Simon Dyson
Biographic Data
| ID | 230456 |
|---|---|
| NAME | Simon Dyson |
| GIVEN NAMES | Simon |
| FAMILY NAME | Dyson |
| SIGNATURE | DYSON S |
| AFFILIATIONS | De Montfort University |
| ORCID | 0000-0001-6015-9767 |
| VERIFIED | Yes |
| TOTAL WORKS | 19 |
| TOTAL CITATIONS | 41 |
| AUTHOR COUNT | 19 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1986 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Little is known about the employment experiences of Black minoritized ethnic workers in England with sickle cell disorder (SCD). Using Satnam Virdee's concept of racialized capitalism within the context of a critical discussion of intersectionality, we argue that their experiences are usefully understood as shared occurrences of racism determined by structural conditions across three generations. Drawing on in‐depth interviews with 47 individuals…
I want to become someone!” gender, reproduction and the moral career of motherhood for women with sickle cell disorders
In Sierra Leone, motherhood is being transformed into a moral career for women with sickle cell disorders. This qualitative participatory study, conducted in 2018, involved thirty-six semi-structured interviews with female care-givers and women with sickle cell disorders. Mothers argued that medical models of disease, combined with caring practices, are means to morally manage ideas of 'spoiled identity' and rethink the sick role, disability and …
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
The Politics of Health Services Research: Health Professionals as Hired Hands in a Commissioned Research Project in England
Previous health services research has failed to account for the role played by clinical staff in the collection of data. In this paper we use the work of Roth on hired hand research to examine the politics of evidence production within health services research. Sociologies of work predict lack of engagement in the research tasks by subordinated groups of workers. We examine the role of midwives in researching ante-natal screening for sickle cell …
Critical realism, agency and sickle cell: Case Studies of Young People With Sickle Cell Disorder at School
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Sickle cell, habitual dys-positions and fragile dispositions: Young People With Sickle Cell at School
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Disclosure and sickle cell disorder: A mixed methods study of the young person with sickle cell at school
Children and young people in hospitals: Doing youth work in medical settings
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Caring for Patients from Different Cultures (4th Edn)
Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage ‐ Edited by Ahmad, W.I.U. and Bradby, H
W.I.U. Ahmad and H. Bradby (eds) Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage . Malden, MA and Oxford : Blackwell , 2008 £19.99 (pbk) ISBN 978-1-4051-6898-4 This book, edited by two sociologists who have helped delineate the field, brings the reader up to date through seven empirical studies in ethnicity and health care, covering self-reported health, nutrition, depression, end-of-life care, diabetes, chronic …
Beyond normalization and impairment: Theorizing subjectivity in learning difficulties – theory and practice
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (Equans) in England: Observation and interview study
The objective of this study was to describe understandings that mothers and midwives have of ethnicity, and to explore barriers to the successful implementation of an ethnicity screening question for sickle cell/thalassaemia. Observation was made of 121 first antenatal interviews between midwife and mother in four contrasting areas of sickle cell prevalence in England. Taped interviews were undertaken with 111 mothers, and 115 interviews were rec…
The educational experiences of young people with sickle cell disorder: A commentary on the existing literature
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place …
Knowledge of sickle-cell in a screened population
The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing 10 multiple-choice knowledge questions on sickle-cell was administered by community interviewers of African-Caribbean descent who did not know the respondents' haemoglobinopathy status. The survey took place in Leicester betwe…
Genetic screening and ethnic minorities
No theory of ‘race’ and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to education of practitioners in this area. Practitioners should link explanations of the haemoglobin diso…
Polls Apart: The 1990 Nicaraguan and 1992 British General Elections
Professionals, Mentally Handicapped Children and Confidential Files
The professional files kept on ESN (S) children contain self-contradictory justifications for school placements; damaging social stereotyping; moral evaluation of parents; professional procedures involving circularity of thought, and attempts by professionals to protect themselves from the type of abuse to which they subject the children and their parents. On the basis that confidentiality offends both quality of information and basic human right…
Sickle cell, habitual dys-positions and fragile dispositions: Young People With Sickle Cell at School
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
Disclosure and sickle cell disorder: A mixed methods study of the young person with sickle cell at school
Beyond normalization and impairment: Theorizing subjectivity in learning difficulties – theory and practice
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
Critical realism, agency and sickle cell: Case Studies of Young People With Sickle Cell Disorder at School
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Knowledge of sickle-cell in a screened population
The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing 10 multiple-choice knowledge questions on sickle-cell was administered by community interviewers of African-Caribbean descent who did not know the respondents' haemoglobinopathy status. The survey took place in Leicester betwe…
Genetic screening and ethnic minorities
No theory of ‘race’ and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to education of practitioners in this area. Practitioners should link explanations of the haemoglobin diso…
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Children and young people in hospitals: Doing youth work in medical settings
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
The educational experiences of young people with sickle cell disorder: A commentary on the existing literature
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place …
Professionals, Mentally Handicapped Children and Confidential Files
The professional files kept on ESN (S) children contain self-contradictory justifications for school placements; damaging social stereotyping; moral evaluation of parents; professional procedures involving circularity of thought, and attempts by professionals to protect themselves from the type of abuse to which they subject the children and their parents. On the basis that confidentiality offends both quality of information and basic human right…
Polls Apart: The 1990 Nicaraguan and 1992 British General Elections
Genetic screening and ethnic minorities
No theory of ‘race’ and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to education of practitioners in this area. Practitioners should link explanations of the haemoglobin diso…
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (Equans) in England: Observation and interview study
The objective of this study was to describe understandings that mothers and midwives have of ethnicity, and to explore barriers to the successful implementation of an ethnicity screening question for sickle cell/thalassaemia. Observation was made of 121 first antenatal interviews between midwife and mother in four contrasting areas of sickle cell prevalence in England. Taped interviews were undertaken with 111 mothers, and 115 interviews were rec…
The educational experiences of young people with sickle cell disorder: A commentary on the existing literature
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place …
Knowledge of sickle-cell in a screened population
The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing 10 multiple-choice knowledge questions on sickle-cell was administered by community interviewers of African-Caribbean descent who did not know the respondents' haemoglobinopathy status. The survey took place in Leicester betwe…
Beyond normalization and impairment: Theorizing subjectivity in learning difficulties – theory and practice
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
Children and young people in hospitals: Doing youth work in medical settings
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Caring for Patients from Different Cultures (4th Edn)
Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage ‐ Edited by Ahmad, W.I.U. and Bradby, H
W.I.U. Ahmad and H. Bradby (eds) Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage . Malden, MA and Oxford : Blackwell , 2008 £19.99 (pbk) ISBN 978-1-4051-6898-4 This book, edited by two sociologists who have helped delineate the field, brings the reader up to date through seven empirical studies in ethnicity and health care, covering self-reported health, nutrition, depression, end-of-life care, diabetes, chronic …
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Disclosure and sickle cell disorder: A mixed methods study of the young person with sickle cell at school
Sickle cell, habitual dys-positions and fragile dispositions: Young People With Sickle Cell at School
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
The Politics of Health Services Research: Health Professionals as Hired Hands in a Commissioned Research Project in England
Previous health services research has failed to account for the role played by clinical staff in the collection of data. In this paper we use the work of Roth on hired hand research to examine the politics of evidence production within health services research. Sociologies of work predict lack of engagement in the research tasks by subordinated groups of workers. We examine the role of midwives in researching ante-natal screening for sickle cell …
Critical realism, agency and sickle cell: Case Studies of Young People With Sickle Cell Disorder at School
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
I want to become someone!” gender, reproduction and the moral career of motherhood for women with sickle cell disorders
In Sierra Leone, motherhood is being transformed into a moral career for women with sickle cell disorders. This qualitative participatory study, conducted in 2018, involved thirty-six semi-structured interviews with female care-givers and women with sickle cell disorders. Mothers argued that medical models of disease, combined with caring practices, are means to morally manage ideas of 'spoiled identity' and rethink the sick role, disability and …
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Little is known about the employment experiences of Black minoritized ethnic workers in England with sickle cell disorder (SCD). Using Satnam Virdee's concept of racialized capitalism within the context of a critical discussion of intersectionality, we argue that their experiences are usefully understood as shared occurrences of racism determined by structural conditions across three generations. Drawing on in‐depth interviews with 47 individuals…
Sociology (13 works) · Psychology (11 works) · Hemoglobinopathies and Related Disorders (10 works) · Medicine (9 works) · Political science (9 works) · Ethnic group (6 works) · Gender Studies (5 works) · Gender Studies (5 works) · Law (5 works) · Prenatal Screening and Diagnostics (5 works)