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A Hillman

Biographic Data

ID23465
NAMEA Hillman
GIVEN NAMESA
FAMILY NAMEHillman
SIGNATUREHILLMAN A
AFFILIATIONSCardiff University
ORCID0000-0003-1859-1075
VERIFIEDYes
TOTAL WORKS25
TOTAL CITATIONS190
AUTHOR COUNT25
EDITOR COUNT0
FIRST PUBLICATION YEAR1946
LATEST PUBLICATION YEAR2025
H-INDEX7
  • Continuity, change and ‘living well’ for older people with dementia: Longitudinal qualitative findings from the Ideal cohort study

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2025•References: 52

    Living well’ is an important concept across national dementia strategies. Qualitative research has contributed to understanding of living well for people with dementia. Longitudinal qualitative approaches, though fewer, can explore potential changes in accounts of living well, psychological coping and adapting to dementia, and if/how people with dementia maintain continuity in their lives. This longitudinal qualitative study aims to gauge what is…

  • Emotional Labor in Dementia Research

    Open Access•Charlotte Quinn, A Hillman et al.•ARTICLE•Qualitative Health Research•2024•References: 46

    The concept of emotional labor refers to the regulation and management of emotions within the workplace. This labor may involve a dissonance between the emotions that are internally felt and the emotions that can be externally expressed. The concept of emotional labor can be applied to the emotional management that occurs during research often when directly interacting with research participants. These emotions can have a positive role in buildin…

  • We're happy as we are’: The experience of living with possible undiagnosed dementia

    Open Access•Josie Henley, A Hillman et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 61

    It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…

  • Living with dementia under Covid-19 restrictions: Coping and support needs among people with dementia and carers from the Ideal cohort

    Open Access•Gareth O'Rourke, Claire Pentecost et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 35

    Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…

  • The precariousness of living with, and caring for people with, dementia: Insights from the Ideal programme

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 4•References: 33

    This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic: Experiences of Ideal cohort participants

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • All the world's a stage: Accounting for the dementia experience - insights from the Ideal study

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Qualitative Research•2020•Cited by: 1•References: 48

    Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing o…

  • Biomarkers and brains: Situating dementia in the laboratory and in the memory clinic

    Open Access•Joanna Latimer, A Hillman•ARTICLE•New Genetics and Society•2019

    This paper provides a comparison of how genetic biomarkers are used (or not) in three contexts: clinic-based diagnostic work with people; lab-based research on mice and their marbles; and lab-based research on thrashing nematodes. For all the worldwide drive to find biomarkers that can be used in the detection of early, presymptomatic dementia, there is little research on how or when the association between biomarkers and a definitive disease are…

  • Somaticization, the making and unmaking of minded persons and the fabrication of dementia

    Open Access•A Hillman, Joanna Latimer•ARTICLE•Social Studies of Science•2019•Cited by: 1•References: 5

    This article examines the strategies by which the different and variable signs of failing mental powers become known sufficiently for ‘dementia’ to be made into a stable bio-clinical entity, that can be tested, diagnosed and perhaps one day even treated. Drawing on data from ethnographic observations in memory clinics, together with interviews with associated scientists and clinicians, we document the challenges that clinicians face across the cl…

  • Protocol for the Ideal-2 longitudinal study: Following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active …

    Open Access•Barbora Šilarova, Sharon M Neli et al.•ARTICLE•BMC Public Health•2018

    IDEAL-2 will provide evidence about the key indicators of, and factors associated with, living well over the course of dementia and how these differ for particular subgroups. It will tell us which combinations of services and support are most beneficial and cost-effective. Moreover, the IDEAL-2 study will gather evidence from under-researched groups of people with dementia, who are likely to have their own distinct perceptions of living well

  • Fear and anxiety: Affects, emotions and care practices in the memory clinic

    Open Access•J Swallow, A Hillman•ARTICLE•Social Studies of Science•2018•Cited by: 11•References: 18

    This paper contributes to the growing recognition in Science and Technology Studies and medical sociology of the significant role of affect in scientific and clinical work. We show how feelings of fear and anxiety associated with dementia not only shape people’s experiences and responses to a diagnosis, but also shape the practices and processes through which assessments and diagnoses are accomplished. What emerges from our research, and provides…

  • Dualities of dementia illness narratives and their role in a narrative economy

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 16•References: 22

    The concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those livin…

  • Pathways and prospects in cancer research: Securing futures and negotiating boundaries

    Open Access•A Hillman, Jamie Lewis et al.•ARTICLE•BioSocieties•2017

  • Diagnosing dementia: Ethnography, interactional ethics and everyday moral reasoning

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2016•Cited by: 2•References: 11

    This article highlights the contribution of ethnography and qualitative sociology to the ethical challenges that frame the diagnosis of dementia. To illustrate this contribution, the paper draws on an ethnographic study of UK memory clinics carried out between 2012 and 2014. The ethnographic data, set alongside other studies and sociological theory, contest the promotion of a traditional view of autonomy; the limiting of the point of ethical inte…

  • Institutions of care, moral proximity and demoralisation: The case of the emergency department

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2015•Cited by: 7•References: 21

    This article draws on concepts of morality and demoralisation to understand the problematic nature of relationships between staff and patients in public health services. The article uses data from a case study of a UK hospital Emergency Department to show how staff are tasked with the responsibility of treating and caring for patients, while at the same time their actions are shaped by the institutional concerns of accountability and resource man…

  • Why must I wait?' The performance of legitimacy in a hospital emergency department

    Open Access•A Hillman•ARTICLE•Sociology of Health & Illness•2014•Cited by: 32•References: 22

    This article examines the processes of negotiation that occur between patients and medical staff over accessing emergency medical resources. The field extracts are drawn from an ethnographic study of a UK emergency department (ED) in a large, inner city teaching hospital. The article focuses on the triage system for patient prioritisation as the first point of access to the ED. The processes of categorising patients for priority of treatment and …

  • I often worry about the older person being in that system’: Exploring the key influences on the provision of dignified care for older people in acute hospitals

    Open Access•Michael Calnan, Win Tadd et al.•ARTICLE•Ageing and Society•2013•Cited by: 5•References: 34

    Older age is one stage of the lifecourse where dignity maybe threatened due to the vulnerability created by increased incapacity, frailty and cognitive decline in combination with a lack of social and economic resources. Evidence suggests that it is in contact with health and welfare services where dignity is most threatened. This study explored the experiences of older people in acute National Health Service (NHS) Trusts in relation to dignified…

  • Risk, governance and the experience of care

    Open Access•A Hillman, Win Tadd et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 19•References: 23

    Drawing on perspectives from the governmentality literature and the sociology of risk, this article explores the strategies, tools and mechanisms for managing risk in acute hospital trusts in the United Kingdom. The article uses qualitative material from an ethnographic study of four acute hospital trusts undertaken between 2008 and 2010 focusing on the provision of dignified care for older people. Extracts from ethnographic material show how the…

  • Ordering, Enrolling, and Dismissing: Moments of Access Across Hospital Spaces

    Open Access•Paul White, A Hillman et al.•ARTICLE•Space and Culture•2012•Cited by: 6•References: 20

    Drawing on ethnographies of three areas of hospital life in the United Kingdom, this article explores the different logics played out through moments of access to hospital services. The authors make explicit the character of the hospital as heterotopia where different social actors are required to “fit” in with the organizational requirements of the hospital. What becomes clear is how the hospital as institution can accommodate particular logics …

  • Akko 1 shipwreck: The effect of cannon fire on the wooden hull

    Open Access•Yaacov Kahanov, John Tresman et al.•ARTICLE•Journal of Archaeological Science•2012•Cited by: 1•References: 1

  • Power, agency and participatory agendas: A critical exploration of young people's engagement in participative qualitative research

    Open Access•Holland, Sally Holland et al.•ARTICLE•Childhood•2010•Cited by: 48•References: 22

    This article critically explores data generated within a participatory research project with young people in the care of a local authority, the (Extra)ordinary Lives project. The project involved ethnographic multi-media data generation methods used in groups and individually with eight participants (aged 10-20) over a school year and encouraged critical reflexive practices throughout. The article problematizes aspects of power, ethics and agency…

  • Moving stories: Using Mobile Methods to Explore the Everyday Lives of Young People in Public Care

    Open Access•Nicola J Ro, Nicola J Ross et al.•ARTICLE•Qualitative Research•2009•Cited by: 32•References: 24

    In this article we explore the ways in which mobile research methods can be utilised to create enabling research environments, encounters and exchanges, generating time and space for participants and researchers to co-generate and communicate meaningful understandings of everyday lives. The article focuses on the use of two mobile methods, 'guided' walks and car journey interactions, and the productiveness of these methods in contributing to the …

  • Becoming Participant': Problematizing `Informed Consent' in Participatory Research with Young People in Care

    Open Access•E Renold, Holland et al.•ARTICLE•Qualitative Social Work•2008

    This article problematizes the slippery notion of `informed consent' and its negotiation in participatory longitudinal ethnographic research with children and young people. It does so within the context of new ethical bureaucracies (Boden et al., in press; Hammersley, 2006). Drawing upon an Economic and Social Research Council (ESRC) funded methodological research project exploring the everyday lives and identities of eight children and young peo…

  • The Role of the Citizen in National Planning

    Open Access•A Hillman•ARTICLE•Annals of Public and Cooperative…•1952

  • A Federal Agency's Relation to Community Planning

    A Hillman•ARTICLE•Social Forces•1946

    Journal Article A Federal Agency's Relation to Community Planning Get access Arthur Hillman Arthur Hillman Roosevelt College of Chicago Search for other works by this author on: Oxford Academic Google Scholar Social Forces, Volume 25, Issue 2, December 1946, Pages 183–189, https://doi.org/10.2307/2571558 Published: 01 December 1946

  • Power, agency and participatory agendas: A critical exploration of young people's engagement in participative qualitative research

    Open Access•Holland, Sally Holland et al.•ARTICLE•Childhood•2010•Cited by: 48•References: 22

    This article critically explores data generated within a participatory research project with young people in the care of a local authority, the (Extra)ordinary Lives project. The project involved ethnographic multi-media data generation methods used in groups and individually with eight participants (aged 10-20) over a school year and encouraged critical reflexive practices throughout. The article problematizes aspects of power, ethics and agency…

  • Why must I wait?' The performance of legitimacy in a hospital emergency department

    Open Access•A Hillman•ARTICLE•Sociology of Health & Illness•2014•Cited by: 32•References: 22

    This article examines the processes of negotiation that occur between patients and medical staff over accessing emergency medical resources. The field extracts are drawn from an ethnographic study of a UK emergency department (ED) in a large, inner city teaching hospital. The article focuses on the triage system for patient prioritisation as the first point of access to the ED. The processes of categorising patients for priority of treatment and …

  • Moving stories: Using Mobile Methods to Explore the Everyday Lives of Young People in Public Care

    Open Access•Nicola J Ro, Nicola J Ross et al.•ARTICLE•Qualitative Research•2009•Cited by: 32•References: 24

    In this article we explore the ways in which mobile research methods can be utilised to create enabling research environments, encounters and exchanges, generating time and space for participants and researchers to co-generate and communicate meaningful understandings of everyday lives. The article focuses on the use of two mobile methods, 'guided' walks and car journey interactions, and the productiveness of these methods in contributing to the …

  • Risk, governance and the experience of care

    Open Access•A Hillman, Win Tadd et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 19•References: 23

    Drawing on perspectives from the governmentality literature and the sociology of risk, this article explores the strategies, tools and mechanisms for managing risk in acute hospital trusts in the United Kingdom. The article uses qualitative material from an ethnographic study of four acute hospital trusts undertaken between 2008 and 2010 focusing on the provision of dignified care for older people. Extracts from ethnographic material show how the…

  • Dualities of dementia illness narratives and their role in a narrative economy

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 16•References: 22

    The concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those livin…

  • Fear and anxiety: Affects, emotions and care practices in the memory clinic

    Open Access•J Swallow, A Hillman•ARTICLE•Social Studies of Science•2018•Cited by: 11•References: 18

    This paper contributes to the growing recognition in Science and Technology Studies and medical sociology of the significant role of affect in scientific and clinical work. We show how feelings of fear and anxiety associated with dementia not only shape people’s experiences and responses to a diagnosis, but also shape the practices and processes through which assessments and diagnoses are accomplished. What emerges from our research, and provides…

  • Institutions of care, moral proximity and demoralisation: The case of the emergency department

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2015•Cited by: 7•References: 21

    This article draws on concepts of morality and demoralisation to understand the problematic nature of relationships between staff and patients in public health services. The article uses data from a case study of a UK hospital Emergency Department to show how staff are tasked with the responsibility of treating and caring for patients, while at the same time their actions are shaped by the institutional concerns of accountability and resource man…

  • Ordering, Enrolling, and Dismissing: Moments of Access Across Hospital Spaces

    Open Access•Paul White, A Hillman et al.•ARTICLE•Space and Culture•2012•Cited by: 6•References: 20

    Drawing on ethnographies of three areas of hospital life in the United Kingdom, this article explores the different logics played out through moments of access to hospital services. The authors make explicit the character of the hospital as heterotopia where different social actors are required to “fit” in with the organizational requirements of the hospital. What becomes clear is how the hospital as institution can accommodate particular logics …

  • I often worry about the older person being in that system’: Exploring the key influences on the provision of dignified care for older people in acute hospitals

    Open Access•Michael Calnan, Win Tadd et al.•ARTICLE•Ageing and Society•2013•Cited by: 5•References: 34

    Older age is one stage of the lifecourse where dignity maybe threatened due to the vulnerability created by increased incapacity, frailty and cognitive decline in combination with a lack of social and economic resources. Evidence suggests that it is in contact with health and welfare services where dignity is most threatened. This study explored the experiences of older people in acute National Health Service (NHS) Trusts in relation to dignified…

  • The precariousness of living with, and caring for people with, dementia: Insights from the Ideal programme

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 4•References: 33

    This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic: Experiences of Ideal cohort participants

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • Diagnosing dementia: Ethnography, interactional ethics and everyday moral reasoning

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2016•Cited by: 2•References: 11

    This article highlights the contribution of ethnography and qualitative sociology to the ethical challenges that frame the diagnosis of dementia. To illustrate this contribution, the paper draws on an ethnographic study of UK memory clinics carried out between 2012 and 2014. The ethnographic data, set alongside other studies and sociological theory, contest the promotion of a traditional view of autonomy; the limiting of the point of ethical inte…

  • We're happy as we are’: The experience of living with possible undiagnosed dementia

    Open Access•Josie Henley, A Hillman et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 61

    It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…

  • Living with dementia under Covid-19 restrictions: Coping and support needs among people with dementia and carers from the Ideal cohort

    Open Access•Gareth O'Rourke, Claire Pentecost et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 35

    Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…

  • All the world's a stage: Accounting for the dementia experience - insights from the Ideal study

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Qualitative Research•2020•Cited by: 1•References: 48

    Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing o…

  • Somaticization, the making and unmaking of minded persons and the fabrication of dementia

    Open Access•A Hillman, Joanna Latimer•ARTICLE•Social Studies of Science•2019•Cited by: 1•References: 5

    This article examines the strategies by which the different and variable signs of failing mental powers become known sufficiently for ‘dementia’ to be made into a stable bio-clinical entity, that can be tested, diagnosed and perhaps one day even treated. Drawing on data from ethnographic observations in memory clinics, together with interviews with associated scientists and clinicians, we document the challenges that clinicians face across the cl…

  • Akko 1 shipwreck: The effect of cannon fire on the wooden hull

    Open Access•Yaacov Kahanov, John Tresman et al.•ARTICLE•Journal of Archaeological Science•2012•Cited by: 1•References: 1

  • A Federal Agency's Relation to Community Planning

    A Hillman•ARTICLE•Social Forces•1946

    Journal Article A Federal Agency's Relation to Community Planning Get access Arthur Hillman Arthur Hillman Roosevelt College of Chicago Search for other works by this author on: Oxford Academic Google Scholar Social Forces, Volume 25, Issue 2, December 1946, Pages 183–189, https://doi.org/10.2307/2571558 Published: 01 December 1946

  • The Role of the Citizen in National Planning

    Open Access•A Hillman•ARTICLE•Annals of Public and Cooperative…•1952

  • Becoming Participant': Problematizing `Informed Consent' in Participatory Research with Young People in Care

    Open Access•E Renold, Holland et al.•ARTICLE•Qualitative Social Work•2008

    This article problematizes the slippery notion of `informed consent' and its negotiation in participatory longitudinal ethnographic research with children and young people. It does so within the context of new ethical bureaucracies (Boden et al., in press; Hammersley, 2006). Drawing upon an Economic and Social Research Council (ESRC) funded methodological research project exploring the everyday lives and identities of eight children and young peo…

  • Moving stories: Using Mobile Methods to Explore the Everyday Lives of Young People in Public Care

    Open Access•Nicola J Ro, Nicola J Ross et al.•ARTICLE•Qualitative Research•2009•Cited by: 32•References: 24

    In this article we explore the ways in which mobile research methods can be utilised to create enabling research environments, encounters and exchanges, generating time and space for participants and researchers to co-generate and communicate meaningful understandings of everyday lives. The article focuses on the use of two mobile methods, 'guided' walks and car journey interactions, and the productiveness of these methods in contributing to the …

  • Power, agency and participatory agendas: A critical exploration of young people's engagement in participative qualitative research

    Open Access•Holland, Sally Holland et al.•ARTICLE•Childhood•2010•Cited by: 48•References: 22

    This article critically explores data generated within a participatory research project with young people in the care of a local authority, the (Extra)ordinary Lives project. The project involved ethnographic multi-media data generation methods used in groups and individually with eight participants (aged 10-20) over a school year and encouraged critical reflexive practices throughout. The article problematizes aspects of power, ethics and agency…

  • Ordering, Enrolling, and Dismissing: Moments of Access Across Hospital Spaces

    Open Access•Paul White, A Hillman et al.•ARTICLE•Space and Culture•2012•Cited by: 6•References: 20

    Drawing on ethnographies of three areas of hospital life in the United Kingdom, this article explores the different logics played out through moments of access to hospital services. The authors make explicit the character of the hospital as heterotopia where different social actors are required to “fit” in with the organizational requirements of the hospital. What becomes clear is how the hospital as institution can accommodate particular logics …

  • Akko 1 shipwreck: The effect of cannon fire on the wooden hull

    Open Access•Yaacov Kahanov, John Tresman et al.•ARTICLE•Journal of Archaeological Science•2012•Cited by: 1•References: 1

  • I often worry about the older person being in that system’: Exploring the key influences on the provision of dignified care for older people in acute hospitals

    Open Access•Michael Calnan, Win Tadd et al.•ARTICLE•Ageing and Society•2013•Cited by: 5•References: 34

    Older age is one stage of the lifecourse where dignity maybe threatened due to the vulnerability created by increased incapacity, frailty and cognitive decline in combination with a lack of social and economic resources. Evidence suggests that it is in contact with health and welfare services where dignity is most threatened. This study explored the experiences of older people in acute National Health Service (NHS) Trusts in relation to dignified…

  • Risk, governance and the experience of care

    Open Access•A Hillman, Win Tadd et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 19•References: 23

    Drawing on perspectives from the governmentality literature and the sociology of risk, this article explores the strategies, tools and mechanisms for managing risk in acute hospital trusts in the United Kingdom. The article uses qualitative material from an ethnographic study of four acute hospital trusts undertaken between 2008 and 2010 focusing on the provision of dignified care for older people. Extracts from ethnographic material show how the…

  • Why must I wait?' The performance of legitimacy in a hospital emergency department

    Open Access•A Hillman•ARTICLE•Sociology of Health & Illness•2014•Cited by: 32•References: 22

    This article examines the processes of negotiation that occur between patients and medical staff over accessing emergency medical resources. The field extracts are drawn from an ethnographic study of a UK emergency department (ED) in a large, inner city teaching hospital. The article focuses on the triage system for patient prioritisation as the first point of access to the ED. The processes of categorising patients for priority of treatment and …

  • Institutions of care, moral proximity and demoralisation: The case of the emergency department

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2015•Cited by: 7•References: 21

    This article draws on concepts of morality and demoralisation to understand the problematic nature of relationships between staff and patients in public health services. The article uses data from a case study of a UK hospital Emergency Department to show how staff are tasked with the responsibility of treating and caring for patients, while at the same time their actions are shaped by the institutional concerns of accountability and resource man…

  • Diagnosing dementia: Ethnography, interactional ethics and everyday moral reasoning

    Open Access•A Hillman•ARTICLE•Social Theory & Health•2016•Cited by: 2•References: 11

    This article highlights the contribution of ethnography and qualitative sociology to the ethical challenges that frame the diagnosis of dementia. To illustrate this contribution, the paper draws on an ethnographic study of UK memory clinics carried out between 2012 and 2014. The ethnographic data, set alongside other studies and sociological theory, contest the promotion of a traditional view of autonomy; the limiting of the point of ethical inte…

  • Pathways and prospects in cancer research: Securing futures and negotiating boundaries

    Open Access•A Hillman, Jamie Lewis et al.•ARTICLE•BioSocieties•2017

  • Protocol for the Ideal-2 longitudinal study: Following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active …

    Open Access•Barbora Šilarova, Sharon M Neli et al.•ARTICLE•BMC Public Health•2018

    IDEAL-2 will provide evidence about the key indicators of, and factors associated with, living well over the course of dementia and how these differ for particular subgroups. It will tell us which combinations of services and support are most beneficial and cost-effective. Moreover, the IDEAL-2 study will gather evidence from under-researched groups of people with dementia, who are likely to have their own distinct perceptions of living well

  • Fear and anxiety: Affects, emotions and care practices in the memory clinic

    Open Access•J Swallow, A Hillman•ARTICLE•Social Studies of Science•2018•Cited by: 11•References: 18

    This paper contributes to the growing recognition in Science and Technology Studies and medical sociology of the significant role of affect in scientific and clinical work. We show how feelings of fear and anxiety associated with dementia not only shape people’s experiences and responses to a diagnosis, but also shape the practices and processes through which assessments and diagnoses are accomplished. What emerges from our research, and provides…

  • Dualities of dementia illness narratives and their role in a narrative economy

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Sociology of Health & Illness•2018•Cited by: 16•References: 22

    The concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those livin…

  • Biomarkers and brains: Situating dementia in the laboratory and in the memory clinic

    Open Access•Joanna Latimer, A Hillman•ARTICLE•New Genetics and Society•2019

    This paper provides a comparison of how genetic biomarkers are used (or not) in three contexts: clinic-based diagnostic work with people; lab-based research on mice and their marbles; and lab-based research on thrashing nematodes. For all the worldwide drive to find biomarkers that can be used in the detection of early, presymptomatic dementia, there is little research on how or when the association between biomarkers and a definitive disease are…

  • Somaticization, the making and unmaking of minded persons and the fabrication of dementia

    Open Access•A Hillman, Joanna Latimer•ARTICLE•Social Studies of Science•2019•Cited by: 1•References: 5

    This article examines the strategies by which the different and variable signs of failing mental powers become known sufficiently for ‘dementia’ to be made into a stable bio-clinical entity, that can be tested, diagnosed and perhaps one day even treated. Drawing on data from ethnographic observations in memory clinics, together with interviews with associated scientists and clinicians, we document the challenges that clinicians face across the cl…

  • All the world's a stage: Accounting for the dementia experience - insights from the Ideal study

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Qualitative Research•2020•Cited by: 1•References: 48

    Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing o…

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic: Experiences of Ideal cohort participants

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Cited by: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • We're happy as we are’: The experience of living with possible undiagnosed dementia

    Open Access•Josie Henley, A Hillman et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 61

    It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…

  • Living with dementia under Covid-19 restrictions: Coping and support needs among people with dementia and carers from the Ideal cohort

    Open Access•Gareth O'Rourke, Claire Pentecost et al.•ARTICLE•Ageing and Society•2023•Cited by: 1•References: 35

    Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…

  • The precariousness of living with, and caring for people with, dementia: Insights from the Ideal programme

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Social Science & Medicine•2023•Cited by: 4•References: 33

    This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…

  • Emotional Labor in Dementia Research

    Open Access•Charlotte Quinn, A Hillman et al.•ARTICLE•Qualitative Health Research•2024•References: 46

    The concept of emotional labor refers to the regulation and management of emotions within the workplace. This labor may involve a dissonance between the emotions that are internally felt and the emotions that can be externally expressed. The concept of emotional labor can be applied to the emotional management that occurs during research often when directly interacting with research participants. These emotions can have a positive role in buildin…

  • Continuity, change and ‘living well’ for older people with dementia: Longitudinal qualitative findings from the Ideal cohort study

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2025•References: 52

    Living well’ is an important concept across national dementia strategies. Qualitative research has contributed to understanding of living well for people with dementia. Longitudinal qualitative approaches, though fewer, can explore potential changes in accounts of living well, psychological coping and adapting to dementia, and if/how people with dementia maintain continuity in their lives. This longitudinal qualitative study aims to gauge what is…

Medicine (18 works) · Psychology (17 works) · Sociology (17 works) · Dementia (13 works) · Political science (13 works) · Disease (10 works) · Law (9 works) · Social science (9 works) · Ethnography (8 works) · Gerontology (7 works)

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