contributed to the drafting of an international treaty. On the way, they brought a new kind of diplomacy forward: empowering nongovernmental stakehol…
The Precision Medicine Nation
The United States’ ambitious Precision Medicine Initiative proposes to accelerate exponentially the adoption of precision medicine, an approach to health care that tailors disease diagnosis, treatment, and prevention to individual variability in genes, environment, and lifestyle. It aims to achieve this by creating a cohort of volunteers for precision medicine research, accelerating biomedical research innovation, and adopting policies geared tow…
Cultivating inclusivity in precision medicine research: Disability, diversity, and cultural competence
Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern
Since the inception of large‐scale human genome research, there has been much caution about the risks of exacerbating a number of socially dangerous attitudes linked to human genetics. These attitudes are usually labeled with one of a family of genetic or genomic “isms” or “ations” such as “genetic essentialism,” “genetic determinism,” “genetic reductionism,” “geneticization,” “genetic stigmatization,” and “genetic discrimination.” The psychosoci…
Between a Rock and a Hard Place: The Collective Good at a Time of Medical Narcissism
Not a single day goes by without some news about personalized medicine, especially in its genomic context (precision medicine). In tandem with the scientific excitement, however, come the cautionary notes. These include worries about Big Brother surveillance, concerns about the impact of genomic results on the psychosocial well‐being of patients and research subjects, and attention to issues of social and distributive justice . Personalised Medic…
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
The double helix at school: Behavioral genetics, disability, and precision education
Precision medicine and the problem of structural injustice
Many countries currently invest in technologies and data infrastructures to foster precision medicine (PM), which is hoped to better tailor disease treatment and prevention to individual patients. But who can expect to benefit from PM? The answer depends not only on scientific developments but also on the willingness to address the problem of structural injustice. One important step is to confront the problem of underrepresentation of certain pop…
Sociology (9 works) · Medicine (7 works) · Political science (7 works) · Law (6 works) · Psychology (6 works) · Human rights (4 works) · Social Psychology (4 works) · Ethics and Legal Issues in Pediatric Healthcare (3 works) · Ethics in Clinical Research (3 works) · Law (3 works)