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Carolina Wannheden

Biographic Data

ID1732757
NAMECarolina Wannheden
GIVEN NAMESCarolina
FAMILY NAMEWannheden
SIGNATUREWANNHEDEN C
AFFILIATIONSKarolinska Institutet
ORCID0000-0003-2122-1083
VERIFIEDYes
TOTAL WORKS9
TOTAL CITATIONS3
WORKS AS AUTHOR9
WORKS AS EDITOR0
FIRST PUBLICATION YEAR2019
LATEST PUBLICATION YEAR2024
H-INDEX1
  • Understanding Co‐Creation in a Research Partnership Programme Exploring Patient‐Driven Innovations

    Open Access•Hanna Jansson, Jamie L Luckhaus et al.•ARTICLE•Health Expectations•2024

    BACKGROUND: Research indicates that successful co-creation depends on a shared understanding of co-creation and its related concepts. However, it also shows that, in practice, views on co-creation and how to do it differ. This study aims to explore how patient innovators and researchers in a partnership research programme understand co-creation and how this understanding changes over time. METHODS: An explorative longitudinal qualitative study wa…

  • Now What? Collective Sensemaking and Sensegiving in the Cystic Fibrosis Community in Sweden During the Initial Phase of the Covid-19 Pandemic

    Open Access•Carolina Wannheden, Henna Hasson et al.•ARTICLE•Health Communication•2023

    The COVID-19 pandemic's effects on people's lives and society induced a need for rapid individual and collective sensemaking, including communication forums enabling stakeholders in the health ecosystem to share information, solve problems, and learn. This study specifically focused on the needs of the patients and family caregivers living with cystic fibrosis (CF) or primary ciliary dyskinesia (PCD), conditions that lead to chronic infections an…

  • A rocky road but worth the drive

    Open Access•Carolina Wannheden, Sara Riggare et al.•ARTICLE•Health Expectations•2023

    BACKGROUND: Partnership research practices involving various stakeholder groups are gaining ground. Yet, the research community is still exploring how to effectively coproduce research together. This study describes (a) key programme developments in the creation of a 6-year partnership research programme in Sweden, and (b) explores the hopes, expectations, and experiences of patient innovators (i.e., individuals with lived experience as patients …

  • Better self-care through co-care? A latent profile analysis of primary care patients' experiences of e-health–supported chronic care management

    Open Access•Carolina Wannheden, Marta Roczniewska et al.•ARTICLE•Frontiers in Public Health•2022

    Background: Efficient self-care of chronic conditions requires that an individual's resources be optimally combined with healthcare's resources, sometimes supported by e-health services (i.e., co-care). This calls for a system perspective of self-care to determine to what extent it involves demanding or unnecessary tasks and whether role clarity, needs support, and goal orientation are sufficient. This study aims to explore typical configurations…

  • What matters to persons living with brain tumors and their informal caregivers? An interview study of qualities in interpersonal relations

    Open Access•Marie Dahlberg, Ami Bylund et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 3•References: 43

    The CareMaps tool was helpful in elucidating qualities in interpersonal relations that contribute to individuals' self-care. Future research should investigate how social network-mapping tools that capture quality in social relations should be designed and used to support individuals in their self-care

  • Satisfied or Frustrated? A Qualitative Analysis of Need Satisfying and Need Frustrating Experiences of Engaging With Digital Health Technology in Chronic Care

    Open Access•Carolina Wannheden, Terese Stenfors et al.•ARTICLE•Frontiers in Public Health•2021

    Introduction: Digital health technologies such as self-monitoring devices and apps are becoming increasingly important as tools to promote healthy habits and support individuals in their self-care. There is still a scarcity of research that builds on motivational theory to better understand the functioning of digital health technologies. The self-determination theory (SDT) is a macro theory of motivation that delineates three basic psychological …

  • Design and Development of an eHealth Service for Collaborative Self-Management among Older Adults with Chronic Diseases

    Open Access•Mirjam Ekstedt, Marie Kirsebom et al.•ARTICLE•International Journal of…•2021

    The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. As patients' engagement in self-managing their chronic conditions becomes increasingly important, eHealth interventions are a promising resource for the provision of adequate and timely support. However, there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients. This study applied an evid…

  • Who cares? Uncovering social Support Needs and Resources of malignant CNS Tumor Patients and their informal Caregivers

    Open Access•Marie Dahlberg, Carolina Wannheden et al.•ARTICLE•International Journal of…•2019

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Through the eye of the service user representative, what key components contribute to value in integrated mental-health and social care services

    Open Access•Charlotte Klinga, Henna Hasson et al.•ARTICLE•International Journal of…•2019

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • What matters to persons living with brain tumors and their informal caregivers? An interview study of qualities in interpersonal relations

    Open Access•Marie Dahlberg, Ami Bylund et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 3•References: 43

    The CareMaps tool was helpful in elucidating qualities in interpersonal relations that contribute to individuals' self-care. Future research should investigate how social network-mapping tools that capture quality in social relations should be designed and used to support individuals in their self-care

  • Who cares? Uncovering social Support Needs and Resources of malignant CNS Tumor Patients and their informal Caregivers

    Open Access•Marie Dahlberg, Carolina Wannheden et al.•ARTICLE•International Journal of…•2019

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Through the eye of the service user representative, what key components contribute to value in integrated mental-health and social care services

    Open Access•Charlotte Klinga, Henna Hasson et al.•ARTICLE•International Journal of…•2019

    The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

  • Satisfied or Frustrated? A Qualitative Analysis of Need Satisfying and Need Frustrating Experiences of Engaging With Digital Health Technology in Chronic Care

    Open Access•Carolina Wannheden, Terese Stenfors et al.•ARTICLE•Frontiers in Public Health•2021

    Introduction: Digital health technologies such as self-monitoring devices and apps are becoming increasingly important as tools to promote healthy habits and support individuals in their self-care. There is still a scarcity of research that builds on motivational theory to better understand the functioning of digital health technologies. The self-determination theory (SDT) is a macro theory of motivation that delineates three basic psychological …

  • Design and Development of an eHealth Service for Collaborative Self-Management among Older Adults with Chronic Diseases

    Open Access•Mirjam Ekstedt, Marie Kirsebom et al.•ARTICLE•International Journal of…•2021

    The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. As patients' engagement in self-managing their chronic conditions becomes increasingly important, eHealth interventions are a promising resource for the provision of adequate and timely support. However, there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients. This study applied an evid…

  • Better self-care through co-care? A latent profile analysis of primary care patients' experiences of e-health–supported chronic care management

    Open Access•Carolina Wannheden, Marta Roczniewska et al.•ARTICLE•Frontiers in Public Health•2022

    Background: Efficient self-care of chronic conditions requires that an individual's resources be optimally combined with healthcare's resources, sometimes supported by e-health services (i.e., co-care). This calls for a system perspective of self-care to determine to what extent it involves demanding or unnecessary tasks and whether role clarity, needs support, and goal orientation are sufficient. This study aims to explore typical configurations…

  • What matters to persons living with brain tumors and their informal caregivers? An interview study of qualities in interpersonal relations

    Open Access•Marie Dahlberg, Ami Bylund et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 3•References: 43

    The CareMaps tool was helpful in elucidating qualities in interpersonal relations that contribute to individuals' self-care. Future research should investigate how social network-mapping tools that capture quality in social relations should be designed and used to support individuals in their self-care

  • Now What? Collective Sensemaking and Sensegiving in the Cystic Fibrosis Community in Sweden During the Initial Phase of the Covid-19 Pandemic

    Open Access•Carolina Wannheden, Henna Hasson et al.•ARTICLE•Health Communication•2023

    The COVID-19 pandemic's effects on people's lives and society induced a need for rapid individual and collective sensemaking, including communication forums enabling stakeholders in the health ecosystem to share information, solve problems, and learn. This study specifically focused on the needs of the patients and family caregivers living with cystic fibrosis (CF) or primary ciliary dyskinesia (PCD), conditions that lead to chronic infections an…

  • A rocky road but worth the drive

    Open Access•Carolina Wannheden, Sara Riggare et al.•ARTICLE•Health Expectations•2023

    BACKGROUND: Partnership research practices involving various stakeholder groups are gaining ground. Yet, the research community is still exploring how to effectively coproduce research together. This study describes (a) key programme developments in the creation of a 6-year partnership research programme in Sweden, and (b) explores the hopes, expectations, and experiences of patient innovators (i.e., individuals with lived experience as patients …

  • Understanding Co‐Creation in a Research Partnership Programme Exploring Patient‐Driven Innovations

    Open Access•Hanna Jansson, Jamie L Luckhaus et al.•ARTICLE•Health Expectations•2024

    BACKGROUND: Research indicates that successful co-creation depends on a shared understanding of co-creation and its related concepts. However, it also shows that, in practice, views on co-creation and how to do it differ. This study aims to explore how patient innovators and researchers in a partnership research programme understand co-creation and how this understanding changes over time. METHODS: An explorative longitudinal qualitative study wa…

Medicine (6 works) · Computer Science (5 works) · Psychology (5 works) · Health care (4 works) · Qualitative research (4 works) · Business (3 works) · Mental Health and Patient Involvement (3 works) · Sociology (3 works) · Thematic analysis (3 works) · Chronic care (2 works)

Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae